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Patients' experienc...
Patients' experiences of their everyday life 14 months after cytoreductive surgery and hyperthermic intraperitoneal chemotherapy : a qualitative follow-up study
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- Swenne, Christine Leo, 1958- (författare)
- Uppsala universitet,Vårdvetenskap,Uppsala universitet, Vårdvetenskap
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- Jangland, Eva (författare)
- Uppsala universitet,Sjuksköterskeutbildningar,Uppsala universitet, Sjuksköterskeutbildningar
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- Arakelian, Erebouni, 1973- (författare)
- Uppsala universitet,Sjuksköterskeutbildningar,Vårdvetenskap,Uppsala universitet, Sjuksköterskeutbildningar
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(creator_code:org_t)
- 2017-01-25
- 2017
- Engelska.
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Ingår i: Scandinavian Journal of Caring Sciences. - : Wiley. - 0283-9318 .- 1471-6712. ; 31:4, s. 904-913
- Relaterad länk:
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https://urn.kb.se/re...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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Abstract
Ämnesord
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- BACKGROUND: Patients with peritoneal carcinomatosis treated with cytoreductive surgery and hyperthermic intraperitoneal chemotherapy have a long recovery process.AIM: To describe patients' experiences of their everyday lives after cytoreductive surgery and hyperthermic intraperitoneal chemotherapy.METHOD: A follow-up study with a qualitative, descriptive design. Data were collected by individual, in-depth telephone interviews with 16 patients who had been treated for peritoneal carcinomatosis 14 months earlier at a university hospital in Sweden. The interviews were performed between May and June 2013 and analysed using systematic text condensation.RESULTS: Five themes were identified: (i) finding one's new self and relating to the new situation; (ii) the disease making its presence felt through bodily complications or mental fatigue; (iii) worrying about the return of the disease and passing it on to one's children; (iv) experiencing difficulties contacting various care facilities, not having a clear plan for ongoing rehabilitation; and (v) the need for online support through the Internet and counselling for both patients and their family members.CONCLUSIONS: Despite bodily complications, mental fatigue and worries about the return of the disease, the patient's everyday life was focused on finding his/her new self and adapting to the new circumstances. Difficulties in contacting care facilities and the lack of an ongoing medical and nursing rehabilitation plan called for a need for network support for patients and their families.CLINICAL RELEVANCE: After advanced surgery, patients require a continuous medical and nursing rehabilitation plan, and a platform of support such as meetings via social media and Internet which would connect former patients and their families with future patients and their family members. A contact nurse with specific expertise should design an individual rehabilitation plan and continuously identify the individual needs for long-term support.
Nyckelord
- cancer
- everyday life
- need for support
- patients’ experiences
- peritoneal carcinomatosis
- rehabilitation plan
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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