| 1. |
- Winqvist, Marianne, et al.
(author)
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Stöd till anhöriga : erfarenheter från åtta kommuner 2010-2012
- 2012
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Reports (other academic/artistic)abstract
- Ett omfattande arbete har utförts i landets kommuner sedan slutet av 1990-talet för att utveckla stödet till anhöriga. Staten har bidragit med cirka enmiljard kronor i stimulansmedel och en förändring har införts i Socialtjänstlagen som innebär att kommunerna har en skyldighet att erbjuda anhöriga stöd.I denna undersökning kartläggs och följs stödet till anhöriga under tre år i åtta kommuner. De studerade kommunerna är Borås, Härjedalen, Hässleholm, Malmö, Skara, Strängnäs, Uppsala och Västervik. I rapporten presenteras resultatet av kartläggningen för år 2010. Syftet med studien är att:Kartlägga innehållet i stödet till anhöriga, hur stödet organiseras, planeras,följs upp och utvärderas inom äldre-, funktionshinder- och individ-och familjeområdet samt samverkan mellan kommun, landsting,ideella organisationer och andra aktörer inom området.Undersöka hur de olika huvudintressenterna bedömer kvaliteten påstödet till anhöriga.Under tre år följa utvecklingen i de kommuner/kommundelar som ingår i studien.
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| 2. |
- Bengtsson, Lisbeth, et al.
(author)
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Vardagliv med cancer
- 2008
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In: Socionomens Forskningssupplement.
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Journal article (peer-reviewed)
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| 3. |
- Hellström, Andreas, 1972, et al.
(author)
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Co-designing a social innovation to better support people affected by cancer: A user-driven integration of societal resources
- 2018
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In: XXII IRSPM Annual Conference 2018.
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Conference paper (peer-reviewed)abstract
- The House of Power opened on February 8th, 2018 – the first Swedish support centre for people affected by cancer. The centre is located in the city of Borås (a mid-size Swedish municipality) with a 300 square meters venue to provide emotional, social, and practical support for people affected by cancer. The House of Power is a social innovation project initiated, driven, and designed by people affected by cancer. It is the result of a collaboration between patients, relatives, local hospital, primary care, municipality, Social insurance agency, Employment agency, academia, local businesses, and civil society. All of these actors are often involved in people’s life event of getting a cancer diagnosis, but the resources are fragmented and badly fitted for the person affected by cancer. With the ambition to act as a platform for relevant resources, The House of Power builds on the logic of user-driven resource integration. This work has been nominated for the Swedish Design Award 2018 in the category sustainable development. In this paper, we describe the design process and highlight some key learnings for the open and distributed co-creation process of this social innovation.
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| 4. |
- Mannefred, Carina
(author)
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Utveckling av stödet till anhöriga i Borås Stad 2010-2011
- 2012
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Reports (other academic/artistic)abstract
- Studie av anhörigstödet inom socialtjänstens verksamheter i Borås Stad under åren 2010-2011. Kartläggningen visar att stödet till anhöriga varierar beroende på den närståendes ålder, funktionsnedsättning, sjukdom eller missbruk och att utvecklingen av anhörigstödet inom de olika verksamheterna har kommit olika långt.
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| 5. |
- Smith, Frida, 1973, et al.
(author)
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Exploring the meaning, role and experiences of a patient-led social innovation for people affected by cancer: a new collaborative care model complementing traditional cancer rehabilitation in Sweden
- 2021
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In: BMJ open quality. - : BMJ. - 2399-6641. ; 10:4
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Journal article (peer-reviewed)abstract
- Objective Kraftens Hus is the first support centre in Sweden designed by and for people affected by cancer, including patients, family, friends, staff members and local community representatives (collectively 'stakeholders'). The purpose of this study was to explore the meaning, role and experiences of Kraftens Hus stakeholders using a patient and public involved methodology. Methods To understand and map the experiences of visitors to Kraftens Hus, we applied concept mapping (CM), a mixed methods approach where data are collected and analysed in four structured steps designed to capture the diverse perspectives of multiple stakeholders. Qualitative interviews with relevant stakeholders supplemented the CM findings. Results The final concept map contained six clusters of ideas. Within the clusters, there was a recurring theme that cancer-affected people value accessible and long-term psychosocial support (PSS). The intended emotional, social and practical needs identified in a previous design process seem to have been addressed and appreciated by Kraftens Hus visitors. Conclusion Kraftens Hus is an example of a new patient-led social innovation based on a life-event perspective and integration of resources from different sectors in society. By focusing on life, not the disease, the care continuum expands, and long-term PSS is provided alongside cancer treatment. The evaluation confirms that PSS should focus on health and well-being in the broadest sense.
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