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| 2. |
- Glasdam, Stinne, et al.
(author)
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Unity strengthens and inhibits development: A focus group interview with volunteer adults in support programs for bereaved children and their family
- 2023
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In: Death Studies. - : Informa UK Limited. - 0748-1187 .- 1091-7683. ; 47:9, s. 1061-1071
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Journal article (peer-reviewed)abstract
- This article illuminates (inter)actions and group dynamics of adult volunteers in programs for bereaved children and parents. A focus group interview with seven volunteers in Swedish was conducted. A latent, thematic analysis was conducted, inspired by Braun and Clarke, and Goffman. Two themes were constructed: Personal despair as a motivation for establishing and consolidating voluntary involvement and The volunteers acted as an extended family. Group dynamics within the group contributed to uphold volunteers’ adherence to formal and informal guidance related to the program. Strong engagement among volunteers and internal recruitment strategies contributed to uphold and consolidate the program’s implementation.
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| 3. |
- Karidar, Hakima, et al.
(author)
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A gap between the intention of the Swedish law and interactions between nurses and children of patients in the field of palliative oncology - The perspective of nurses
- 2016
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In: European Journal of Oncology Nursing. - : Elsevier BV. - 1462-3889. ; 22, s. 23-29
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Journal article (peer-reviewed)abstract
- Purpose: Children who have a parent with incurable cancer are in a vulnerable situation and the Swedish law tries to protect them. This article aims to explore the interactions between nurses and children of patients with incurable cancer from the nurses' perspective. Method: Semi-structured interviews with nine nurses in palliative oncology in Southern Sweden. Latent content analysis was carried out, inspired by Lundmann and Graneheim. Results: Parents are gatekeepers to the children's involvement and meetings with the healthcare professionals. Therefore the nurses were dependent on the parents for contact with their children. Additionally, nurses were subject to the structural frame of their working environment in terms of time, economy, resources and the medical logic ruling the priorities for nursing during their daily working day. The opportunities to pay attention to the children of patients were limited, despite good intentions, willingness and a favourable legal framework. Teenagers were regarded as a challenge, and per se they challenged the nurses' opportunities to gain control of the meetings and situations around the families. Conclusions: Often nurses did not see and acknowledge the children of the palliative patient. They knew that the children were there and that it was important that they were there, but they challenged the order in the working environment in relation to time-allocated tasks and working flow. In the working environment patients were prioritised over relatives. From the perspective of nurses, there is a gap between the intentions of the Swedish law and the interactions between nurses and children.
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| 4. |
- Karidar, Hakima, et al.
(author)
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Det är som att gå i skolan” – Gruppstödsprogram för ungdomar i Sverige som har förlorat en förälder
- 2022
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In: ; , s. 39-39
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Conference paper (peer-reviewed)abstract
- Bakgrund: En förälders död är en av de mest dramatiska händelser som kan drabba barn och ungdomar och det kan påverka dem på många olika sätt. Syfte: Att undersöka hur ungdomar som förlorat en förälder inkluderades i ett stödprogram för sörjande familjer och hur deras deltagande tog sig uttryck. Metod: En etnografisk fältstudie där data samlades in med hjälp av observationer, semi-strukturerade intervjuer och fokusgruppsintervjuer. Sex ungdomar i ålder 10–14 år, sex föräldrar och åtta gruppledare deltog. Tematisk analys enligt Braun och Clark utfördes, inspirerad av Bourdieus begrepp fält, kapital, doxa och makt som teoretiskt ramverk. Resultat: Professionella i skolan, inom vården och socialarbete introducerade ofta stödprogrammet för föräldrar och ungdomar och övertygande initialt föräldrarna att delta i programmet. Några vuxna kände redan till att det fanns ett stödprogram. Utgångspunkten för ungdomars deltagande i stödprogrammet var att vuxna erkände att ungdomarna behövde stöd. Med eller utan förhandlingar följde ungdomarna föräldrarnas önskemål att delta i programmet. Stödprogrammet liknade skolans logik både i kontexten, innehållet och tillvägagångsättet. Strukturen och innehållet i programmet var grundat i medicinsk – psykologisk förståelse av sorg och sorgebearbetning. Gruppledarna skapade en atmosfär som liknande skolatmosfären och ungdomarna agerade som elever och utförde det om förväntades av dem. Ungdomarna interagerade endast med varandra under pauserna i stödprogrammet. Betydelse: Studien visar på betydelsen av att vuxna är lyhörda för ungdomars individuella behov av stöd då det kan variera och inte alltid sammanfaller med vuxnas föreställningar om ett bra stöd. Det är lämpligt att involvera ungdomar som förlorat en förälder vid utveckling av framtida stödinsatser riktat mot dem.
