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  • Acuña Mora, Mariela,1990Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Institute of Health and Care Sciences, University of Gothenburg, Sweden;KU Leuven Department of Public Health and Primary Care, Belgium (författare)

Patient empowerment and its correlates in young persons with congenital heart disease

  • Artikel/kapitelEngelska2019

Förlag, utgivningsår, omfång ...

  • 2019-03-05
  • Oxford University Press (OUP),2019

Nummerbeteckningar

  • LIBRIS-ID:oai:gup.ub.gu.se/278216
  • https://gup.ub.gu.se/publication/278216URI
  • https://doi.org/10.1177/1474515119835434DOI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-159330URI
  • http://kipublications.ki.se/Default.aspx?queryparsed=id:141024686URI
  • https://urn.kb.se/resolve?urn=urn:nbn:se:hb:diva-31568URI

Kompletterande språkuppgifter

  • Språk:engelska

Ingår i deldatabas

Klassifikation

  • Ämneskategori:ref swepub-contenttype
  • Ämneskategori:art swepub-publicationtype

Anmärkningar

  • Objective: The objective of this study was to measure the level of empowerment and identify its correlates in young persons with congenital heart disease. Study design: Patients aged 14–18 years with congenital heart disease, and under active follow-up in one of four paediatric cardiology centres in Sweden were invited to participate in a cross-sectional study. A total of 202 young persons returned the questionnaires. Patient empowerment was measured with the Gothenburg Young Persons Empowerment Scale that allows the calculation of total and subscale scores. Univariate and multivariate linear regression analyses were undertaken to analyse possible correlates, including: sex, age, health behaviours, knowledge of congenital heart disease, quality of life, patient-reported health, congenital heart disease complexity, transition readiness and illness perception. Results: The mean empowerment score was 54.6±10.6 (scale of 15–75). Univariate analyses showed that empowerment was associated with age, quality of life, transition readiness, illness perception, health behaviours and patient-reported health (perceived physical appearance, treatment anxiety, cognitive problems and communication issues). However, multivariable linear regression analyses identified that only transition readiness (β=0.28, P<0.001) and communication (β=0.36, P<0.001) had a positive association with patient empowerment. These variables were also significantly associated with the subscale scores of the empowerment scale of knowledge and understanding (P<0.001), shared decision-making (P<0.001) and enabling others (P<0.01). The overall models’ explained variance ranged from 8% to 37%. Conclusion: Patient empowerment was associated with transition readiness and fewer problems communicating. While it is not possible to establish the directionality of the associations, interventions looking to increase empowerment could benefit from using these variables (or measurements) for evaluation purposes.

Ämnesord och genrebeteckningar

Biuppslag (personer, institutioner, konferenser, titlar ...)

  • Sparud Lundin, Carina,1964Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Institute of Health and Care Sciences, University of Gothenburg, Sweden(Swepub:gu)xspaca (författare)
  • Burström, ÅsaKarolinska Institutet,Institution for Women’s and Children’s Health, Karolinska Institute, Sweden;Department of Paediatric Cardiology, Astrid Lindgren Children’s Hospital, Sweden (författare)
  • Hanseus, KatarinaDepartment of Pediatric Cardiology, Skåne University Hospital, Sweden (författare)
  • Rydberg, AnnikaUmeå universitet,Pediatrik,Department of Clinical Sciences, Pediatrics, Umeå University, Sweden(Swepub:umu)anry0014 (författare)
  • Moons, Philip,1968Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Institute of Health and Care Sciences, University of Gothenburg, Sweden;KU Leuven Department of Public Health and Primary Care, Belgium;Department of Paediatrics and Child Health, University of Cape Town, South Africa(Swepub:gu)xmooph (författare)
  • Bratt, Ewa-Lena,1970Gothenburg University,Göteborgs universitet,Institutionen för vårdvetenskap och hälsa,Institute of Health and Care Sciences,Institute of Health and Care Sciences, University of Gothenburg, Sweden;Department of Pediatric Cardiology, The Queen Silvia Children’s Hospital, Sweden(Swepub:gu)xbraew (författare)
  • Göteborgs universitetInstitutionen för vårdvetenskap och hälsa (creator_code:org_t)

Sammanhörande titlar

  • Ingår i:European Journal of Cardiovascular Nursing: Oxford University Press (OUP)18:5, s. 389-3981474-51511873-1953

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