The Swedish version of Hemophilia Activity List, HAL

• The patient´s perspective has gained interest in assessing outcome of treatment. A Dutch questionnaire, Hemophilia Activity List (HAL) has been developed according to WHO´s International Classification of Functioning, Disability and Health. It is a self report measure of function and validated. Aim of this study: To translate HAL to Swedish and test its validity. Method: The HAL, both Dutch and English, was translated according to Swedish using the “forward-backward translation” method and merged into a final Swedish version. Validation was performed against the Swedish version of the questionnaires Arthritis Impact Measurement and Impact on Participation and Autonomy. Patients with haemophilia A and B from the 3 Swedish centres (225 persons with severe or moderate form) were invited to participate in the study. Spearman’s correlation test was used for validation and internal consistency of the HAL was calculated with Cronbach´s alfa. Results: Eighty-four patients (18-80 years old) filled out the questionnaires. The internal consistencies of the Swedish version of HAL were high, Cronbach alfa 0.98-0.71. The best domain was the function of the legs and the lowest was transportation. The correlation was excellent between the HAL sum score and AIMS phys (r = -0.84, p= 0.01), IPA autonomy indoors (r = -0.83, p=0.01) and autonomy outdoors (r = -0.89, p=0.01). Conclusion: The Swedish version of HAL have both internal consistency and convergent validity and can be used as a complement to other clinical tests to get the patient’s self-perceived ability to perform activities of daily life.

Ämnesord

MEDICIN OCH HÄLSOVETENSKAP  -- Hälsovetenskap (hsv//swe)

MEDICAL AND HEALTH SCIENCES  -- Health Sciences (hsv//eng)

MEDICIN OCH HÄLSOVETENSKAP  -- Klinisk medicin -- Hematologi (hsv//swe)

MEDICAL AND HEALTH SCIENCES  -- Clinical Medicine -- Hematology (hsv//eng)

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