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| 5. |
- Karidar, Hakima, et al.
(author)
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Inclusion and Participation in a Support Programme for Bereaved Adolescents - Relational Perspectives From an Ethnographic Field Study in a Swedish Context
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In: OMEGA - Journal of Death and Dying. - 1541-3764. ; , s. 1-24
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Journal article (peer-reviewed)abstract
- The death of a parent is a life-changing event, and different programmes are developed to support children. This study explored how parental bereaved adolescents were included and (inter)acted in a Swedish support programme. The conducted ethnographic field study included six adolescents, their parents, and eight volunteers. The empirical material was thematically analysed through a theoretical lens inspired by Bourdieu. Three themes emerged: 'Different strategies for adolescents' inclusion in the programme,' 'Medico-psychological understanding of grief and suffering,' and 'Reproduction of the logic of the school.' Adolescents were included in the programme through different strategies, where adults functioned as gatekeepers. The programme reproduced the school logic and was based on a medico-psychological grief/bereavement understanding. Volunteers had pedagogic authority and concomitant symbolic power, ruling adolescents to do what they must do in the meetings, silently socialising them into the medical logic. The adolescents only interacted and communicated with each other during breaks.
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| 6. |
- Karidar, Hakima, et al.
(author)
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Inter-Professional Caring for Children Who Are Relatives of Cancer Patients in Palliative Care: Perspectives of Doctors and Social Workers
- 2019
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In: British Journal of Social Work. - : Oxford University Press (OUP). - 0045-3102 .- 1468-263X. ; 49:3, s. 595-614
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Journal article (peer-reviewed)abstract
- A palliative cancer diagnosis in a parent has a major impact on many aspects of patients’ children. This article aims to explore how doctors and social workers met children as relatives of a parent with cancer in order to understand the possibilities and difficulties in supporting children in specialised palliative homecare in Sweden. Qualitative, semi-structured interviews of doctors and social workers were conducted, inspired by Bourdieu. The findings showed that professionals had limited contact with patients’ children. Mono- and inter-professional meetings were organising structures for working days of doctors and social workers. Due to hierarchy positions, doctors often set the agenda in inter-professional teamwork. Doctors seldom met patients’ children, only when information about parents’ cancer diseases were needed. Social workers were responsible for psycho-social issues, but mostly only special vulnerable families and their children were prioritised. Meetings between children and professionals were conditional on the parents’ permission and, even if permission was given, meetings seldom took place. Doctors and social workers were subject to the structural frame and a medical logic, which limited their interactions with children of the patients. Children were dependent on both their parents and professionals, who had the power to include or exclude them from parents’ illness situation.
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| 7. |
- Karidar, Hakima, et al.
