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- Kaelin, Vera C., et al.
(author)
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Caregiver perspectives on school participation among students with craniofacial microsomia
- 2021
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In: American Journal of Occupational Therapy. - : AOTA Press. - 0272-9490 .- 1943-7676. ; 75:2
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Journal article (peer-reviewed)abstract
- Importance: Knowledge of unmet school participation needs for students with craniofacial microsomia (CFM) can inform decisions regarding intervention support.Objective: To compare students with and without CFM on school participation (i.e., frequency, involvement, desire for participation to change) and caregivers’ perceptions of environmental support for participation in occupations.Design: Cross-sectional design using secondary analyses of a subset of data.Setting: Multisite cohort study.Participants: Caregivers of students with CFM (n = 120) and of students without CFM (n = 315), stratified by history of educationand health-related service use.Outcomes and Measures: School participation and environmental support, obtained with the Participation and Environment Measure–Children and Youth.Results: Significant group differences were found in frequency of school participation (effect size [ES] = −0.38, 95% confidence interval [−0.64, −0.12], p = .005), level of involvement (ES = −0.14, p = .029), and desired change (p = .001), with students with CFM exhibiting greater participation restriction than students without CFM and no history of service use. No statistically significant group differences were found in environmental support for participation in the school setting. Item-level findings showed statistically significant higher desire for participation to change in three of five school occupations (odds ratio = 1.77–2.39, p = .003–.045) for students with CFM compared with students without CFM and no history of service use.Conclusions and Relevance: The results suggest that students with CFM experience restriction in participation at school.What This Article Adds: Students with CFM may benefit from targeted school-based interventions to optimize their inclusion.
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| 2. |
- Kaelin, Vera C., et al.
(author)
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Community participation in youth with craniofacial microsomia
- 2022
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In: Disability and Rehabilitation. - : Taylor & Francis. - 0963-8288 .- 1464-5165. ; 44:2, s. 253-260
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Journal article (peer-reviewed)abstract
- Purpose: To examine differences in community participation and environmental support for youth with and without craniofacial microsomia.Methods: This study involved secondary analyses of a subset of data (n = 396) from a longitudinal cohort study. Multiple linear and Poisson regression analyses and Wilcoxon Mann–Whitney tests were used to estimate differences in community participation and environmental support between youth with craniofacial microsomia and youth without craniofacial microsomia, stratified based on their history of education and health-related service use. Chi-square analyses were used to explore item-level group differences in change desired across community activities.Results: Statistically significant differences were found in community participation frequency (ES = −0.52; p < 0.001), level of involvement (r = −0.16; p = 0.010), and desire for change in participation when comparing youth with craniofacial microsomia and non-affected peers not receiving services (p < 0.001). There were no statistically significant differences between youth with craniofacial microsomia and non-affected peers receiving services.Conclusions: Results suggest lower community participation in youth with craniofacial microsomia as compared to non-affected peers not receiving services. This may suggest opportunities for designing and testing interventions to promote community participation among youth with craniofacial microsomia, so as to support their transition to adulthood.
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