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1.	Corbalan, R, et al. (author) Analysis of Outcomes in Ischemic vs Nonischemic Cardiomyopathy in Patients With Atrial Fibrillation: A Report From the GARFIELD-AF Registry 2019 In: JAMA cardiology. - : American Medical Association (AMA). - 2380-6591 .- 2380-6583. ; 4:6, s. 526-548 Journal article (peer-reviewed)
2.	Clarijs, ME, et al. (author) Measuring Quality of Life Using Patient-Reported Outcomes in Real-World Metastatic Breast Cancer Patients: The Need for a Standardized Approach 2021 In: Cancers. - : MDPI AG. - 2072-6694. ; 13:10 Journal article (peer-reviewed)abstract Metastatic breast cancer (MBC) patients are almost always treated to minimize the symptom burden, and to prolong life without a curative intent. Although the prognosis of MBC patients has improved in recent years, the median survival after diagnosis is still only 3 years. Therefore, the health-related quality of life (HRQoL) should play a leading role in making treatment decisions. Heterogeneity in questionnaires used to evaluate the HRQoL in MBC patients complicates the interpretability and comparability of patient-reported outcomes (PROs) globally. In this review, we aimed to provide an overview of PRO instruments used in real-world MBC patients and to discuss important issues in measuring HRQoL. Routinely collecting symptom information using PROs could enhance treatment evaluation and shared decision-making. Standardizing these measures might help to improve the implementation of PROs, and facilitates collecting and sharing data to establish valid comparisons in research. This is a prerequisite to learn about how they could impact the clinical care pathway. In addition, the prognostic value of intensified PRO collection throughout therapy on survival and disease progression is promising. Future perspectives in the field of PROs and MBC are described.
3.	de Ligt, KM, et al. (author) Development of a patient-centered core outcome set for metastatic breast cancer 2022 In: ANNALS OF ONCOLOGY. - : Elsevier BV. - 0923-7534. ; 33, s. S213-S214 Conference paper (other academic/artistic)
4.	de Ligt, KM, et al. (author) International development of a patient-centered core outcome set for assessing health-related quality of life in metastatic breast cancer patients 2023 In: Breast cancer research and treatment. - 1573-7217. Journal article (peer-reviewed)
5.	Hage, AM, et al. (author) Subtype-Specific Survival of Young Women with Breast Cancer and Its Interaction with the Germline BRCA Status 2024 In: Cancers. - 2072-6694. ; 16:4 Journal article (peer-reviewed)
6.	Rietjens, JAC, et al. (author) Improving shared decision-making about cancer treatment through design-based data-driven decision-support tools and redesigning care paths: an overview of the 4D PICTURE project 2024 In: Palliative care and social practice. - 2632-3524. ; 18, s. 26323524231225249- Journal article (peer-reviewed)

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Type of publication: journal article (5); conference paper (1)

Type of content: peer-reviewed (5); other academic/artistic (1)

Author/Editor: Gjertsen, E (1); Chen, X. (1); Endo, M. (1); Ferrer, A. (1); Fournier, D. (1); Hirose, M. (1); show more...; Howard, J. (1); Jackson, P. (1); Kim, H. (1); Kobayashi, T. (1); Lee, H. (1); Li, H. (1); Li, L. (1); Liu, B. (1); Love, J. (1); Mueller, K. (1); Mueller, T. (1); Nakamura, T. (1); Nielsen, J. (1); Nowak, S. (1); Takeda, H. (1); Yamaguchi, H. (1); Yamamoto, K. (1); Zhang, R. (1); Haas, S. (1); Mazur, M. (1); Novakova, J. (1); Patel, N. (1); Davies, E. (1); Saito, T (1); Suzuki, S (1); Nikolaev, K. (1); Mori, T. (1); Kuznetsova, E. (1); Li, J. (1); Lutz, G. (1); Wright, D. (1); Kumar, S (1); Zhang, Y. (1); Clark, M. (1); Sharma, S. (1); Gustavsson, M (1); Kato, Y. (1); Ross, A. (1); Schwarz, T. (1); Wilson, P. (1); Yoshida, T. (1); Berge, T. (1); Dominguez, I. (1); Jacobs, P. (1); show less...

University: Karolinska Institutet (6)

Language: English (6)

Research subject (UKÄ/SCB): Engineering and Technology (1); Medical and Health Sciences (1)

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