Burnout in parents of chronically ill children

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Lindström, Caisa,1955-Örebro universitet,Institutionen för medicinska vetenskaper (författare)

Burnout in parents of chronically ill children

BokEngelska2016

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Örebro :Örebro university,2016
101 s.
electronicrdacarrier

Nummerbeteckningar

LIBRIS-ID:oai:DiVA.org:oru-47391
ISBN:9789175291161
https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-47391URI

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Språk:engelska
Sammanfattning på:engelska

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Ämneskategori:vet swepub-contenttype
Ämneskategori:dok swepub-publicationtype

Serie

Örebro Studies in Medicine,1652-4063 ;131

Anmärkningar

Parents of children with a chronic disease are usually highly involved in their child’s treatment and may be affected by the heavy demands and constant stress. This can increase the risk of developing burnout, which is an individual reaction to long-term stress consisting of symptoms associated with emotional exhaustion, as well as physical and cognitive fatigue. The overall aim was to estimate the prevalence of burnout in parents of children with Type 1 Diabetes Mellitus (T1DM) and inflammatory bowel disease (IBD) (paper I), identify the risk factors associated with parenting a child with T1DM (paper II), explore how mothers suffering from burnout describe their mothering of a child with diabetes, with special focus on their need for control and Performance-based self-esteem (PBSE) (paper IV), and to evaluate the effect of a group intervention aimed at reducing stress-related symptoms (paper III). A total of 251 parents of children with T1DM, 38 parents of children with IBD and 124 parents of healthy children participated in a population-based study (I, II). The validated Shirom-Melamed Burnout Questionnaire (SMBQ) was used to assess burnout. 16 parents (SMBQ ≥3.75) participated in a group intervention and were evaluated for changes in SMBQ and PBSE (III). A total of 21 mothers of children with T1DM who scored for clinical burnout (SMBQ) participated in a qualitative study. Semi-structured interviews were conducted and Inductive content analysis was used (IV). In the study group 36.0% parents of children with a chronic disease scored for clinical burnout (SMBQ ≥3.75) compared to 20.2% of the reference parents (p=0.001) with a preponderance of mothers compared to fathers, 42% vs. 20.5% (p=0.001), respectively (I). Less support from the social network, sleep disturbances and lack of personal leisure time and recovery seem to be important risk factors for clinical burnout in parents of children with T1DM, especially mothers (II). Mothers’ experiences of mothering a child with T1DM were interpreted as one theme; Mission impossible, illustrating the extremely difficult circumstances under which they bring up the child with diabetes to adulthood (IV). Parents’ subjective evaluation of the intervention group was mainly positive and SMBQ (p=0.01) and PBSE scale (p= 0.04) measurements were significantly reduced 6 months after completion of the intervention (III). It is important to pay attention to how parents and especially mothers experience their daily life in order to support those who are at risk of developing burnout.

Ämnesord och genrebeteckningar

MEDICIN OCH HÄLSOVETENSKAP Klinisk medicin Allmänmedicin hsv//swe
MEDICAL AND HEALTH SCIENCES Clinical Medicine General Practice hsv//eng
Burnout
long-term stress
parents
children
chronic illness
T1DM
IBD
intervention group
Family Medicine
Allmänmedicin

Biuppslag (personer, institutioner, konferenser, titlar ...)

Åman, Jan,ProfessorÖrebro University(Swepub:oru)jnaa (preses)
Lindahl Norberg, AnnikaCentre for occupational and Environmental Medicine, Stockholm County Council, Stockholm, Sweden; Karolinska Institute, Stockholm, Sweden (preses)
Anderzén Carlsson, Agneta,DocentÖrebro universitet,Institutionen för hälsovetenskaper(Swepub:oru)atan (preses)
Sparud Lundin, Carina,ProfessorGöteborgs universitet (opponent)
Örebro universitetInstitutionen för medicinska vetenskaper (creator_code:org_t)

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