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Sökning: onr:"swepub:oai:DiVA.org:umu-99212" > Assessment of Patte...

LIBRIS Formathandbok  (Information om MARC21)
FältnamnIndikatorerMetadata
00005603naa a2200757 4500
001oai:DiVA.org:umu-99212
003SwePub
008150204s2015 | |||||||||||000 ||eng|
009oai:gup.ub.gu.se/208088
0247 a https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-992122 URI
0247 a https://doi.org/10.1016/j.ijcard.2014.11.0842 DOI
0247 a https://gup.ub.gu.se/publication/2080882 URI
040 a (SwePub)umud (SwePub)gu
041 a engb eng
042 9 SwePub
072 7a ref2 swepub-contenttype
072 7a art2 swepub-publicationtype
1001 a Apers, Silke4 aut
2451 0a Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS) :b Rationale, design, and methods
264 1b Elsevier BV,c 2015
338 a print2 rdacarrier
520 a Background: Data on patient-reported outcomes (PROs) in adults with congenital heart disease (CHD) are inconsistent and vary across the world. Better understanding of PROs and their differences across cultural and geographic barriers can best be accomplished via international studies using uniform research methods. The APPROACH-IS consortium (Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study) was created for this purpose and investigates PROs in adults with CHD worldwide. This paper outlines the project rationale, design, and methods. Methods/design: APPROACH-IS is a cross-sectional study. The goal is to recruit 3500-4000 adults with CHD from 15 countries in five major regions of the world (Asia, Australia, Europe, North and South America). Self-report questionnaires are administered to capture information on PRO domains: (i) perceived health status (12-item Short-form Health Survey & EuroQOL-5D); (ii) psychological functioning (Hospital Anxiety and Depression Scale); (iii) health behaviors (Health-Behavior Scale-Congenital Heart Disease); and (iv) quality of life (Linear Analog Scale & Satisfaction With Life Scale). Additionally, potential explanatory variables are assessed: (i) socio-demographic variables; (ii) medical history (chart review); (iii) sense of coherence (Orientation to Life Questionnaire); and (iv) illness perceptions (Brief Illness Perception Questionnaire). Descriptive analyses and multilevel models will examine differences in PROs and investigate potential explanatory variables. Discussion: APPROACH-IS represents a global effort to increase research understanding and capacity in the field of CHD, and will have major implications for patient care. Results will generate valuable information for developing interventions to optimize patients' health and well-being. 
650 7a MEDICIN OCH HÄLSOVETENSKAPx Klinisk medicinx Kardiologi0 (SwePub)302062 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Clinical Medicinex Cardiac and Cardiovascular Systems0 (SwePub)302062 hsv//eng
650 7a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Omvårdnad0 (SwePub)303052 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Nursing0 (SwePub)303052 hsv//eng
650 7a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi0 (SwePub)303022 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Public Health, Global Health, Social Medicine and Epidemiology0 (SwePub)303022 hsv//eng
653 a Adult
653 a Heart defects
653 a Congenital
653 a International cooperation
653 a Methods
653 a Patient-reported outcomes
7001 a Kovacs, Adrienne H.4 aut
7001 a Luyckx, Koen4 aut
7001 a Alday, Luis4 aut
7001 a Berghammer, Malin,d 1970u Gothenburg University,Göteborgs universitet,Institutionen för medicin,Institute of Medicine4 aut0 (Swepub:gu)xbmalq
7001 a Budts, Werner4 aut
7001 a Callus, Edward4 aut
7001 a Caruana, Maryanne4 aut
7001 a Chidambarathanu, Shanthi4 aut
7001 a Cook, Stephen C.4 aut
7001 a Dellborg, Mikael,d 1954u Gothenburg University,Göteborgs universitet,Institutionen för medicin, avdelningen för molekylär och klinisk medicin,Institute of Medicine, Department of Molecular and Clinical Medicine4 aut0 (Swepub:gu)xdelmi
7001 a Enomoto, Junko4 aut
7001 a Eriksen, Katrine4 aut
7001 a Fernandes, Susan M.4 aut
7001 a Jackson, Jamie L.4 aut
7001 a Johansson, Bengtu Umeå universitet,Medicin4 aut0 (Swepub:umu)bejo0003
7001 a Khairy, Paul4 aut
7001 a Kutty, Shelby4 aut
7001 a Menahem, Samuel4 aut
7001 a Rempel, Gwen4 aut
7001 a Sluman, Maayke A.4 aut
7001 a Soufi, Alexandra4 aut
7001 a Thomet, Corina4 aut
7001 a Veldtman, Gruschen4 aut
7001 a Wang, Jou-Kou4 aut
7001 a White, Kamila4 aut
7001 a Moons, Philip,d 1968u Gothenburg University,Göteborgs universitet,Institutionen för medicin,Institute of Medicine4 aut0 (Swepub:gu)xmooph
7102 a Göteborgs universitetb Institutionen för medicin4 org
7730 t International Journal of Cardiologyd : Elsevier BVg 179, s. 334-342q 179<334-342x 0167-5273x 1874-1754
8564 u https://lirias.kuleuven.be/bitstream/123456789/469346/2/Post%20print%20Apers%20et%20al%202015%20IJC.pdf
8564 8u https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-99212
8564 8u https://doi.org/10.1016/j.ijcard.2014.11.084
8564 8u https://gup.ub.gu.se/publication/208088

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