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Parents and childre...
Parents and children's perceptions of distress related to oral mucositis during haematopoietic stem cell transplantation
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- Kamsvåg-Magnusson, Tove, 1986- (författare)
- Uppsala universitet,Pediatrik,Barnonkologisk forskning/Ljungman,Institutionen för kvinnors och barns hälsa,Pediatrik, barnonkologi
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- Thorsell-Cederberg, Jenny, 1980- (författare)
- Uppsala universitet,Pediatrik,Barnonkologisk forskning/Ljungman
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- Svanberg, Anncarin (författare)
- Uppsala universitet,Hematologi
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- von Essen, Louise (författare)
- Uppsala universitet,Psykosocial onkologi och stödjande vård
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- Arvidson, Johan, 1953- (författare)
- Uppsala universitet,Institutionen för kvinnors och barns hälsa,Barnonkologisk forskning/Ljungman
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- Mellgren, Karin, 1962 (författare)
- Gothenburg University,Göteborgs universitet,Institutionen för kliniska vetenskaper, Avdelningen för pediatrik,Institute of Clinical Sciences, Department of Pediatrics,Univ Gothenburg, Dept Pediat, Inst Clin Sci, Gothenburg, Sweden,Department of Pediatrics, Institute for Clinical Sciences, University of Gothenburg, Gothenburg, Sweden
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- Toporski, Jacek (författare)
- Lund University,Lunds universitet,Pediatrik, Lund,Sektion V,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Paediatrics (Lund),Section V,Department of Clinical Sciences, Lund,Faculty of Medicine,Lund Univ, Dept Clin Sci Pediat Oncol & Hematol, Lund, Sweden,Department of Clinical Sciences, Pediatric Oncology and Hematology, University of Lund, Lund, Sweden
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- Ljungman, Gustaf, 1958- (författare)
- Uppsala universitet,Institutionen för kvinnors och barns hälsa,Barnonkologisk forskning/Ljungman
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Svanberg, Ac (författare)
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(creator_code:org_t)
- 2014-04-03
- 2014
- Engelska.
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Ingår i: Acta Pædiatrica. - : Wiley. - 1651-2227 .- 0803-5253. ; 103:6, s. 630-636
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Abstract
Ämnesord
Stäng
- AimOral mucositis is a common and debilitating side effect of haematopoietic stem cell transplantation. Our study investigated parents' and children's experiences of oral mucositis treatment and whether the parents' perceptions accurately reflected the children's views. MethodsWe analysed 71 questionnaires completed by the parents of children who had undergone haematopoietic stem cell transplantation, together with 38 questionnaires completed by children who were 7 years of age or over. ResultsThe parent proxy and child self-reports showed good to excellent agreement. For example, 86% of the parents and 83% of the children reported oral pain and 44% of the parents and 47% of the children reported difficulty swallowing often or very often. The majority of the parents (61%) were satisfied with the pain treatment that had been given to their child. However, the treatment provided for oral mucositis was not altogether consistent. ConclusionOral mucositis affected the majority of the children undergoing haematopoietic stem cell transplantation, causing considerable pain and discomfort. The parent proxy reports proved to be reliable and are an important supplement to child self-reports on symptoms related to oral mucositis. But there is a clear need to establish more evidence-based care for children suffering from oral mucositis.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Pediatrik (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Pediatrics (hsv//eng)
Nyckelord
- Haematopoietic stem cell transplantation
- Oral mucositis
- Pain
- Parent
- proxy
- Questionnaire
- Haematopoietic stem cell transplantation; Oral mucositis; Pain; Parent proxy; Questionnaire
- Haematopoietic stem cell transplantation; Oral mucositis; Pain; Parent proxy; Questionnaire
- Oncology
- Pediatrik
Publikations- och innehållstyp
- art (ämneskategori)
- ref (ämneskategori)
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