| 1. |
- Jenholt Nolbris, Margaretha, 1956, et al.
(author)
-
Development of a programme for web-based support for children – a participatory design in children and families with urinary tract disorders.
- 2016
-
In: JSM Health Education and Primary Health Care. ; 1:1
-
Journal article (peer-reviewed)abstract
- Children with urinary tract and bowel malformation often realize that they do not have the same body and genital appearance as their schoolmates. This sensitive matter affects their integrity, a private problem that not is discussed in public. It is a lack of prevention program, particularly developed in cooperation with the children. The goal with the present project was to get tools for support in daily live. The aim of the study was together with the children, family, hospital staff and researcher; develop a web-based support program to be used in home setting. The study was conducted between 2011and2015. A participatory design was employed following the approach in person centred care with a partnership between 22 children 3-7 years old, their families and the research group of 8 persons. The program was built on stories about two children, their actions in different situations and with images to support the stories. Open conversations were used for the data collection and data were analysed using qualitative content analysis. Steps of 8 themes were formed from the developing of the web-based program, which offered a user-friendly support in daily life for the children with long-term illnesses and family.
|
|
| 2. |
- Simeonsdotter Svensson, Agneta, 1950, et al.
(author)
-
Health, Wellbeing and Self-Esteem: Web-Based Support in Children with Urogenital or Bowel Malformation
- 2016
-
In: Open Journal of Pediatrics. - : Scientific Research Publishing, Inc.. - 2160-8741 .- 2160-8776. ; 6:1, s. 82-90
-
Journal article (peer-reviewed)abstract
- 1. Introduction Long-term illness is usually a challenge for both children and their families [1]. Children with urogenital malformation or bowel disturbances are a vulnerable group who are at greater risk of experiencing ill health. They are often supported in situations related to their malformation by parents and others. When at school, the child suddenly has to face and cope with situations they are not used to; they often feel excluded, afraid of relationships with the opposite sex and subjected to bullying [2]-[4]. They express a great need for support in daily life [5]-[8]. The social and emotional consequences of long-term illness need to be addressed [9]. However, there is lack of studies investigating prevention of ill health in this group of children. Health promotion is the process of enabling people to increase their control over, and to improve their health. To reach a state of complete physical, mental and social wellbeing, the child must be able to identify and to realize aspirations, to satisfy needs, and to change or cope with the environment. Health is, therefore, seen as a resource, not the objective, in everyday life. Health is a positive concept that emphasizes social and personal resources, as well as physical capacities. Health promotion is not just the responsibility of the health sector; it goes beyond healthy lifestyles to wellbeing [10]. However, the needs of children with the same disease are not necessarily the same. Person-centred care (PCC) is explained as focusing on the person and not on the illness. The purpose is to make care and treatment more personal and to understand behaviour and symptoms from the perspective of the individual patient. To do this, it is important to proceed from knowledge of the sick person’s living patterns and priorities [11]. Studies have been conducted with positive outcomes, mainly for adults with long-term illness but also for young people [12]-[15]. The present study is part of a larger project studying health and wellbeing using person-centred, web-based learning in children with severe urogenital, urological and bowel malformations [16] [17]. Findings from the studies in this project are qualitative in design and show the development of the intervention. The use of SKYPE for interviewing children was also evaluated. This method can be used in the child’s home and is convenient for both the child and the family. The ability to use the body language also facilitated the understanding of the conversation, particularly in the youngest children. The intervention could identify wellbeing, resources, needs, and wishes. The children were interested and able to discuss relations, emotions and their own body. That learning had taken place was shown by realizing something new, reflecting on it, and then using the knowledge in a new context in their daily lives. The aim of the study was to investigate the effect on health/wellbeing and self-esteem, before and after oneyear intervention in children aged 3 - 7 years born with malformations in the urethra, bladder, genitals and/or bowel. The results of the intervention, person-centred, web-based learning support, are compared with the findings in a control group of healthy children.
|
|
| 3. |
- Berg, Linda, 1961, et al.
(author)
-
Characterisation of Cancer Support and Rehabilitation Programmes: A Swedish Multiple Case Study
- 2014
-
In: The open nursing journal. - : Bentham Science Publishers Ltd.. - 1874-4346. ; 8, s. 1-7
-
Journal article (peer-reviewed)abstract
- Cancer support and rehabilitation are suggested to be an integral part of cancer care strategies. This study focuses on comparativeness of cancer support and rehabilitation programmes. The aim of this study was to analyse available cancer support and rehabilitation programmes in Sweden presented as complementary to cancer rehabilitation at cancer clinics. A multiple case study design was chosen in order to inquire the small number of existing supportive and rehabilitative cancer programmes. Based on the structures, processes and outcomes of the nine included programmes, three types of cancer support and rehabilitation programmes were identified: multimodal rehabilitation, comprehensive cancer support and art therapy. Cancer support and rehabilitation programmes offer a variety of activities and therapies which are highly valuable and relevant for people with cancer. The typology of cancer support and rehabilitation programmes and comparability between programmes need further inquiry.
|
|
| 4. |
- Björk, Maria, et al.
