Sökning: onr:"swepub:oai:DiVA.org:oru-76565" >
Life strategies of ...
Life strategies of people with deafblindness due to Usher syndrome type 2a-a qualitative study
-
- Ehn, Mattias, 1972- (författare)
- Örebro universitet,Institutionen för hälsovetenskaper,The Swedish Institute for Disability Research, Örebro University, Örebro, Sweden; Audiological research centre, University hospital, Örebro, Sweden
-
- Anderzen-Carlsson, Agneta, 1966- (författare)
- Örebro universitet,Institutionen för hälsovetenskaper,Region Örebro län,The Swedish Institute for Disability Research, Örebro University, Örebro, Sweden; University Health Care Research Centre, Faculty of Medicine and Health, Örebro University, Örebro, Sweden
-
- Möller, Claes, 1950- (författare)
- Örebro universitet,Institutionen för medicinska vetenskaper,The Swedish Institute for Disability Research, Örebro University, Örebro, Sweden; Audiological research centre, University hospital, Örebro, Sweden
-
visa fler...
-
- Wahlqvist, Moa, 1979- (författare)
- Örebro universitet,Institutionen för hälsovetenskaper,Region Örebro län,The Swedish Institute for Disability Research, Örebro University, Örebro, Sweden; Audiological research centre, University hospital, Faculty of Medicine and Health, Örebro University, Örebro, Sweden; The Swedish National Resource Centre for Deafblindness, Lund, Sweden
-
visa färre...
-
(creator_code:org_t)
- 2019-08-30
- 2019
- Engelska.
-
Ingår i: International Journal of Qualitative Studies on Health and Well-being. - : Taylor & Francis. - 1748-2623 .- 1748-2631. ; 14:1
- Relaterad länk:
-
https://doi.org/10.1...
-
visa fler...
-
https://www.tandfonl...
-
https://urn.kb.se/re...
-
https://doi.org/10.1...
-
visa färre...
Abstract
Ämnesord
Stäng
- Purpose: To explore life strategies in people with Usher syndrome type 2a.Background: There are no studies on life strategies in people with Usher syndrome. People with deafblindness are often described in terms of poor health and low quality of life, or as being vulnerable. From a clinical point of view, it is of importance to balance this picture, with an increased knowledge of life strategies.Methods: The study had a qualitative explorative design. Fourteen people aged 20-64 years (4 women, 10 men) with USH2a in Sweden participated in focus group interviews, which were transcribed and analysed by qualitative content analysis.Results: The content analysis resulted in seven categories; remaining active, using devices, using support, sharing knowledge, appreciating the present, maintaining a positive image and alleviating emotional pain. Two sub-themes: resolve or prevent challenges and comforting oneself was abstracted forming a theme "being at the helm".Conclusion: The findings show that people with USH2a have a variety of life strategies that can be interpreted as highlighting different aspects of psychological flexibility in a life adjustment process. The study demonstrates that people with USH2a manage in many ways, and metaphorically, by "taking the helm", they strive to actively navigate towards their own chosen values.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
Nyckelord
- Deafblindness
- focus groups
- life strategies
- psychological flexibility
- qualitative content analysis
- Usher syndrome type 2
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
Hitta via bibliotek
Till lärosätets databas