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Sökning: onr:"swepub:oai:gup.ub.gu.se/283055" > Siblings' Lived Exp...

Siblings' Lived Experiences of Having a Brother or Sister With Home Mechanical Ventilation: A Phenomenological Hermeneutical Study

Israelsson-Skogsberg, Åsa, 1968- (författare)
Högskolan i Borås,Akademin för vård, arbetsliv och välfärd,Vårdande i högteknologiska miljöer
Markström, Agneta (författare)
Uppsala universitet,Lung- allergi- och sömnforskning
Laakso, Katja, 1968 (författare)
Gothenburg University,Göteborgs universitet,Institutionen för neurovetenskap och fysiologi,Institute of Neuroscience and Physiology,Univ Gothenburg, Inst Neurosci & Physiol, Speech Language Pathol Unit, Gothenburg, Sweden
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Heden, L. (författare)
Univ Boras, Fac Caring Sci Work Life & Social Welf, Nursing Educ & Postgrad Program, Boras, Sweden
Lindahl, B. (författare)
Univ Boras, Fac Caring Sci Work Life & Social Welf, Caring Sci, Boras, Sweden
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 (creator_code:org_t)
2019-07-29
2019
Engelska.
Ingår i: Journal of Family Nursing. - : SAGE Publications. - 1074-8407 .- 1552-549X.
  • Tidskriftsartikel (refereegranskat)
Abstract Ämnesord
Stäng  
  • Over the past few decades, there has been an increase in the number of children receiving home mechanical ventilation (HMV), and in many ways, families have taken responsibility for the required advanced homecare, which has placed considerable time demands on the family unit. Little is known about the life situation of the siblings of HMV-assisted children; their own voices and an insider perspective are missing. The aim of this study was to illuminate the everyday life experiences of siblings of HMV-assisted children. Data were obtained via interviews with 10 siblings with a median age of 9 years. Data were analyzed using a phenomenological hermeneutical method inspired by the French philosopher Ricoeur. Four themes emerged, all of which suggest that a complex and profound intertwined sibling bond develops that links the past, present, and future. The findings of this study provide valuable information from an insider's perspective about the meaning of having an HMV-assisted sibling. Family-focused care with particular attention and support for siblings of HMV-assisted children can encourage the development of internal strengths, self-confidence, and resilience.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES  -- Health Sciences -- Nursing (hsv//eng)

Nyckelord

child
family
home mechanical ventilation
sibling relationships
family nursing
long-term ventilation
quality-of-life
childhood chronic conditions
chronic illness
family management
care needs
children
perspectives
patterns
Family Studies
Nursing
child
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