(author)
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Inter-Professional Caring for Children Who Are Relatives of Cancer Patients in Palliative Care: Perspectives of Doctors and Social Workers
- 2018
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In: ; , s. 129-129
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Conference paper (peer-reviewed)abstract
- Background: A palliative cancer diagnosis in a parent has a major impact on many aspects of their children’s lives. Studies show that professionals in the oncological field do not seem to offer relatives, in general, much attention. Aim: to explore how doctors and social workers handle children of cancer patients in order to understand the possibilities and difficulties in supporting children in specialized palliative home care in Sweden.Method:Qualitative semi-structured interviews of five doctors and five social workers in Skane.Interview length 57-73 minutes. A detailed description of its latest work pass. Sociologically inspired content analysis, inspired by Bourdieu’s theoretical concepts of capital, position, power and field.Results:Meetings were an organizing structure for the working day’Due to hierarchical positions, doctors often set the agenda for interprofessional teamwork and directed the collaboration between doctors and social workersDoctors and social workers seldom met patients’ childrenDoctors only met children when information about parents’ cancer diseases was neededSocial workers were responsible for psychosocial issues, but only especially vulnerable families and their children were prioritizedParents had the primary responsibility for their childrenMeetings between children and professionals were conditional on parental permission.Even when permission was granted, physical meetings seldom took placeChildren were often not at home when professionals visited the patient; often home visits during the day shiftPatient’s death meant no professional contact with childrenConclusion: Doctors and social workers were subject to the structural frame and a medical logic, which limited their interactions with children of the cancer patients. The organization of the clinic facilitated exclusion of patients' children as the focus area for professionals. Children were dependent on both their parents and professionals, who had the power to include or exclude them from the parent’s illness situation.
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| 8. |
- Karidar, Hakima, et al.
(author)
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Interprofessional caring of children of cancer patients in palliative care –perspectives of doctors and social workers
- 2018
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In: Palliative Medicine. - : SAGE Publications. - 1477-030X .- 0269-2163. ; 33:1, s. 129-129
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Conference paper (peer-reviewed)abstract
- A palliative cancer diagnosis in a parent has a major impact on many aspects of their children’s lives. Studies show that professionals do not seem to offer relatives, in general, much attention in the palliative fieldAim: To explore how doctors and social workers handle children of cancer patients in order to understand the possibilities and difficulties in supporting children in specialized palliative home care in Sweden.Method: Qualitative semi-structured interviews of five doctors and five social workers in Skane. Interview length 57-73 minutes. A detailed description of their latest working day. Sociologically inspired content analysis, inspired by Bourdieu’s theoretical concepts of capital, position, power and fieldResult: Doctors and social workers had limited contact with children to cancer patients. Meetings were an organizing structure for the working day. Due to hierarchical positions, doctors often set the agenda for interprofessional teamwork and directed the collaboration between doctors and social workers. Doctors and social workers seldom met patients’ children. Doctors only met children when information about parents’ cancer diseases was needed. Social workers were responsible for psychosocial issues, but only especially vulnerable families and their children were prioritized. Patients defined contact between professionals and children. Parents had the primary responsibility for their children. Meetings between children and professionals were conditional on parental permission. Even when permission was granted, physical meetings seldom took place. Children were often not at home when professionals visited the patient; often home visits during the day shift. Patient’s death meant sparse professional contact with children.Conclustion: Doctors and social workers were subject to the structural frame and a medical logic, which limited their interactions with children of cancer patients. The organization of the clinic facilitated exclusion of patients’ children as the focus area for professionals. Children were dependent on both their parents and professionals, who had the power to include or exclude them from the parent’s illness situation
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| 9. |
- Karidar, Hakima, et al.
