Sökning: onr:"swepub:oai:DiVA.org:umu-99212" > Assessment of Patte...
Fältnamn | Indikatorer | Metadata |
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000 | 05603naa a2200757 4500 | |
001 | oai:DiVA.org:umu-99212 | |
003 | SwePub | |
008 | 150204s2015 | |||||||||||000 ||eng| | |
009 | oai:gup.ub.gu.se/208088 | |
024 | 7 | a https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-992122 URI |
024 | 7 | a https://doi.org/10.1016/j.ijcard.2014.11.0842 DOI |
024 | 7 | a https://gup.ub.gu.se/publication/2080882 URI |
040 | a (SwePub)umud (SwePub)gu | |
041 | a engb eng | |
042 | 9 SwePub | |
072 | 7 | a ref2 swepub-contenttype |
072 | 7 | a art2 swepub-publicationtype |
100 | 1 | a Apers, Silke4 aut |
245 | 1 0 | a Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS) :b Rationale, design, and methods |
264 | 1 | b Elsevier BV,c 2015 |
338 | a print2 rdacarrier | |
520 | a Background: Data on patient-reported outcomes (PROs) in adults with congenital heart disease (CHD) are inconsistent and vary across the world. Better understanding of PROs and their differences across cultural and geographic barriers can best be accomplished via international studies using uniform research methods. The APPROACH-IS consortium (Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study) was created for this purpose and investigates PROs in adults with CHD worldwide. This paper outlines the project rationale, design, and methods. Methods/design: APPROACH-IS is a cross-sectional study. The goal is to recruit 3500-4000 adults with CHD from 15 countries in five major regions of the world (Asia, Australia, Europe, North and South America). Self-report questionnaires are administered to capture information on PRO domains: (i) perceived health status (12-item Short-form Health Survey & EuroQOL-5D); (ii) psychological functioning (Hospital Anxiety and Depression Scale); (iii) health behaviors (Health-Behavior Scale-Congenital Heart Disease); and (iv) quality of life (Linear Analog Scale & Satisfaction With Life Scale). Additionally, potential explanatory variables are assessed: (i) socio-demographic variables; (ii) medical history (chart review); (iii) sense of coherence (Orientation to Life Questionnaire); and (iv) illness perceptions (Brief Illness Perception Questionnaire). Descriptive analyses and multilevel models will examine differences in PROs and investigate potential explanatory variables. Discussion: APPROACH-IS represents a global effort to increase research understanding and capacity in the field of CHD, and will have major implications for patient care. Results will generate valuable information for developing interventions to optimize patients' health and well-being. | |
650 | 7 | a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Kardiologi0 (SwePub)302062 hsv//swe |
650 | 7 | a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex Cardiac and Cardiovascular Systems0 (SwePub)302062 hsv//eng |
650 | 7 | a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Omvårdnad0 (SwePub)303052 hsv//swe |
650 | 7 | a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Nursing0 (SwePub)303052 hsv//eng |
650 | 7 | a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi0 (SwePub)303022 hsv//swe |
650 | 7 | a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Public Health, Global Health, Social Medicine and Epidemiology0 (SwePub)303022 hsv//eng |
653 | a Adult | |
653 | a Heart defects | |
653 | a Congenital | |
653 | a International cooperation | |
653 | a Methods | |
653 | a Patient-reported outcomes | |
700 | 1 | a Kovacs, Adrienne H.4 aut |
700 | 1 | a Luyckx, Koen4 aut |
700 | 1 | a Alday, Luis4 aut |
700 | 1 | a Berghammer, Malin,d 1970u Gothenburg University,Göteborgs universitet,Institutionen för medicin,Institute of Medicine4 aut0 (Swepub:gu)xbmalq |
700 | 1 | a Budts, Werner4 aut |
700 | 1 | a Callus, Edward4 aut |
700 | 1 | a Caruana, Maryanne4 aut |
700 | 1 | a Chidambarathanu, Shanthi4 aut |
700 | 1 | a Cook, Stephen C.4 aut |
700 | 1 | a Dellborg, Mikael,d 1954u Gothenburg University,Göteborgs universitet,Institutionen för medicin, avdelningen för molekylär och klinisk medicin,Institute of Medicine, Department of Molecular and Clinical Medicine4 aut0 (Swepub:gu)xdelmi |
700 | 1 | a Enomoto, Junko4 aut |
700 | 1 | a Eriksen, Katrine4 aut |
700 | 1 | a Fernandes, Susan M.4 aut |
700 | 1 | a Jackson, Jamie L.4 aut |
700 | 1 | a Johansson, Bengtu Umeå universitet,Medicin4 aut0 (Swepub:umu)bejo0003 |
700 | 1 | a Khairy, Paul4 aut |
700 | 1 | a Kutty, Shelby4 aut |
700 | 1 | a Menahem, Samuel4 aut |
700 | 1 | a Rempel, Gwen4 aut |
700 | 1 | a Sluman, Maayke A.4 aut |
700 | 1 | a Soufi, Alexandra4 aut |
700 | 1 | a Thomet, Corina4 aut |
700 | 1 | a Veldtman, Gruschen4 aut |
700 | 1 | a Wang, Jou-Kou4 aut |
700 | 1 | a White, Kamila4 aut |
700 | 1 | a Moons, Philip,d 1968u Gothenburg University,Göteborgs universitet,Institutionen för medicin,Institute of Medicine4 aut0 (Swepub:gu)xmooph |
710 | 2 | a Göteborgs universitetb Institutionen för medicin4 org |
773 | 0 | t International Journal of Cardiologyd : Elsevier BVg 179, s. 334-342q 179<334-342x 0167-5273x 1874-1754 |
856 | 4 | u https://lirias.kuleuven.be/bitstream/123456789/469346/2/Post%20print%20Apers%20et%20al%202015%20IJC.pdf |
856 | 4 8 | u https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-99212 |
856 | 4 8 | u https://doi.org/10.1016/j.ijcard.2014.11.084 |
856 | 4 8 | u https://gup.ub.gu.se/publication/208088 |
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