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Feeling valued vers...
Feeling valued versus abandoned : Voices of persons who have completed a cognitive assessment
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- Tyrrell, Marie (författare)
- Sophiahemmet Högskola,Sophiahemmet Högskola, Sweden; Karolinska Institutet, NVS, Sweden
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- Hedman, Ragnhild, 1962- (författare)
- Sophiahemmet Högskola,Sophiahemmet Högskola, Sweden
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- Fossum, Bjöörn (författare)
- Sophiahemmet Högskola,Sophiahemmet Högskola, Sweden; Karolinska Institutet, SöS, Sweden
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- Skovdahl, Kirsti (författare)
- University in South-Eastern Norway, Notodden, Norway
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- Religa, Dorota (författare)
- Karolinska Institutet
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- Hillerås, Pernilla (författare)
- Röda Korsets Högskola,Hälsovetenskapliga institutionen,Sophiahemmet Högskola, Sweden; Karolinska Institutet, NVS, Sweden
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(creator_code:org_t)
- 2021-07-07
- 2021
- Engelska.
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Ingår i: International Journal of Older People Nursing. - : John Wiley & Sons. - 1748-3735 .- 1748-3743. ; 16:6
- Relaterad länk:
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https://doi.org/10.1...
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https://urn.kb.se/re...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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Abstract
Ämnesord
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- AIM: To describe older persons' experiences of a cognitive assessment and possible neuropsychiatric symptoms [NPS] related to a neurocognitive diagnosis.BACKGROUND: A cognitive assessment in primary care is offered to persons with suspected dementia with subsequent referral to a specialist clinic if required. The assessment process, with the likelihood of receiving a dementia diagnosis, is surrounded by uncertainty with long waiting times. Although NPS are common among persons with cognitive impairment persons are not routinely asked about these symptoms during a cognitive assessment.METHOD: Interviews were held with 18 participants who had completed a cognitive assessment. The Neuropsychiatric Inventory [NPI] was incorporated into one of the interview questions enabling participants to self-report NPS, if present. Interview data were analysed using Interpretive Description.RESULTS: Two main themes were identified: a matter of trust and making sense of a cognitive diagnosis. Experiences of the assessment process ranged from feeling valued to abandoned with variations of trust in the process. A diagnosis of mild cognitive impairment was experienced as an abstract diagnosis devoid of follow-up support. A lack of preparedness for the assessment existed among participants. Some experienced the process as standardised. One half of participants self-reported the presence of one to four NPS, regardless of neurocognitive diagnosis. Irritability and depression were most common NPS identified.CONCLUSIONS: Experiences of a cognitive assessment varied from feeling valued by society to abandoned in the absence of follow-up support. The assessment was viewed as a standardised procedure failing to see the person behind the testing. Diagnosis disclosure conversations were experienced as diffuse with participants unprepared for a dementia diagnosis. The NPI enabled participants to identify and report the presence of NPS which otherwise could go undetected during the cognitive assessment, impacting on the person's well-being and daily life.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Geriatrik (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Geriatrics (hsv//eng)
Nyckelord
- cognitive assessment
- cognitive impairment
- dementia
- experiences
- mild
- neuropsychiatric symptoms
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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