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Family members' lif...
Family members' life situation and experiences of different caring organisations during allogeneic haematopoietic stem cells transplantation: : A qualitative study
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- Bergkvist, Karin (författare)
- Sophiahemmet Högskola,Sophiahemmet University
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- Larsen, Joacim (författare)
- Röda Korsets Högskola,Avdelningen Vård och Omvårdnad,Röda Korsets Högskola, Avdelningen Vård och Omvårdnad
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- Johansson, Unn-Britt (författare)
- Karolinska Institutet,Sophiahemmet Högskola,Sophiahemmet University / Södersjukhuset, Karolinska Institutet
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- Mattsson, J (författare)
- Karolinska Institutet,Karolinska University Hospital / Karolinska Institutet
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- Fossum, Bjöörn (författare)
- Sophiahemmet Högskola,Sophiahemmet University / Södersjukhuset, Karolinska Institutet
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(creator_code:org_t)
- Wiley-Blackwell, 2018
- 2018
- Engelska.
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Ingår i: European Journal of Cancer Care. - : Wiley-Blackwell. - 0961-5423 .- 1365-2354. ; 27:1
- Relaterad länk:
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https://shh.diva-por... (primary) (Raw object)
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http://shh.diva-port...
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https://urn.kb.se/re...
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https://urn.kb.se/re...
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https://doi.org/10.1...
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http://kipublication...
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https://urn.kb.se/re...
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Abstract
Ämnesord
Stäng
- The aim of this study was to describe family members' life situation and experiences of care in two different care settings, the patient's home or in hospital during the acute post-transplantation phase after allogeneic haematopoietic stem cell transplantation (HSCT). Data were collected through semi-structured interviews with 14 family members (seven women and seven men). An inductive qualitative content analysis was used to analyse the data. The majority of the family members' (n = 10) had experiences from home care. The findings show the family members' voice of the uncertainty in different ways, related with the unknown prognosis of the HSCT, presented as Being me being us in an uncertain time. The data are classified into; To meet a caring organisation, To be in different care settings, To be a family member and To have a caring relationship. Positive experiences such as freedom and security from home care were identified. The competence and support from the healthcare professionals was profound. Different strategies such as adjusting, having hope and live in the present used to balance to live in an uncertain time. The healthcare professionals need to identify psychosocial problems, and integrate the psychosocial support for the family to alleviate or decrease anxiety during HSCT, regardless of the care setting.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
Nyckelord
- Allogeneic stem cell transplantation
- Experiences
- Family member
- Home Care
- Hospital care
- Life situation
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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