(author)
-
Att vara barn och möta sjukdom
- 2012
-
In: Att möta familjer inom vård och omsorg. - Lund : Studentlittartur AB. - 9789144072661 ; , s. 191-206
-
Book chapter (pop. science, debate, etc.)
|
|
| 5. |
- Bohlin, V., et al.
(author)
-
Child health care nurses' experiences of language barriers during home visits
- 2022
-
In: Public Health Nursing. - : Wiley. - 0737-1209 .- 1525-1446. ; 39:1, s. 146-152
-
Journal article (peer-reviewed)abstract
- Objective The aim of the study was to explore the communication tools that child healthcare nurses can use during home visits to families when language barriers exist. Design Qualitative study using data collected from focus group sessions. Sample Six semi-structured focus group interviews with twenty nurses in child healthcare services. Measurements The results were analyzed with a thematic content analysis. Results The analysis resulted in two themes: Using pictures as support in the conversation, with subthemes Not using pictures as support, Wanting to know how to use pictures as support, Pictures as support for invitations, Different types of pictures as support, and Alternative means of communication with the subthemes Possibilities of using an interpreter, Obstacles to using an interpreter, Mixed communication. Conclusion If language barriers are present during home visits, decision-making nurses in Child Health Care (CHC) put families in an unequal position when communicating with them. These results point to a need for more education, guidelines and support regarding alternative and augmentative communication (AAC) tools and structures to assist in overcoming language barriers.
|
|
| 6. |
- Bray, L., et al.
(author)
-
Children's pictures of COVID-19 and measures to mitigate its spread: An international qualitative study
- 2021
-
In: Health Education Journal. - : SAGE Publications. - 0017-8969 .- 1748-8176. ; 80:7, s. 811-832
-
Journal article (peer-reviewed)abstract
- Objectives: To gain insight into children's health-related knowledge and understanding of Severe Acute Respiratory Syndrome Coronavirus 2 (SARS-CoV2) and COVID-19, and measures adopted to mitigate transmission. Design: A child-centred qualitative creative element embedded in an online mixed-methods survey of children aged 7-12 years. Setting: Children participated in the study in six countries - the UK, Australia, Sweden, Brazil, Spain and Canada. Method: A qualitative creative component, embedded in an online survey, prompted children to draw and label a picture. Children were recruited via their parents using the researchers' professional social media accounts, through known contacts, media and websites from health organisations within each country. Analysis of the form and content of the children's pictures took place. Results: A total of 128 children (mean age 9.2 years) submitted either a hand-drawn (n = 111) or digitally created (n = 17) picture. Four main themes were identified which related to children's health-related knowledge of (1) COVID-19 and how it is transmitted; (2) measures and actions to mitigate transmission; (3) places of safety during the pandemic; and (4) children's role in mitigating COVID-19 transmission. Conclusion: Children's pictures indicated a good understanding of the virus, how it spreads and how to mitigate transmission. Children depicted their actions during the pandemic as protecting themselves, their families and wider society.
|
|
| 7. |
- Carlsson, Lotta, et al.
(author)
-
Nurses’ Experiences of Process-Oriented Supervision—Acquiring New Approaches to Demanding Situations
- 2020
-
In: Open Journal of Nursing. - : Scientific Research Publishing, Inc.. - 2162-5344 .- 2162-5336. ; April:10, s. 449-461
-
Journal article (peer-reviewed)abstract
- Background: Providing nursing care for patients and relatives requires a great effort from a nurse. It is therefore important for the nurse to have the opportunity to reflect on the caring acts included in process-oriented nursing supervision (PRONS). The overall objective of the nursing supervision is to support the professional development identity, competences, skills and ethics in different situations in nursing care. Aim: To investigate nurses’ experiences of the model of purging, playing and learning (PPL) according to Eriksson theory in a (PRONS) related to strengthen safe care, quality and professional development. Method: A qualitative study with individual interviews and the data was analyzed using qualitative interpretive content analysis. Participants: All eleven registered participated nurses were from southwestern Sweden and worked in different hospital units. Ethical Considerations: The study carried out in accordance with the ethical guidelines laid down in the Helsinki Dec-laration and according to the recommendations of the regional ethics com-mittee. Findings: Three categories were identified, valuable purging in the process, responsive playing and awareness of learning. The study found that by participating in PRONS the nurses had developed new approaches with different “tools” when difficult situations occurred in daily nursing practice. Conclusion: PRONS with the model PPL has an important role to support nurses in daily nursing practice. The study highlights that there are residual successful effects after PRONS for the nurses in managing care situations that experienced strengthen quality in care and professional development.
|
|
| 8. |
- de Avila, Marla Andreia Garcia, et al.
