| 1. |
- Amirahmadi, Ali, 1994-, et al.
(author)
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A Masked Language Model for Multi-Source EHR Trajectories Contextual Representation Learning
- 2023
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In: Caring is Sharing - Exploiting the Value in Data for Health and Innovation - Proceedings of MIE 2023. - Amsterdam : IOS Press. - 1879-8365 .- 0926-9630. - 9781643683881 ; 302, s. 609-610, s. 609-610
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Conference paper (peer-reviewed)abstract
- Using electronic health records data and machine learning to guide future decisions needs to address challenges, including 1) long/short-term dependencies and 2) interactions between diseases and interventions. Bidirectional transformers have effectively addressed the first challenge. Here we tackled the latter challenge by masking one source (e.g., ICD10 codes) and training the transformer to predict it using other sources (e.g., ATC codes).
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| 2. |
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| 3. |
- Blusi, Madeleine, 1968-
(author)
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E-health and information- and communication technology (ICT) as support systems for older family caregivers in rural areas
- 2014
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Doctoral thesis (other academic/artistic)abstract
- The overall objective of the thesis was to investigate how older family caregivers in rural areas experienced participation in an e-health based caregiver support system. Participants were 95 caregivers allocated to intervention group (n=63) and control group (n=32). The thesis had a mixed method design and is based on four original articles (I-IV). Data was collected through web-camera interviews (I-III), telephone interviews (II,IV) and questionnaires (II,IV) after 1.5 years of using e-health support. Quantitative data was analyzed using comparative statistics, multiple linear regression and logistic regression. Qualitative data was analyzed with content analysis. Article I showed that the caregivers, despite lacking experience from using computers, were able to adopt the new technology, with help from support nurses and family. Caregivers felt e-health helped them to regain social inclusion. Article II had a comparative design, comparing e-health support with conventional caregiver support. Caregivers using e-health were more satisfied with their support and found it to be available, flexible and helping them enhance caregiver competence. Control group caregivers were less satisfied with support and experienced unmet needs. Article III showed that e-health can reduce caregivers’ feelings of isolation. Two themes were created, Expanding the concept of place and Developing networks. Article IV revealed that caregivers used e-health frequently, experienced benefits from using it and had become more independent. Support nurses were disappointed about the decrease in contact with caregivers, and also acknowledged a need for developing the professional nursing role while working with e-health. Conclusions drawn from the findings were that participants experienced benefits from e-health support and it helped them become more independent. Swedish municipalities are obliged to provide caregiver support, the findings from the study are valid to conclude that e-health support are as good as, or even more effective, than conventional support for older family caregivers in rural areas.
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| 4. |
- Blusi, Madeleine, et al.
(author)
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Exploring the influence of Internet-based caregiver support on experiences of isolation for older spouse caregivers in rural areas : a qualitative interview study
- 2015
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In: International Journal of Older People Nursing. - : Wiley. - 1748-3735 .- 1748-3743. ; 10:3, s. 211-220
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Journal article (peer-reviewed)abstract
- BACKGROUND: Many older spouse caregivers are tied to the home by their caring duties and feel isolated. The values of supporting older caregivers are well known. In rural areas with long distances and decline in essential services, attending caregiver support groups can be difficult. Using Internet-based services can provide an opportunity for rural caregivers to participate in caregiver support, regardless of geographical distances and without the need for physical presence.AIMS AND OBJECTIVES: This study aimed to explore how Internet-based caregiver support may influence the experience of isolation among older spouse caregivers in rural areas.DESIGN: An intervention study where 63 older rural caregivers received an Internet-based caregiver support service.METHOD: A qualitative interview study based on 31 interviews with open-ended questions, analysed using latent content analysis.FINDINGS: Two themes represent the findings from the study: Expanding the concept of place and Developing networks. Even though participants still spent their days in the house, they experienced that daily life was being spent in a variety of places, both physically, virtually and emotionally. The Internet-based support service provided them with a tool to reconnect with family and develop new friends.CONCLUSIONS: Internet-based caregiver support may reduce the experience of isolation for spouse caregivers in rural areas. Nurses played a crucial part in the development, by encouraging, educating and inspiring caregivers and supporting their independence.IMPLICATIONS FOR PRACTICE: Internet-based services ought to be an option for caregiver support in rural areas as it may reduce feelings of isolation for older spouse caregivers.
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| 5. |
- Blusi, Madeleine, 1968-, et al.
