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Sökning: onr:"swepub:oai:DiVA.org:uu-535629" > Examining the invol...

Examining the involvement of guardians of children with acute lymphoblastic leukemia in Tanzania as public contributors to inform the design and conduct of the GuardiansCan project : A mixed‐methods study protocol

Chiwanga, Faraja (författare)
Uppsala universitet,Hälsovetenskap och e-hälsa,Muhimbili National Hospital, Research and Consultancy Unit, Dar es Salaam, United Republic of Tanzania
Woodford, Joanne (författare)
Uppsala universitet,Hälsovetenskap och e-hälsa
Masika, Golden (författare)
Uppsala universitet,Hälsovetenskap och e-hälsa,Department of Clinical Nursing, University of Dodoma, Dodoma, United Republic of Tanzania
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Richards, David A. (författare)
Uppsala universitet,Hälsovetenskap och e-hälsa,Department of Health and Caring Sciences, Western Norway University of Applied Sciences, Bergen, Norway
Savi, Victor (författare)
Uppsala universitet,Hälsovetenskap och e-hälsa
von Essen, Louise, 1957- (författare)
Uppsala universitet,Hälsovetenskap och e-hälsa
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 (creator_code:org_t)
John Wiley & Sons, 2024
2024
Engelska.
Ingår i: Cancer Medicine. - : John Wiley & Sons. - 2045-7634. ; 13:14
  • Tidskriftsartikel (refereegranskat)
Abstract Ämnesord
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  • BackgroundPublic contribution in research can lead to the design and conduct of more feasible and relevant research. However, our understanding of the acceptability and feasibility of public contribution and the evidence base regarding its impact in low- and middle-income countries (LMICs) is limited.MethodsIn this study protocol, we describe a mixed-method examination of public contribution activities in the GuardiansCan project. The GuardiansCan project aims to respond to Tanzanian guardians' poor adherence to children's follow-up care after treatment for acute lymphoblastic leukemia (ALL) with the help of Mobile Health technology. We aim to: (1) involve guardians of children treated for ALL as Guardians Advisory Board (GAB) members in the managing and undertaking, analysis and interpretation, and dissemination phases of the GuardiansCan project; and (2) examine the acceptability, feasibility, and perceived impact of GAB members' contribution to the GuardiansCan project from the perspective of the GAB members and public contribution coordinators. We will recruit six to eight guardians of children treated for ALL to the GAB. We will hold workshops where GAB members contribute to all project phases. Using impact logs, we will record GAB workshop activities and the perceived impact of these activities. We will interview GAB members and public contribution coordinators 6 months after establishing the GAB, and at the end of each study within the project, to examine the acceptability, feasibility, and perceived impact of public contribution activities.DiscussionWe expect GAB contribution to increase project quality and relevance, and inform how to best embed public contribution in research in LMICs.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Cancer och onkologi (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Cancer and Oncology (hsv//eng)

Nyckelord

childhood cancer
LMICs
mHealth
public contribution
Oncology
Onkologi

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