(author)
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“It is like going to school” - an ethnographical field study of a Swedish supporting program for children who lost a parent : “It is like going to school” - an ethnographical field study of a Swedish supporting program for children who lost a parent
- 2022
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In: ; , s. 3-3
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Conference paper (peer-reviewed)abstract
- Background A parent’s death is a dramatic event, and it can affect children in many ways, both acutely and long-term. Aim To explore how children who had lost a parent were included, acted, and interacted in a support program focusing on relational and contextual aspect.An ethnographic field study consisting of 82 hours of observations, 25 semi-structured interviews, and one focus group interview.Six children, aged 10-14, six parents, and eight voluntary program facilitators participated. A Braun and Clarke (2006) inspired thematic analysis was conducted through a theoretical lens inspired by Bourdieu’s concepts of field, capital, doxa, and power.ResultsDifferent strategies for children´s inclusion in the program The starting point for children´s participation in the support program required that adults recognized that children needed supportProfessionals in school and healthcare introduced the support program for parents and children Volunteers in the support program assessed whether the children met the inclusion criteria or notVolunteers and parents collaborated in motivating adolescents to participate in the programSome children appreciated the idea and were willing to participate in the programothers hesitated to participate but were persuaded by their parents to participateMedico-psychological understanding of grief and sufferingThe structure and content of the program were based on a medical-psychological understanding of grief and bereavement Children understood that adults thought it was important for them to talk about their situationSome children shared the medical and psychological understandings of grief and suffering with the adults, others did notSome children preferred not to have external support in relation to their bereavement, while others appreciated the ideaReproduction of the logic of the schoolThe program was similar to the school´s logic both in context, roles, and approachesVolunteers acted as teachers and the children acted as pupils, mostly performing as what was expected of themMostly, children interacted with each other during the program’s breaks ConclusionChildren’s access to support were governed by adults who had the mandate to assess and plan different support strategies. The structure of and the roles in the support program was similar to the school system, where children easily fit into familiar patterns and roles. Medical and psychological understandings of grief, suffering, and grief processing were dominant in the program. The study pointed to the importance of adults being sensitive to children’s individual needs for support as they could vary. The children’s needs of support were not always consistent with adults´ ideas of good support. It is appropriate to involve children who have lost a parent in the development of future support efforts aimed at them.
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| 10. |
- Karidar, Hakima, et al.
(author)
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Närståendestöd och efterlevandestöd – under och efter vårdtid inom specialiserad Palliativ vård och ASIH i Skåne
- 2022
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In: ; , s. 41-41
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Conference paper (other academic/artistic)abstract
- Bakgrund: En av hörnstenarna i palliativ vård handlar om att ge stöd till alla närstående. Enligt lagstiftning har sjukvården även en skyldighet att speciellt beakta barns behov av information, råd och stöd om barnets föräldrar eller någon annan vuxen som barnet varaktigt bor tillsammans med har en livshotande sjukdom eller avlidit.Syfte: Alla närstående inom Palliativ vård och ASIH i Skåne ska erbjudas personcentrerad och jämlikt stöd under och efter vårdtiden.Metod: Uppdraget startades 2019 och beräknas vara klar under hösten 2022. All personal inom palliativ vård och ASIH i Skåne involverades genom att de fick göra nulägesanalys gällande närståendestöd. I nästa steg utfördes gapanalys för att identifiera likhet och olikhet kring närståendestöd. Vidare fick all personal ge förslag till att forma framtidens närståendestöd. Efter nulägesanalys och gapanalys bildades en multiprofessionell arbetsgrupp med representanter från alla verksamheterna i Skåne. Arbetsgruppens uppdrag var att framställa beslutsunderlag gällande närståendestöd under vårdtid och efterlevandestöd till närstående efter vårdtiden. Resultat: Nulägesanalys som utfördes 2019 visade att närstående med liknande behov har erbjudits olika professionella stöd. Gapanalys utfördes under 2020 för kartläggning av vilka former av stöd saknades/önskades samt var relevanta i nu tiden. Under 2021 arbetet har fortsatt med att definiera vad närståendestöd innefattar och under 2022 har arbete pågått med att ta fram beslutsunderlag för hur och vilka former av närståendestöd som ska erbjudas.Betydelse: Genom strukturerad arbetssätt identifiera närståendes förutsättningar, behov och önskemål ökar sannolikheten för att närstående erbjuds rätt stöd, i rätt tid och av rätt profession.
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