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- Agren Bolmsjö, I, et al.
(author)
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From cure to palliation: agreement, timing, and decision making within the staff
- 2007
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In: The American journal of hospice & palliative care. - : SAGE Publications. - 1049-9091 .- 1938-2715. ; 24:5, s. 366-70
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Journal article (peer-reviewed)abstract
- Important issues in the transition From curative treatment to palliative care are agreement, timing, and decision making. A survey oF 309 nurses and 415 physicians in Sweden showed that 61% oF the nurses and 83% oF the physicians thought agreement was current practice. None said that the decisions were made too early, but 19% oF the nurses and 14% oF the physicians thought that they oFten were made too late. Very Few respondents stated that such decisions are changed, 0% and 1%, respectively. More than halF oF the inFormants made detailed comments on such transitions indicating that awareness and Flexibility are desirable to make well-inFormed decisions. Three themes that emerged From the analysis concerning the decision to stop curative treatment and Focus on palliative care were that the staFF members should (iF possible) make such decisions in agreement and should sometimes make the decisions earlier and that well-based reasons are required to make changes.
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| 2. |
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| 3. |
- Benkel, Inger, et al.
(author)
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Managing Grief and Relationship Roles Influence Which Forms of Social Support the Bereaved Needs
- 2009
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In: American Journal of Hospice and Palliative Medicine. - : SAGE Publications. - 1049-9091 .- 1938-2715. ; 26:4, s. 241-245
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Journal article (peer-reviewed)abstract
- Social support is important during the bereavement period and influences which form of social support the grieving person needs. This study shows 2 different strategies for coping with grief which also revealed which form of social support the grieving persons needed depend on what they found difficult to manage. The coping strategies are called grief management and involve different strategies and the roles in the relationship with the diseased. Systematically monitoring the bereaved makes it possible to understand the strategies they use in the grieving process and to identify when these strategies are insufficient so professional support can be offered.
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| 4. |
- Cameron, Fiona, et al.
(author)
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Homecoming-Dignity Through Movement at the End of Life : A Qualitative Interview Study With Healthcare Professionals
- 2022
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In: The American Journal of Hospice and Palliative Medicine. - : SAGE Publications. - 1049-9091 .- 1938-2715. ; 39:1, s. 39-44
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Journal article (peer-reviewed)abstract
- Aim: To describe healthcare professionals' and volunteers' experiences of a pathway for movement on a hospice ward.Method: This was a qualitative study with an inductive approach. Data were collected in a hospice setting through 4 focus group interviews with healthcare professionals and volunteers (n = 12). The focus group participants varied in age, profession, and length of experience in palliative care. The interviews were audio recorded, transcribed and analyzed with qualitative content analysis.Results: Dignity through movement at the end of life was the main theme, complemented by 4 sub-themes. Two descriptive sub-themes: "A practical tool to facilitate physical activity" and "Companionship and goals give meaning to the day," and 2 interpretative sub-themes: "Regaining control and having a choice" and "Feeling normal and alive" based on participants' views of patient experiences.Significance of results: Indications are that the pathway for movement addresses a wide range of experiences related to different aspects of being human in a difficult situation. Experiences of movement and physical activity can promote wellbeing, dignity, and a sense of feeling "at home" for patients within hospice care. The pathway for movement is simple to set up, offers access to appropriate physical activity and seems to benefit patients both in the early and later phases of palliative care.
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| 5. |
- Grimby, Agneta, et al.
(author)
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Walking habits in elderly widows.
- 2008
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In: The American journal of hospice & palliative care. - : SAGE Publications. - 1049-9091 .- 1938-2715. ; 25:2, s. 81-7
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Journal article (peer-reviewed)abstract
- Walking habits were studied in 3 groups of elderly widows. The average walking time per week was calculated from interviews or questionnaires. There was in a small studied group a tendency for walking time to be lower at 3 and 12 months after loss than at 4 or 5 years. An increased odds ratio was demonstrated in larger groups of widows for walking less than 120 minutes per week in those who "did not feel healthy," or who had "musculoskeletal health problems," or "cardiovascular health problems." Widows from a population-based study also showed increased odds ratio for not walking as long with "lack of friends" and "not being active in associations." This was not found in married women from the population study. Our results indicate that newly bereaved women may reduce their physical activity, and that the change in exercise habits may be associated with reduced perception of being healthy and a decreased social network.
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| 6. |
- Gunhardsson, Inger, et al.
(author)
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Documentation in palliative care : Nursing documentation in a palliative care unit - A pilot study
- 2008
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In: AMERICAN JOURNAL OF HOSPICE & PALLIATIVE MEDICINE. - : SAGE Publications. - 1049-9091 .- 1938-2715. ; 25:1, s. 45-51
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Journal article (peer-reviewed)abstract
- Palliative care seeks to enhance quality of life in the face of death by addressing the physical, psychological, social, and spiritual needs of patients with advanced disease. The purpose of this paper is to explore whether palliative patients needs, nursing actions, and evaluation can be identified in the nursing documentation. Data consisted of reviews of patients' case records in a palliative care unit. Data were analyzed using content analysis and counting frequency of keywords used from the Well-being Integrity Prevention and Safety (VIPS) model, followed by an inductive analysis of the case record documentation aiming to identify palliative care components. The result shows that the documentation revealed physical care, especially pain, more frequently than other needs. Nursing documentation focuses on identification more than on nursing actions and evaluation.
