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Feeling excluded and not having anyone to talk to : Qualitative study of interpersonal relationships following a cancer diagnosis in a sibling

Toft, Teolinda (författare)
Uppsala universitet,Klinisk psykologi i hälso- och sjukvård
Alfonsson, Sven, 1977- (författare)
Karolinska Institutet,Uppsala universitet,Klinisk psykologi i hälso- och sjukvård,Karolinska Inst, Ctr Psychiat Res, Dept Clin Neurosci, Stockholm, Sweden;Stockholm Cty Council, Stockholm Hlth Care Serv, Norra Stn Gatan 69, SE-11364 Stockholm, Sweden
Hovén, Emma, 1983- (författare)
Karolinska Institutet,Uppsala universitet,Klinisk psykologi i hälso- och sjukvård,Karolinska Inst, Dept Womens & Childrens Hlth, Childhood Canc Res Unit, Stockholm, Sweden
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Carlsson, Tommy (författare)
Uppsala universitet,Sophiahemmet Högskola,Klinisk psykologi i hälso- och sjukvård,Sophiahemmet Univ, Dept Hlth Promoting Sci, Stockholm, Sweden
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 (creator_code:org_t)
Elsevier BV, 2019
2019
Engelska.
Ingår i: European Journal of Oncology Nursing. - : Elsevier BV. - 1462-3889 .- 1532-2122. ; 42, s. 76-81
  • Tidskriftsartikel (refereegranskat)
Abstract Ämnesord
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  • PURPOSE: To explore experiences related to interpersonal relationships following a cancer diagnosis in a sibling.METHODS: Respondents (n = 7 females) were recruited by means of convenience sampling during a camp for children affected by childhood cancer and their siblings. Data from children and adolescents with a sibling diagnosed with cancer was collected through individual face-to-face interviews and analyzed using systematic text condensation.RESULTS: Two categories portrayed the experiences related to interpersonal relationships following a cancer diagnosis in a sibling. Feeling excluded while wanting to maintain a relationship with their ill sibling and be involved in the care portrayed that trying to be involved in the care of their ill sibling was a stressful and difficult experience, since they were simultaneously expected to also manage household chores and attend school. Feeling stigmatized and exposed in social contexts while needing an allowing space to talk about their experiences portrayed the emotional difficulties evoked by social situations and behaviors of others, which left respondents feeling exposed and mistreated. Having the possibility to talk about their experiences and receiving social support was described as essential in order to cope with the situation.CONCLUSIONS: Health professionals need to take into consideration the emotional difficulties and vulnerable situation that children and adolescents who have a sibling diagnosed with cancer are at risk of experiencing. Stigmatization and social exposure present a risk of psychological distress. Having an allowing space to communicate feelings and experiences is desired. Interventions may be necessary to help these individuals psychologically cope.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Nursing (hsv//eng)

Nyckelord

Interpersonal relations
Life change events
Pediatric cancer
Sibling relations
Siblings

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