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- Bellander, Theres, 1977-, et al.
(author)
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Becoming the expert constructing health knowledge in epistemic communities online
- 2020
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In: Information, Communication and Society. - : Routledge. - 1369-118X .- 1468-4462. ; 23:4, s. 507-522
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Journal article (peer-reviewed)abstract
- From a discourse analytic framework, the article analyses health blogs and patient’s forum discussions in which parents to children with congenital heart defects recontextualize medical professional knowledge and share their own experiences. The study show how the two types of online media may serve as a means for parents to attain expert status in their own case by sharing lay knowledge expressed as an amalgamation of the two key perspectives – professional and experienced – as an indivisible unit. Monological discourses, such as narrating, in blogs and more direct and immediate responses in forum discussions are noted as examples of differences in how medical facts are explained and negotiated, how advice is provided and how patient expertise is created. The study also show how blogs and especially forum discussions are used to problematize the validity of actions and opinions of medical staff. The role of developing patient expertise in epistemic communities online may therefore come with a risk of spreading misrepresentation of medical cases.
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- Bellander, Theres, 1977-
(author)
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Bloggens roll för hälsolitteracitet och kunskapsbyggande i informationssamhället : En genreanalys av strukturella och språkliga mönster i bloggar om barn med hjärtfelsdiagnos
- 2016
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In: RASK. - 0909-8976. ; :44, s. 129-159
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Journal article (peer-reviewed)abstract
- The Blog's Role for Health Literacy and Knowledge Formation in the Information Society – A Genre Analysis of Structural and Linguistic Patterns in Blogs on Children with Congenital Heart defects The article explores how genres used on blogs can express certain kinds of knowledge by analysing how parents to children with congenital heart defects use patient blogs. Genre analysis (Martin & Rose 2008) is performed in order to investigate the blog format. The survey shows that the blog content may be regarded as a narrative macro genre that brings a certain framework for the blog as a resource for knowledge formation. The blog format also provides bloggers a well-used opportunity to, within the blog, make their own choices of genre structures and to make shifts between genres. This enables shifts between experience based content and general medical facts, which may work as a resource to gain health literacy.
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- Bellander, Theres, 1977-, et al.
(author)
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Building health knowledge online : Parents’ online information searching on congenital heart defects
- 2017
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In: Literacy and Numeracy Studies. - : UTS ePress. - 1441-0559 .- 1839-2903. ; 25:1, s. 4-19
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Journal article (peer-reviewed)abstract
- The study examines online searching as a digital health literacy practice and focuses on parents of children with congenital heart defects. Over the period of four years, we have conducted interviews with couples at different stages of pregnancy or parenthood and have encouraged them to reflect on their literacy practices when receiving a heart defect diagnosis, during the remaining time of their pregnancy and when living with a child with a heart defect. We have also read and analysed health blogs written by parents and focused on extracts where literacy events are described. Searching for information and support online is one of the most frequent practices amongst the participants in the study. The aim of this paper is therefore to highlight the complexity of looking for information online in order to take health decisions and provide care to a child with congenital illness. Based on what parents say they do when searching online, we focus on three main paths to knowledge: looking for medical facts, looking for other parents’ experiences and looking for practical information. We discuss digital health literacy practices as complex activities that often involve parents in the diagnosis and in the child’s medical care to such an extent that parents build up knowledge and become experts, not only in finding information and support but in talking and writing about their child’s illness. We also problematise the notion of trustworthy health information and show how facts and opinions often go hand in hand in platforms where health issues are discussed. Finally, we show some of the affordances and restrictions inherent in using the internet as a source for meaning making and learning about children’s health. The results reinforce our understanding of the socially framed nature of health literacy and make us focus on the digital as an additional important aspect in the practice of health literacy.
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- Bellander, Theres, 1977-
(author)
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Fleeing as an Activity of Waiting : Visual Representations of the World’s Refugee Situation on Médecins Sans Frontière Sweden’s Website
- 2022
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In: The Journal of Refugee Studies. - : Oxford University Press (OUP). - 0951-6328 .- 1471-6925. ; 35:1, s. 310-330
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Journal article (peer-reviewed)abstract
- This article uses social-semiotic methods to explore how the world’s refugee situation is constructed discursively in photographs on the Médecins Sans Frontière (MSF) Sweden website in order to discern what discourses humanitarian aid communication draws upon to frame the world’s refugee situation as being worthy of support. The main conclusion of the study is that the refugee situation is portrayed as an activity of waiting, where forcibly displaced people are restrained from continuing on with their lives. By highlighting personal experiences, the phenomenon of flight is humanised: Refugees are constructed in need of support, and MSF is constructed as actionable and trustworthy. Focus is then drawn to the organisation’s medical knowledge, and potential donors, i.e. the website’s visitors, are invited to become a part of and to engage in the life of the refugees and the work performed by the organisation. Combining different styles of appealing in the imagery draws on discourses of morality, solidarity, ethical and gender equality.
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- Bellander, Theres, 1977-
(author)
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Gammalt möter nytt : En analys av ålderspensionärers digitala skriftpraktiker
- 2014
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In: Vernacular Literacies. - Umeå : Umeå University, Royal Skyttean Society. - 9789188466860 ; , s. 59-75
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Book chapter (peer-reviewed)abstract
- This paper presents a study of four elderly people’s use of computers in vernacular literacy practices (Heath 1999:200; Barton 2007:35–37). Two men and two women from different social and professional backgrounds have participated in the study and the data analyzed consist of participant logs and recorded interviews. The aim is to identify and describe what the participants are doing with their computers. Questions discussed are how participation in digital literacy practices may be connected to age and social situation and what importance experiences from earlier non-digital literacy practices have for elderly people’s use of computers today. Results are, inter alia, that the participants use digital and non-digital tools simultaneously in their vernacular literacy practices, that long-time practices have taken new forms due to digitalization and that new practices have emerged due to digitalization. The study shows examples of how literacy is in constant change and how modern technology add new possibilities to social practices (Barton 2007:50). Users earlier experiences together with their new needs and wishes, due to technology, are constantly reshaping literacy practices.
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- Bellander, Theres, 1977-
(author)
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Kategorisering och konstruktion av kön i niondeklassares texter
- 2015. - 1
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In: Skrivande i skolan. - Malmö : Gleerups Utbildning AB. - 9789140688484 ; , s. 117-132
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Book chapter (other academic/artistic)abstract
- Artikeln visar hur elever i årskurs 9 skriver fram kategorisering och konstruktion av kön i skolan. I texterna framträder särskilt tre kategorier vars röster genomsyrar beskrivningarna, dvs. lärarens, den allmänna åsiktens och elevens. I artikeln åskådliggörs hur eleverna reagerar inför vedertagna mönster och visar upp ett kritiskt reflekterande förhållningssätt när lärare sorterar och kategoriserar efter kön. Samtidigt är de inte alltid klarsynta inför sina egna stereotyper och väver in dem i sina berättelser.Som metod används Membership Categorization Analysis, MCA (Sacks 1974, senare utvecklad av bl.a. Baker 1997 och Hester & Eglin 1997) som är ett redskap för analys av kategorisering i samtal. Artikeln är skriven enligt ett inom språkvetenskapen vedertaget mönster med en viss struktur, referenser inom parentes i brödtexten och en kompletterande referenslista i slutet av artikeln.
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