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Unmet Palliative Ca...
Unmet Palliative Care Needs Among Patients With End-Stage Kidney Disease : A National Registry Study About the Last Week of Life
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- Axelsson, Lena (författare)
- Linnaeus University,Sophiahemmet Högskola,Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Sophiahemmet University, Sweden,Ctr Collaborat Palliat Care,Linnéuniversitetet; Sophiahemmet högskola
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- Alvariza, Anette (författare)
- Ersta Sköndal Bräcke högskola,Palliativt forskningscentrum, PFC,Capio Palliativ vård Dalen
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- Lindberg, Jenny (författare)
- Lund University,Lunds universitet,Medicinsk etik,Sektion II,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Medical Ethics,Section II,Department of Clinical Sciences, Lund,Faculty of Medicine,Skåne University Hospital,Lunds universitet; Skånes universitetssjukhus
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- Öhlén, Joakim, 1958 (författare)
- Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institute of Health and Care Sciences,University of Gothenburg Centre for person-centred care (GPCC)
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- Håkanson, Cecilia (författare)
- Sophiahemmet Högskola,Sophiahemmet University, Sweden,Sophiahemmet högskola
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- Reimertz, Helene (författare)
- Region Kronoberg, Sweden,Ctr Collaborat Palliat Care
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- Fürst, Carl Johan (författare)
- Lund University,Lunds universitet,Palliativt Utvecklingscentrum,Forskargrupper vid Lunds universitet,The Institute for Palliative Care,Lund University Research Groups,Lunds universitet; Region Skåne
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- Årestedt, Kristofer, 1968- (författare)
- Linnéuniversitetet,Institutionen för hälso- och vårdvetenskap (HV),Kalmar County Hospital, Sweden,Linnéuniversitetet; Länssjukhuset i Kalmar
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(creator_code:org_t)
- Elsevier, 2018
- 2018
- Engelska.
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Ingår i: Journal of Pain and Symptom Management. - : Elsevier. - 0885-3924 .- 1873-6513. ; 55:2, s. 236-244
- Relaterad länk:
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http://www.jpsmjourn...
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http://dx.doi.org/10...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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https://lup.lub.lu.s...
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https://urn.kb.se/re...
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https://gup.ub.gu.se...
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Abstract
Ämnesord
Stäng
- Context. End-stage kidney disease (ESKD) is characterized by high physical and psychological burden, and therefore, more knowledge about the palliative care provided close to death is needed. Objectives. To describe symptom prevalence, relief, and management during the last week of life, as well as end-of-life communication, in patients with ESKD. Methods. This study was based on data from the Swedish Register of Palliative Care. Patients aged 18 or older who died from a chronic kidney disease, with or without dialysis treatment (International Classification of Diseases, Tenth Revision, Sweden; N18.5 or N18.9), during 2011 and 2012 were selected. Results. About 472 patients were included. Of six predefined symptoms, pain was the most prevalent (69%), followed by respiratory secretion (46%), anxiety (41%), confusion (30%), shortness of breath (22%), and nausea (17%). Of patients with pain and/or anxiety, 32% and 44%, respectively, were only partly relieved or not relieved at all. Of patients with the other symptoms, a majority (55%-84%) were partly relieved or not relieved at all. End-of-life discussions were reported in 41% of patients and 71% of families. A minority died in specialized palliative care: 8% in hospice/inpatient palliative care and 5% in palliative home care. Of all patients, 19% died alone. Bereavement support was offered to 38% of families. Conclusion. Even if death is expected, most patients dying with ESKD had unmet palliative care needs regarding symptom management, advance care planning, and bereavement support. (C) 2017 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Annan medicin och hälsovetenskap -- Övrig annan medicin och hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Other Medical and Health Sciences -- Other Medical and Health Sciences not elsewhere specified (hsv//eng)
Nyckelord
- Dialysis
- end of life
- end-stage kidney disease
- palliative care
- registries
- symptom
- Health and Caring Sciences
- Hälsovetenskap
- Dialysis
- End of life
- End-stage kidney disease
- Palliative care
- Registries
- Symptom
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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