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1.
  • Anttila, Sten, et al. (author)
  • Housing programs and case management for reducing homelessness and increasing residential stability for homeless people
  • Other publication (other academic/artistic)abstract
    • The Universal Declaration of Human Rights (Article 25) states that everyone has a right to housing. Yet according to the UNHCR there are approximately 100 million homeless people worldwide. Homelessness has many negative detrimental consequences on an individual as well as on a societal level. The condition of homeless seriously affects well-being and health in general and may contribute to mental illness in particular. Once homeless, people tend to be deprived of economic, social and psychological resources that are necessary in order to get a new accommodation. If this happens the resources of some clients may be too poor and few to prevent future evictions.Case management is a collaborative process, including assessment, planning, facilitation and advocacy for options and services, intended to make sure that the client’s needs are met. Intensive case management, including assertive community treatment, is intended to ensure that the client receives sufficient services, support and treatment when and where it is needed. In this way intensive case management (case load <1:15, 24-7 availability, and the combined competence of a multidisciplinary team), may help homeless people to obtain accommodation, and once housed avoid eviction.Housing programs are more or less based on housing philosophies. According to one philosophy stable and independent housing is needed for the client to become treatment ready. Housing should neither be contingent on sobriety nor on treatment compliance, but only on rules that apply for ordinary tenants. In other words housing is parallel to and not integrated with treatment, or with other services. An alternative philosophy is based on the assumption that some clients (possibly those with a bio-chemical dependence on drugs) may need a transitional period of sobriety and treatment compliance, before they can live independently in their own apartments. Without this transitional phase the assumption is that they will soon face eviction, and return to homelessness. According to this philosophy housing is integrated with treatment. By combining housing and case management within the framework of a comprehensive program, the work to find accommodation and to prevent eviction is assumed to be facilitated.The objective was to assess the effectiveness of 9 possible combinations of housing programs and case management as means to increase residential stability and reduce homelessness. The possible combinations were based on three housing alternatives and three case management alternatives which entails 36 possible comparisons:Housing parallel to treatment, housing integrated with treatment, and no housingIntensive of case management (ICM and ACT), ordinary case management, and no case management.Electronic databases were searched by means of terms referring to population, intervention, and design (Campbell Library, Cochrane Library (including CENTRAL), PubMed, PsycINFO, Sociological Abstracts, Social Services Abstracts, ASSIA, CINAHL, ERIC, and Dissertation Abstracts International). Reference lists were hand searched, and international experts were contacted. For a study to be included the following criteria had to be met:Population: homeless or at risk of becoming homelessIntervention: housing programs with case management, housing programs without case management, or case management without a housing programComparison: any of the alternative interventions above, plus usual care, waiting lists, or no interventionOutcome: residential stability or homelessnessDesign: randomized controlled trials or observational studies (with comparison groups matched at baseline or on propensity scores)Pairs of reviewers independently screened abstracts, and read full text documents. Data was extracted and coded by two reviewers. Two reviewers also assessed risks of bias for each study and their outcomes. In several cases data had to be recalculated in order to fit the format necessary for meta-analysis based on Review Manager.After screening 1, 764 abstracts and assessing 276 documents in full text, 32 unique studies were included (26 randomized controlled trials and 6 observational studies) in this review. All studies were from the USA except three, which were undertaken in the UK (two randomized controlled trials and one observational study). The number of included studies is thus relatively high, but the body of evidence is poor, as most studies are characterized by high risk of aggregated bias (11 studies) or moderate risk of aggregated bias (15 studies and 19 comparisons). Only 6 studies were classified as having low aggregated risk of bias. In addition, most studies are rather old. The median publication year is 1998. There are 16 studies published between 2000 and 2010 (11 randomized trials and five observational studies). Since 2005 only five included studies were published (three randomized trials and two observational studies). The results can be summarized in seven points:a)     Housing parallel to treatment is not superior to housing integrated with treatment or vice versa.b)     Empirical results indicate that parallel housing as such is superior to no housing.c)     There is not sufficient evidence to conclude that integrated housing as such is superior to no housing.d)     Empirical results indicate that intensive case management as such (ACT and ICM) is superior to usual care (such as drop in centers, outpatient treatment, ordinary after care, etc.).e)     Empirical results indicate that parallel housing in combination with intensive case management (ACT and ICM) is superior to usual care (such as drop in centers, outpatient treatment, ordinary after care, etc.).f)There is not sufficient evidence to conclude that integrated housing in combination with intensive case management (ACT and ICM) is superior to usual care (such as drop in centers, outpatient treatment, ordinary after care, etc.) Conclusion: Parallel housing, in combination with intensive case management (ICM and ACT), improves housing outcomes in comparison to usual care (outpatient treatment, drop in centers, ordinary after care, brokered case management, etc.). Intensive case management as well as housing contributes to this effect. However, evidence is not decisive when parallel housing is compared to integrated housing. Empirical results are highly contradictory. Studies focusing on specific subgroups such as women and persons with severe substance abuse problems are required.
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2.