(author)
-
Anxiety among children a year after the onset of the COVID-19 pandemic: a Brazilian cross-sectional online survey
- 2024
-
In: FRONTIERS IN PUBLIC HEALTH. - 2296-2565. ; 12
-
Journal article (peer-reviewed)abstract
- Aim This study seeks to build upon a prior investigation into the impact of the COVID-19 pandemic and to evaluate the prevalence of anxiety among Brazilian children, along with its associated factors, one year after the commencement of the pandemic.Design A cross-sectional study.Methods A survey was conducted from April-May 2021 in Brazil. Children aged 6-12 and their guardians from five Brazilian regions were included. The Children's Anxiety Questionnaire (CAQ; scores 4-12) and Numerical Rating Scale (NRS; scores 0-10) were used to measure anxiety.Results Of the 906 children, 53.3% were girls (average age = 8.79 +/- 2.05 years). Mothers responded for 87.1% of the children, and 70.9% were from the Southeast region. Based on a CAQ score of >= 9 and an NRS score of >= 8, the anxiety prevalence was 24.9 and 34.9%, respectively. Using logistic regression, a CAQ >= 9 score was associated with older children and children with chronic disease or disability. An NRS score of >= 8 was associated with reduced family income during the pandemic, the person caring for the children, and with children with chronic disease or disability.Conclusion These findings suggest the need to implement public health actions aimed at children with chronic diseases and disabilities and their parents to guide them regarding the warning signs and negative emotions. This study contributes to characterizing the evolution of the pandemic in Brazil and provides a basis for comparison with the literature from other countries.
|
|
| 9. |
- Duong, Thi Hoa, et al.
(author)
-
Experiences of Learning from a Person-Centred Web-Based Support Programme for Children with Urogenital and Bowel Malformation
- 2017
-
In: Psychology. - : Scientific Research Publishing, Inc.. - 0033-3077 .- 2152-7180 .- 2152-7199. ; 2017:8, s. 363-372
-
Journal article (peer-reviewed)abstract
- The purpose was to illuminate preschool children’s experiences of learning from a web-based intervention comprising person-centred learning support. A qualitative method was chosen based on open-ended interviews with ten children born with urogenital or bowel malformation. The data were analysed using qualitative content analysis. Two main categories and eight subcategories were identified. The findings show that the participants remembered the web preschool with pleasure and thought it had been useful. The children were able to express what they found important and in the conversations they easily associated the intervention with events in their daily life. Most of the children in this present study could manage toilet visits by themselves but worried about the standard in the school toilets. Their own integrity was important with regard to toilet matters and they wanted privacy for their visits.
|
|
| 10. |
- Forsner, Maria, et al.
(author)
-
Mitt i informationsflödet om Covid 19 pandemin, en internationell webbenkätstudie till föräldrar och barn 7-12 år
- 2020
-
In: State of Art- Covid 2019, Nationell digital konferens, Svenska läkarsällskpet.
-
Conference paper (other academic/artistic)abstract
- Bakgrund: Tidigt under våren 2020 drabbades Sverige av Covid 19 pandemin. Med pandemin följe en infodemi. Barn skolåldern och deras förälder hamnade mitt i detta informationsflöde. Syfte: Att undersöka hur barn får och tolkar information om Covid 19 pandemin. Metod: Anonymiserad webbenkät. 2 enkäter til barn, respektive föräldrar. Översatt till respektive språk. Deltagare 390 barn, 7-12 är (Sv 50) och 1234 föräldrar ( Sv 235). Insamling april – 1 juni ( Sv 22 maj-1 juni). Initierat av Lucy Bray med team, Edge Hills universitet Storbritannien. Omvårdnad forskare från Sverige, Kanada , Australien, Brasilien och Spanien. Resultat: Majoriteten av barn från andra länderna fick information från föräldrarna. Svaren från de svenska barnen speglade myndighetens rekommendationer. Utomhus skildrades som en positiv plats för de svenska barnen. Teckningar från Sverige visade i stor utsträckning munskydd på både människor och djur. Slutsats: De sveks barnen var medvetna om att coronaviruset kunde vara farligt, vikten av att hålla avstånd och tvätta händerna och skydda de äldre. Svaren från Sverige skiljde sig från de andra länderna med att skolan var främsta och önskade informationskällan. Utomhusaktiviteter uppskattades som önskvärt.
|
|
