Under-reporting of major birth defects in Northwest Russia: a registry-based study

Kovalenko, A. A.Department of Community Medicine, UiT The Arctic University of Norway, Tromsø, Norway / International School of Public Health, Northern State Medical University, Arkhangelsk, Russia (författare)

The objective was to assess the prevalence of selected major birth defects, based on data from two medical registries in Murmansk County, and compare the observed rates with those available for Norway and Arkhangelsk County, Northwest Russia. It included all newborns (>= 22 completed weeks of gestation) registered in the Murmansk County Birth Registry (MCBR) and born between 1 January 2006 and 31 December 2009 (n=35,417). The infants were followed-up post-partum for 2 years through direct linkage to the Murmansk Regional Congenital Defects Registry (MRCDR). Birth defects identified and confirmed in both registries constituted the "cases" and corresponded to one or more of the 21 birth defect types reportable to health authorities in Moscow. The overall prevalence of major birth defects recorded in the MRCDR was 50/10,000 before linkage and 77/10,000 after linkage with the MCBR. Routine under-reporting to the MRCDR of 40% cases was evident. This study demonstrates that birth registry data improved case ascertainment and official prevalence assessments and reduced the potential of under-reporting by physicians. The direct linkage of the two registries revealed that hypospadias cases were the most prevalent among the major birth defects in Murmansk County.

MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences hsv//eng
MEDICIN OCH HÄLSOVETENSKAP Hälsovetenskap Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi hsv//swe
MEDICAL AND HEALTH SCIENCES Health Sciences Public Health, Global Health, Social Medicine and Epidemiology hsv//eng
Birth defect
birth registry
linkage
under-reporting
folic-acid
arkhangelskaja oblast
pregnancy outcomes
maternal age
oral clefts
prevention
surveillance
knowledge
quality
norway
Public
Environmental & Occupational Health
Birth defect
Individual and Society VIDSOC

Brenn, T.Department of Community Medicine, UiT The Arctic University of Norway, Tromsø, Norway (författare)
Odland, J. O.Department of Community Medicine, UiT The Arctic University of Norway, Tromsø, Norway (författare)
Nieboer, E.Department of Biochemistry and Biomedical Sciences, McMaster University, Hamilton, Canada (författare)
Krettek, Alexandra,1968Högskolan i Skövde,Gothenburg University,Göteborgs universitet,Institutionen för medicin, avdelningen för invärtesmedicin och klinisk nutrition,Institute of Medicine, Department of Internal Medicine and Clinical Nutrition,Institutionen för hälsa och lärande,Forskningsspecialiseringen Hälsa och Lärande,Department of Community Medicine, UiT The Arctic University of Norway, Tromsø, Norway / Department of Internal Medicine and Clinical Nutrition, Institute of Medicine, Sahlgrenska Academy at University of Gothenburg, Gothenburg, Sweden,Individ och samhälle, Individual and Society VIDSOC(Swepub:his)krea (författare)
Anda, E. E.Department of Community Medicine, UiT The Arctic University of Norway, Tromsø, Norway (författare)
Department of Community Medicine, UiT The Arctic University of Norway, Tromsø, Norway / International School of Public Health, Northern State Medical University, Arkhangelsk, RussiaDepartment of Community Medicine, UiT The Arctic University of Norway, Tromsø, Norway (creator_code:org_t)

Ingår i:International Journal of Circumpolar Health: Informa UK Limited761239-97362242-3982

Av författaren/redakt...: Kovalenko, A. A.; Brenn, T.; Odland, J. O.; Nieboer, E.; Krettek, Alexand ...; Anda, E. E.

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