(author)
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Factors to consider when introducing digital social activities to older persons with home care
- 2023
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In: Caring is sharing. - : IOS Press. - 9781643683881 - 9781643683898 ; , s. 453-457
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Conference paper (peer-reviewed)abstract
- Social isolation and loneliness have become everyday concerns forpopulations all over the world as these factors are affecting both physical and mentalhealth in a negative way. Feelings of isolation and loneliness are increasinglyacknowledged as a health risk among older persons. ICTs have been recognized aseffective tools to combat social isolation among older people. The aim of this studywas to explore factors of significance when introducing a tablet-based systemproviding digital social activities for older persons with home care. Participants were17 persons, age 70 and older, who lived alone and had assistance from home care.This exploratory study used cross-sectional qualitative data analyzed throughthematic analysis. Three themes were generated: 1) lacking vocabulary related tothe context, 2) intuitive user interface may replace extensive instructions and 3)unwillingness to commit to a pre-defined measure of performance.
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| 6. |
- Blusi, Madeleine, Ph.D., et al.
(author)
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Feasibility and Acceptability of Smart Augmented Reality Assisting Patients with Medication Pillbox Self-Management
- 2019
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In: Studies in Health Technology and Informatics. - : IOS Press. - 0926-9630 .- 1879-8365. ; 264, s. 521-525
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Journal article (peer-reviewed)abstract
- Complex prescribed medicine regimens require extensive self-management. Handling multiple pills can be confusing; using a pillbox organiser is a common strategy. A smart Medication Coach Intelligent Agent (MCIA) can support patients in handling medicine. The aim of this research was to evaluate the feasibility and acceptability of the MCIA. A prototype was tested with 15 participants, age 17-76, filled a pillbox according to prescription assisted by the MCIA implemented in a Microsoft HoloLens. A quantitative method using questionnaires was applied. Results showed that using the MCIA implemented in an AR-headset, to assist people with prescribed polypharmacy regimen in filling a pillbox, was feasible and acceptable. There was a difference related to age regarding people's willingness to use an AR-headset for medication self-management. People older than 65 felt less comfortable using the technology and were also more hesitant to use the technology than those under 65.
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| 9. |
- Blusi, Madeleine, et al.
(author)
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Older adults co-creating meaningful individualized social activities online for healthy ageing
- 2018
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In: Building continents of knowledge in oceans of data. - : IOS Press. - 9781614998518 - 9781614998525 ; , s. 775-779
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Book chapter (peer-reviewed)abstract
- Social isolation and loneliness among older people is a growing problem with negative effects on physical and mental health. In co-creation with older adults individualized social activities were designed where older adults through computer mediated communication were able to participate in social activities without leaving their homes. Four types of activities were designed; outdoor activity, music event, visiting a friend and leisure activity. A participatory action research design was applied, where end users together with scientists from two research fields developed, tested and evaluated online participation in the activities. Usability and safety of the systems were major concerns among older adults. The evaluation pointed out that level of simplicity, usability and audio-video quality determined the level of satisfaction with the human interaction during the activity, thereby affecting the meaningfulness of the activity. The research presented in this paper constitutes the first step in a long-term research process aiming at developing a digital coaching system that gives older adults personalized support for increasing participation in meaningful social activities.
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| 10. |
- Blusi, Madeleine, et al.
(author)
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Older family carers in rural areas - experiences from using caregiver support services based on Information and Communication Technology (ICT)
- 2013
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In: European Journal of Ageing. - : Springer Science and Business Media LLC. - 1613-9372 .- 1613-9380. ; 10:3, s. 1-9
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Journal article (peer-reviewed)abstract
- The aim of this intervention study was to illuminate the meaning of ICT-basedcaregiver support as experienced by older family carers living in vast ruralareas, caring for a spouse at home. In order to access the support serviceparticipants were provided with a computer and high speed Internet in theirhomes. Semi structured webcam-interviews were carried out with 31 familycarers. A strategy for webcam interviewing was developed in order to ensurequality and create a comfortable interview situation for the family carers.Interviews were analyzed using content analyses, resulting in the themes: Adoptingnew technology with help from others and Regaining social inclusion.The results indicate that ICT-based support can be valuable for older familycarers in rural areas as it contributes to improve quality in daily life in anumber of ways. In order to fully experience the benefits, family carers needto be frequent users of the provided support. Adequate training andencouragement from others were essential in motivating family carers to use thesupport service. Access to Internet and webcamera contributed to reducingloneliness and isolation, strengthening relationships with relatives living faraway and enabled access to services no longer available in the area. Use of theICT-service had a positive influence on the relationship between the oldercarer and adult grandchildren. It also contributed to carer competence andpromote feelings of regaining independence and a societal role.
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