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Children with cance...
Children with cancer share their views : tell the truth but leave room for hope
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- Jalmsell, Li (författare)
- Uppsala universitet,Centrum för forsknings- och bioetik,Visby Lasarett, Oncol Unit, Visby, Sweden.,Uppsala universitet; Visby lasarett
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- Lövgren, Malin (författare)
- Karolinska Institutet,Karolinska Inst, Karolinska Univ Hosp, Dept Womens & Childrens Hlth, Childhood Canc Res Unit, Stockholm, Sweden.;Ersta Skondal Univ Coll, Palliat Res Ctr, Stockholm, Sweden.
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- Kreicbergs, Ulrika (författare)
- Ersta Sköndal högskola,Karolinska Institutet,Karolinska Inst, Karolinska Univ Hosp, Dept Womens & Childrens Hlth, Childhood Canc Res Unit, Stockholm, Sweden.;Ersta Skondal Univ Coll, Palliat Res Ctr, Stockholm, Sweden.,Palliativt forskningscentrum, PFC,Karolinska institutet
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- Henter, Jan-Inge (författare)
- Karolinska Institutet,Karolinska Inst, Karolinska Univ Hosp, Dept Womens & Childrens Hlth, Childhood Canc Res Unit, Stockholm, Sweden.,Karolinska institutet
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- Frost, Britt-Marie (författare)
- Uppsala universitet,Pediatrik,Univ Uppsala Hosp, Dept Pediat, Uppsala, Sweden.,Barnneurologi/Barnonkologi
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(creator_code:org_t)
- 2016-07-03
- 2016
- Engelska.
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Ingår i: Acta Paediatrica. - : Wiley. - 0803-5253 .- 1651-2227. ; 105:9, s. 1094-1099
- Relaterad länk:
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https://urn.kb.se/re...
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https://doi.org/10.1...
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http://kipublication...
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https://urn.kb.se/re...
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Abstract
Ämnesord
Stäng
- AimOne in five children diagnosed with cancer will die from the disease. The aim of the study was to explore how children with cancer want to receive bad news about their disease, such as when no more treatment options are available. MethodsWe conducted individual interviews with ten children with cancer, aged seven to 17 years, at a single paediatric oncology unit in central Sweden. Interviews were audio-taped and analysed with systematic text condensation. Bad news was defined as information about a potentially fatal outcome, such as a disease relapse, or information that the treatment administered was no longer working and that there was no more treatment possible. ResultsAll children expressed that they wanted truthful information and they did not want to be excluded from bad news regarding their illness. They wanted to be informed as positively as possible, allowing them to maintain hope, and in words that they could understand. They also wanted to receive any bad news at the same time as their parents. ConclusionChildren with cancer want to be fully informed about their disease, but they also wanted it to be relayed as positively as possible so that they could stay hopeful.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Pediatrik (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Pediatrics (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Annan medicin och hälsovetenskap -- Övrig annan medicin och hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Other Medical and Health Sciences -- Other Medical and Health Sciences not elsewhere specified (hsv//eng)
Nyckelord
- Communication
- End-of-life care
- Ethics
- Paediatric oncology
- Palliative care
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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