  • Harding, Andrew J. E., et al. (author)
  • Developing a core outcome set for people living with dementia at home in their neighbourhoods and communities: study protocol for use in the evaluation of non-pharmacological community-based health and social care interventions
  • 2018
  • In: Trials. - : BIOMED CENTRAL LTD. - 1745-6215. ; 19
  • Journal article (peer-reviewed)abstract
    • Background: The key aim of the study is to establish an agreed standardised core outcome set (COS) for use when evaluating non-pharmacological health and social care interventions for people living at home with dementia. Methods/design: Drawing on the guidance and approaches of the Core Outcome Measures in Effectiveness Trials (COMET), this study uses a four-phase mixed-methods design: 1 Focus groups and interviews with key stakeholder groups (people living with dementia, care partners, relevant health and social care professionals, researchers and policymakers) and a review of the literature will be undertaken to build a long list of outcomes. 2 Two rounds of Delphi surveys will be used with key stakeholder groups. Statements for the Delphi surveys and participation processes will be developed and informed through substantial member involvement with people living with dementia and care partners. A consensus meeting will be convened with key participant groups to discuss the key findings and finalise the COS. 3 A systematic literature review will be undertaken to assess the properties of tools and instruments to assess components of the COS. Measurement properties, validity and reliability will be assessed using the Consensus-based Standards for the Selection of Health Measurement (COSMIN) and COMET guidance. 4 A stated preference survey will elicit the preferences of key stakeholders for the outcomes identified as important to measure in the COS. Discussion: To the best of our knowledge, this study is the first to use a modified Delphi process to involve people living with dementia as a participant group. Though the study is confined to collecting data in the United Kingdom, use of the COS by researchers will enhance the comparability of studies evaluating non-pharmacological and community-based interventions.
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3.
  • Harding, Andrew J. E., et al. (author)
  • What is important to people living with dementia?: the "long-list of outcome items in the development of a core outcome set for use in the evaluation of non-pharmacological community-based health and social care interventions
  • 2019
  • In: BMC Geriatrics. - : BMC. - 1471-2318. ; 19
  • Journal article (peer-reviewed)abstract
    • BackgroundCore outcome sets (COS) prioritise outcomes based on their importance to key stakeholders, reduce reporting bias and increase comparability across studies. The first phase of a COS study is to form a long-list of outcomes. Key stakeholders then decide on their importance. COS reporting is described as suboptimal and this first phase is often under-reported. Our objective was to develop a long-list of outcome items for non-pharmacological interventions for people with dementia living at home.MethodsThree iterative phases were conducted. First, people living with dementia, care partners, health and social care professionals, policymakers and researchers (n=55) took part in interviews or focus groups and were asked which outcomes were important. Second, existing dementia trials were identified from the ALOIS database. 248 of 1009 pharmacological studies met the inclusion criteria. Primary and secondary outcomes were extracted from a 50% random sample (n=124) along with eight key reviews/qualitative papers and 38 policy documents. Third, extracted outcome items were translated onto an existing qualitative framework and mapped into domains. The research team removed areas of duplication and refined the long-list in eight workshops.ResultsOne hundred seventy outcome items were extracted from the qualitative data and literature. The 170 outcome items were consolidated to 54 in four domains (Self-Managing Dementia Symptoms, Quality of Life, Friendly Neighbourhood amp; Home, Independence).ConclusionsThis paper presents a transparent blueprint for long-list development. Though a useful resource in their own right, the 54 outcome items will be distilled further in a modified Delphi survey and consensus meeting to identify core outcomes.
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4.
  • Lasrado, Reena, et al. (author)
  • Designing and Implementing a Home-Based Couple Management Guide for Couples Where One Partner has Dementia (DemPower) : Protocol for a Nonrandomized Feasibility Trial.
  • 2018
  • In: JMIR Research Protocols. - : JMIR Publications Inc.. - 1929-0748. ; 7:8
  • Journal article (peer-reviewed)abstract
    • BACKGROUND: The increasing rate of dementia and high health and social care costs call for effective measures to improve public health and enhance the wellbeing of people living with dementia and their relational networks. Most postdiagnostic services focus on the condition and the person with dementia with limited attention to the caring spouse or partner. The key focus of the study is to develop a guide for couples where one partner has a diagnosis of dementia. This couple management guide is delivered in the form of an app, DemPower.OBJECTIVE: This study aims to investigate the feasibility and acceptability of DemPower and to assess the criteria for a full-integrated clinical and economic randomized control trial. DemPower couple management app will be introduced to couples wherein one partner has dementia.METHODS: The study will recruit 25 couples in the United Kingdom and 25 couples in Sweden. Couples will be given 3 months to engage with the app, and the amount of time taken to complete the guide (can be <3 or >3 months) will be reviewed. A set of outcome measures will be obtained at baseline and postintervention stages.RESULTS: The proposed study is at the recruitment phase. The DemPower app is being introduced to couples from consultation groups at a pretrial phase for identifying any bugs and exploring if any navigation challenges exist. The feasibility testing will begin in April 2018.CONCLUSIONS: The study will determine how much support couples need to engage with DemPower and whether or not they make use of it in their everyday lives. If there is support for app use, a future study will assess whether it is superior to "usual care."TRIAL REGISTRATION: International Standard Randomized Controlled Trial Number (ISRCTN): 10122979; http://www.isrctn.com/ISRCTN10122979 (Archived by WebCite at http://www.webcitation.org/70rB1iWYI).REGISTERED REPORT IDENTIFIER: RR1-10.2196/9087.
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