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| 7. |
- Han, Hedong, et al.
(author)
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Utilization of Palliative Care for Patients Undergoing Hematopoietic Stem Cell Transplantation During Hospitalization : A Population-Based National Study
- 2019
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In: The American Journal of Hospice and Palliative Medicine. - : Sage Publications. - 1049-9091 .- 1938-2715. ; 36:10, s. 900-906
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Journal article (peer-reviewed)abstract
- OBJECTIVE: Patients undergoing hematopoietic stem cell transplantation (HSCT) have substantial physical and psychological symptoms. This study aimed to investigate the utilization of palliative care (PC) in patients undergoing HSCT during hospitalization.METHODS: The 2008-2014 National Inpatient Sample was queried for eligible participants. Demographics, hospital characteristics, comorbidities, posttransplantation complications, and inpatient procedures were compared between patients with and without PC. Multivariate logistic regression was performed to identify predictors associated with PC use.RESULTS: Among 21 458 patients undergoing HSCT during hospitalization, 278 (1.30%) received PC. The rate of PC use has significantly increased from 0.64% in 2008 to 1.95% in 2014. Patients receiving PC had more co-comorbidities, posttransplantation complications, inpatient procedures, and were more likely to carry a diagnosis of leukemia. In allogeneic HSCT, large bed size (odds ratio [OR] =2.80; 95% confidence interval [CI]: 1.17-6.70), stem cell source from cord blood (OR = 1.93; 95% CI: 1.15-3.24), and graft-versus-host disease (OR = 2.04; 95% CI: 1.36-3.06) were predictors of PC use. In a subset analysis of 783 patients who died during hospitalization, 166 (21.20%) received PC. Among the decedents, Hispanic race had lower odds of PC use (OR = 0.20; 95% CI: 0.05-0.82) in allogeneic HSCT and women had higher odds of PC (OR = 2.70; 95% CI: 1.35-5.41) in autologous HSCT.CONCLUSIONS: The rate of PC use has significantly increased among patients undergoing HSCT during hospitalization from 2008 to 2014 but still remains very low. Further investigation is warranted to verify and better understand the barriers toward PC use for HSCT patients.
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| 8. |
- Henoch, Ingela, 1956, et al.
(author)
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The Shared Experience Help the Bereavement to Flow: A Family Support Group Evaluation.
- 2016
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In: The American journal of hospice & palliative care. - : SAGE Publications. - 1938-2715 .- 1049-9091. ; 33:10, s. 959-965
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Journal article (peer-reviewed)abstract
- When a family member dies, a bereavement period is taking place for all family members. The death of a parent during childhood is a highly stressful event. This study evaluates families' experiences of family support groups when a parent has died. Families were participate in groups for children, teenagers, young adults, and parents in seven sessions. The same topic which was discussed in all groups. The support groups were evaluated qualitatively and quantitatively. The participants were satisfied with the groups and experienced that the shared experience facilitated bereavement to proceed. The results indicate that families' experiences is being more open about feelings in their own family. A support group can be one possibility to help the whole family in the bereavement.
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| 9. |
- Håkanson, Cecilia, 1968-, et al.
(author)
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Connectedness at the End of Life Among People Admitted to Inpatient Palliative Care.
- 2016
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In: The American journal of hospice & palliative care. - : SAGE Publications. - 1938-2715 .- 1049-9091. ; 33:1, s. 47-54
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Journal article (peer-reviewed)abstract
- The significance of connectedness for well-being is well known. At the end of life however, illness and body decline may challenge a person's ability of staying and feeling connected. The aim of this phenomenological study was to interpret meanings of connectedness, through narrative interviews with persons admitted to inpatient palliative care in Sweden. Results involving connectedness through the body, connectedness to, and uncanniness toward other patients, and connectedness to significant others and society are discussed. The study underscores the importance of connectedness until death. However, in inpatient palliative care this is complex. Patients can cocreate or challenge each other's sense of connectedness through the symbolism of illness and diseased bodies. Moreover, the capability of connectedness is influenced by illness, spatiality, atmosphere, activities, and resources in the care place.
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| 10. |
- Johansson, Åsa K, 1971, et al.
(author)
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Anticipatory grief among close relatives of persons with dementia in comparison with close relatives of patients with cancer
- 2013
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In: American Journal of Hospice and Palliative Medicine. - : SAGE Publications. - 1049-9091 .- 1938-2715. ; 30:1, s. 29-34
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Journal article (peer-reviewed)abstract
- Close relatives of persons with dementia self-reported reactions on the Anticipatory Grief Scale (AGS), were observed by nurses (Study I), and compared with relatives of cancer patients in a study using the same methodology (Study II). Study I showed an overall stressful situation including feelings of missing and longing, inability to accept the terminal fact, preoccupation with the ill, tearfulness, sleeping problems, anger, loneliness, and a need to talk. The ability to cope was, however, reported high. Selfassessments and nurses’ observations did not always converge, e.g. for the acceptance of the illness. The reactions of the relatives in the dementia and the cancer groups showed more similarities than dissimilarities. However, the higher number of responding spouses in the cancer group may have influenced the outcome.
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