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Parents' report on ...
Parents' report on the health care management of spina bifida in early childhood
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- Ong, Katherine S (författare)
- Centers For Disease Control And Prevention
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- Reeder, Matthew (författare)
- University of Utah
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- Alriksson-Schmidt, Ann I (författare)
- Lund University,Lunds universitet,Ortopedi, Lund,Sektion III,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,CPUP - barnortopedisk forskningsgrupp,Forskargrupper vid Lunds universitet,Att leva med funktionsnedsättning: Forskning ur ett folkhälsoperspektiv,Orthopaedics (Lund),Section III,Department of Clinical Sciences, Lund,Faculty of Medicine,CPUP - Children's Orthopedics Group,Lund University Research Groups,Living with a Disability: Research from a Public Health Perspective,Skåne University Hospital
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visa fler...
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- Rice, Sydney (författare)
- University of Arizona
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- Feldkamp, Marcia L (författare)
- University of Utah
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visa färre...
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(creator_code:org_t)
- 2022
- 2022
- Engelska.
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Ingår i: Journal of Pediatric Rehabilitation Medicine. - 1874-5393. ; 15:4, s. 621-631
- Relaterad länk:
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http://dx.doi.org/10...
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visa fler...
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https://lup.lub.lu.s...
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https://doi.org/10.3...
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Abstract
Ämnesord
Stäng
- PURPOSE: This study aimed to describe health care use by type of health providers and care settings visited by children with spina bifida (SB) and to compare this use between children with and without a shunt.METHODS: Health care use data were extracted from a larger study on the health and functioning of children with SB aged 3-6 years. The present study focused on the medical information subsection of a parent-reported survey related to SB care, general care, specialty care (e.g., neurosurgery), emergency care, and complications related to SB and shunts.RESULTS: Parents of 101 children with SB participated. Most of the children were male with myelomeningocele and had a shunt. They visited a health care provider for SB care an average of 7.4 times and a specialist an average of 11.9 times in the previous 12 months. Most visited a multidisciplinary clinic for SB-related care and a private physician's office for general care. Children with a shunt had more SB-related medical visits, more visits to a specialist, and a greater number of different types of specialists than those without it. Frequency of emergency room visits did not differ between the two groups. Health providers informed parents about headaches, vomiting, and fever as signs of complications, and some parents did report shunt-related complications.CONCLUSION: SB is a complex medical condition requiring that children receive medical care from various medical specialists, especially for children with a shunt. Findings on health care use suggest high levels of monitoring and care coordination that parents navigate to care for their child.
Ämnesord
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Health Care Service and Management, Health Policy and Services and Health Economy (hsv//eng)
Nyckelord
- Child
- Humans
- Male
- Child, Preschool
- Female
- Spinal Dysraphism/therapy
- Meningomyelocele/complications
- Parents
- Surveys and Questionnaires
- Delivery of Health Care
Publikations- och innehållstyp
- art (ämneskategori)
- ref (ämneskategori)
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