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Patient preference ...
Patient preference assessment reveals disease aspects not covered by recommended outcomes in polymyositis and dermatomyositis
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- Alemo Munters, L (författare)
- Karolinska Institutet
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- van Vollenhoven, RF (författare)
- Karolinska Institutet
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- Alexanderson, H (författare)
- Karolinska Institutet
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(creator_code:org_t)
- Hindawi Limited, 2011
- 2011
- Engelska.
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Ingår i: ISRN rheumatology. - : Hindawi Limited. - 2090-5475 .- 2090-5467. ; 2011, s. 463124-
- Relaterad länk:
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https://doi.org/10.5...
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http://kipublication...
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https://doi.org/10.5...
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Abstract
Ämnesord
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- Objectives. Polymyositis (PM) and dermatomyositis (DM) are characterized by impaired muscle function with a majority of patients developing sustained disability. The aim of this study was to evaluate the patient’s individual priorities (patient preference) of disabilities most important to improve in PM/DM using the MacMaster Toronto Arthritis Patient Preference Disability Questionnaire (MACTAR), to correlate the MACTAR to myositis outcomes and to evaluate its test-retest reliability. Methods. Twenty-eight patients with PM/DM performed recommended outcomes as well as the MACTAR, which was performed twice with one week apart. Results. Sexual activity, walking, biking, social activities, and sleep constituted the predominating disabilities. Seventy-two and 33% of the identified disabilities were not covered by items of the Health Assessment Questionnaire and the Myositis Activities Profile. Correlations between the MACTAR and health-related quality of life measures were = −0.67–0.73, correlations with measures of activities of daily living and participation in society were = 0.51–0.60 with lower correlations for other outcomes. Intraclass correlation (ICC) and weighted Kappa () coefficients were 0.83 and 0.68, respectively, for test-retest reliability of the MACTAR. Conclusions. The MACTAR interview had promising measurement properties and identified patient preference disabilities in PM/DM that were not covered by recommended outcomes.
Publikations- och innehållstyp
- ref (ämneskategori)
- art (ämneskategori)
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