| 1. |
- Browall, Maria, et al.
(author)
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Digi-Do : A digital information tool to support patients with breast cancer before, during, and after start of radiotherapy treatment
- 2020
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In: Annals of Oncology. - : Elsevier. - 0923-7534 .- 1569-8041. ; 31:Supplement 4, s. S1126-S1126
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Journal article (peer-reviewed)abstract
- Radiation Therapy (RT) is a common treatment after breast cancer surgery. The high-tech environment and unfamiliar nature of RT can affect the patient’s experience of the treatment. Misconceptions or a lack of knowledge about RT processes can increase levels of anxiety and enhance feelings of being unprepared at the beginning of treatment. Moreover, the waiting time can be long and experienced as meaningless or even life threatening. For successful radiotherapy, the person often needs to be immobilized. A calm, well informed patient might enhance quality of treatment, both from patient and provider perspective. Waiting times can become meaningful instead of meaningless if used wisely for information and preparation for patients and loved ones.
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| 2. |
- Fristedt, Sofi, 1969-, et al.
(author)
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Digi-Do: a digital information tool to support patients with breast cancer before, during, and after start of radiotherapy treatment: an RCT study protocol
- 2021
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In: BMC Medical Informatics and Decision Making. - : Springer Science and Business Media LLC. - 1472-6947. ; 21:1
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Journal article (peer-reviewed)abstract
- Background: Radiation Therapy (RT) is a common treatment after breast cancer surgery and a complex process using high energy X-rays to eradicate cancer cells, important in reducing the risk of local recurrence. The high-tech environment and unfamiliar nature of RT can affect the patient's experience of the treatment. Misconceptions or lack of knowledge about RT processes can increase levels of anxiety and enhance feelings of being unprepared at the beginning of treatment. Moreover, the waiting time is often quite long. The primary aim of this study will be to evaluate whether a digital information tool with VR-technology and preparatory information can decrease distress as well as enhance the self-efficacy and health literacy of patients affected by breast cancer before, during, and after RT. A secondary aim will be to explore whether the digital information tool increase patient flow while maintaining or increasing the quality of care. Method: The study is a prospective and longitudinal RCT study with an Action Research participatory design approach including mixed-methods data collection, i.e., standardised instruments, qualitative interviews (face-to-face and telephone) with a phenomenological hermeneutical approach, diaries, observations, and time measurements, and scheduled to take place from autumn 2020 to spring 2022. The intervention group (n=80), will receive standard care and information (oral and written) and the digital information tool; and the control group (n=80), will receive standard care and information (oral and written). Study recruitment and randomisation will be completed at two centres in the west of Sweden. Discussion: Research in this area is scarce and, to our knowledge, only few previous studies examine VR as a tool for increasing preparedness for patients with breast cancer about to undergo RT that also includes follow-ups six months after completed treatment. The participatory approach and design will safeguard the possibilities to capture the patient perspective throughout the development process, and the RCT design supports high research quality. Digitalisation brings new possibilities to provide safe, person-centred information that also displays a realistic picture of RT treatment and its contexts. The planned study will generate generalisable knowledge of relevance in similar health care contexts.Trial registration: ClinicalTrials.gov Identifier: NCT04394325. Registered May 19, 2020. Prospectively registered.
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| 3. |
- Fristedt, Sofi, 1969-, et al.
(author)
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Registered nurses and undergraduate nursing students' attitudes to performing end-of-life care
- 2021
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In: Nurse Education Today. - : Elsevier BV. - 0260-6917 .- 1532-2793. ; 98
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Journal article (peer-reviewed)abstract
- Registered Nurses (RNs) are in the immediate position to provide End-of-life (EOL) care and counselling for patients and families in various settings. However, EOL-care often creates feelings of uncertainty and inadequacy linked to inexperience, lack of education, and attitude. To identify and describe factors associated with RNs' attitudes towards EOL-care, and to identify whether and how these attitudes differ from undergraduate nursing students' (UNSs) attitudes, a descriptive and comparative, quantitative study was performed. The FATCOD-instrument, focusing on attitude towards EOL-care, was used and the results analysed with descriptive and nonparametric statistics. In total, 287 RNs in 14 different specialist programmes, and 124 UNSs participated. A statistically significant difference (p = 0.032) was found in attitude towards EOL-care based on clinical experience. RNs in “Acute Care” and “Paediatric & Psychiatry Care” specialist programmes had a less positive attitude towards EOL-care (compared to RNs in other specialist programmes), while RNs attending the Palliative Care programme had the most positive attitudes. RNs and UNSs' scores differed statistically significantly in 17 out of 30 FATCOD variables. Finally, the results imply that there is a need for greater emphasis on further continuing education within EOL care for RNs working in all types of clinical specialities to encourage RNs talking about death and to enhance attitudes towards EOL care. © 2021 Elsevier Ltd
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| 4. |
- Grynne, Annika, et al.
(author)
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Women with breast cancer stories about divergent approaches of obtaining information of health, diagnosis, and treatment : A deductive approach based on dimensions of health literacy
- 2022
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In: Annals of Oncology. - : Elsevier. - 0923-7534 .- 1569-8041. ; 33:7, s. S1354-S1354
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Journal article (peer-reviewed)abstract
- For women diagnosed with breast cancer, radiation therapy (RT) is one of several treatment modalities offered. Most women express a desire for information before the treatment enabling them to prepare and feel safe. This need of information continues throughout the RT. Difficulties to assimilate health information gained from reading, personal meetings, or digital technology may relate to lower health literacy (HL). HL is a dynamic concept that encompasses skills such as reading and interpret information about one's health. Digital technology offers innovative ways to gain information. To facilitate relevance and reach of science it must be evaluated before implementation. The women participating in this study had access to a new digital information tool, Digi-Do. The Digi-Do comprises two separate but coherent applications for mobile devises: One virtual reality (VR) application, with a guided tour of the RT-department and an information application with focus on cancer and RT. The aim of the study was to illuminate the experience of digital versus analog ways of seeking and assimilate information for women diagnosed with breast cancer.
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