Symptoms affecting children with malignancies during the last month of life: a nationwide follow-up

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Jalmsell, LiKarolinska Institutet (författare)

Symptoms affecting children with malignancies during the last month of life: a nationwide follow-up

Artikel/kapitelEngelska2006

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2006-04-01
American Academy of Pediatrics (AAP),2006

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LIBRIS-ID:oai:gup.ub.gu.se/45659
https://gup.ub.gu.se/publication/45659URI
https://doi.org/10.1542/peds.2005-1479DOI
https://urn.kb.se/resolve?urn=urn:nbn:se:esh:diva-5099URI
http://kipublications.ki.se/Default.aspx?queryparsed=id:1949685URI

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Språk:engelska

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Ämneskategori:art swepub-publicationtype

Anmärkningar

OBJECTIVE: In a population-based nationwide survey, we aimed to study symptoms in children with malignancies during the last month of their lives. Understanding which symptoms affect children in the terminal phase of disease is crucial to improve palliative care. METHODS: We attempted to contact all parents in Sweden who had lost a child to cancer during a 6-year period. The parents were asked, through an anonymous postal questionnaire, about symptoms that affected the child's sense of well-being during the last month of life. RESULTS: Information was supplied by 449 (80%) of 561 eligible parents. The symptoms most frequently reported with high or moderate impact on the child's well-being were: physical fatigue (86%), reduced mobility (76%), pain (73%), and decreased appetite (71%). Irrespective of the specific malignancy, physical fatigue was the most frequently reported symptom, and pain was among the 3 most frequently reported. Children who died at 9 to 15 years of age were reported to be moderately or severely affected, by a number of symptoms, significantly more often than other children. The gender of the reporting parent had no significant bearing on any of the symptoms reported. CONCLUSIONS: The most frequently reported symptoms in children with malignancies to be aware of and possibly address during the terminal phase are physical fatigue, reduced mobility, pain, and decreased appetite. Children aged 9 to 15 years are reported to be moderately or severely affected by more symptoms than children in other age groups. Mothers and fathers report a similar prevalence of symptoms.

Ämnesord och genrebeteckningar

MEDICIN OCH HÄLSOVETENSKAP Klinisk medicin Cancer och onkologi hsv//swe
MEDICAL AND HEALTH SCIENCES Clinical Medicine Cancer and Oncology hsv//eng
MEDICIN OCH HÄLSOVETENSKAP Annan medicin och hälsovetenskap Övrig annan medicin och hälsovetenskap hsv//swe
MEDICAL AND HEALTH SCIENCES Other Medical and Health Sciences Other Medical and Health Sciences not elsewhere specified hsv//eng
Adolescent
Adult
Appetite
Child
Child
Preschool
Fatigue/etiology
Female
Humans
Infant
Locomotion
Male
Neoplasms/*complications
Pain/etiology
*Quality of Life
Sweden
*Terminal Care
Cancer

Biuppslag (personer, institutioner, konferenser, titlar ...)

Kreicbergs, UlrikaKarolinska Institutet(Swepub:esh)ulrkre (författare)
Onelov, E.Karolinska Institutet (författare)
Steineck, Gunnar,1952Karolinska Institutet,Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper,Institute of Clinical Sciences(Swepub:gu)xstegu (författare)
Henter, J. I.Karolinska Institutet (författare)
Karolinska InstitutetInstitutionen för kliniska vetenskaper (creator_code:org_t)

Sammanhörande titlar

Ingår i:Pediatrics: American Academy of Pediatrics (AAP)117:4, s. 1314-201098-42750031-4005

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Av författaren/redakt...: Jalmsell, Li; Kreicbergs, Ulri ...; Onelov, E.; Steineck, Gunnar ...; Henter, J. I.

Om ämnet

MEDICIN OCH HÄLSOVETENSKAP: MEDICIN OCH HÄLS ...; och Klinisk medicin; och Cancer och onkol ...

MEDICIN OCH HÄLSOVETENSKAP: MEDICIN OCH HÄLS ...; och Annan medicin oc ...; och Övrig annan medi ...

Artiklar i publikationen: Pediatrics

Av lärosätet: Göteborgs universitet; Marie Cederschiöld högskola; Karolinska Institutet

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