| 1. |
- Persson, Hanna C, 1979, et al.
(author)
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Consequences and coping strategies six years after a subarachnoid hemorrhage - A qualitative study
- 2017
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In: Plos One. - : Public Library of Science (PLoS). - 1932-6203. ; 12:8
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Journal article (peer-reviewed)abstract
- Background After a subarachnoid haemorrhage (SAH), continuing impairment is common and may impact the person's life. There is a lack of knowledge regarding long-term consequences experienced. To explore experiences of the care and rehabilitation as well as the consequences and strategies used to cope with everyday life six years post SAH. An explorative interview study with a qualitative design. Individual interviews, with open ended questions, using an interview guide were performed with sixteen participants (mean age 63, 8 men, 8 women) six years post SAH. Data was analyzed according to a descriptive thematic analysis, and themes were discovered inductively. Two major themes from the analysis, both including four sub-themes, were identified; these themes were consequences of the SAH and coping strategies. Participants were grateful to have survived the SAH and most were satisfied with their acute medical care. If discharged directly from the neurosurgical unit participants can feel abandoned. In contrast, participants who were referred to a rehabilitation clinic felt supported and informed. Cognitive problems, such as impaired memory and mental fatigue, were reported as still present six years post SAH. Coping strategies were; receiving support from family, society, employers, or technical equipment. At work, talking to colleagues and to taking breaks were common. Participants described hiding their symptoms from employers and friends, as well as trying to continue doing tasks in the same manner as prior to the SAH. If this was not possible, some refrained from doing these tasks. They went through a mourning process, fear, and worries. Participants reported several long-term consequences which impacted on their daily lives post SAH, and different coping strategies were used to cope with these problems. Participants reported lack of awareness regarding the consequences of SAH and stressed the importance of structured multidisciplinary follow-ups, which mostly is missing.
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| 2. |
- Törnbom, Karin, 1982, et al.
(author)
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Experiences of participation in a Swedish society among adults with cerebral palsy or spina bifida: involvement and challenges.
- 2013
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In: Journal of social work in disability & rehabilitation. - 1536-7118. ; 12:4, s. 256-71
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Journal article (peer-reviewed)abstract
- Participation in society is vital to mental health and is beneficial to individuals and society. The goal of this study was to provide insight into how people with cerebral palsy and spina bifida view their experiences of participation and to examine factors that might influence this issue. The results show that participants emphasized the importance of being accepted and treated equally. Living independently and being able to play an active and leading role in their lives was also essential. Participation was described as a process of interaction between a person and society, with mutual responsibility in respect to integration.
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| 3. |
- Törnbom, Karin, 1982, et al.
(author)
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Swedish Citizens with Cerebral Palsy or Spina Bifida – Perceived Experiences of Social Life and Employment
- 2017
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In: Review of disability studies: an international journal. - 1552-9215. ; 13:1, s. 47-63
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Journal article (peer-reviewed)abstract
- This article offers insight into the ways in which people with cerebral palsy and spina bifida reflect upon their experiences of participation in relation to social life and employment. The qualitative method was used to explore experiences of participation among adults with CP or SB, using semi structured interviews. Participants expressed a desire to make a contribution to the labor market, to have sustainable relationships and to be accepted by others.
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| 4. |
- Björkelund, Cecilia, 1948, et al.
(author)
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Rehabilitation cooperation and person-centred dialogue meeting for patients sick-listed for common mental disorders: 12 months follow-up of sick leave days, symptoms of depression, anxiety, stress and work ability - a pragmatic cluster randomised controlled trial from the CO-WORK-CARE project.
- 2023
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In: BMJ open. - 2044-6055. ; 13:6
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Journal article (peer-reviewed)abstract
- To study whether early and enhanced cooperation within the primary care centres (PCC) combined with workplace cooperation via a person-centred employer dialogue meeting can reduce days on sick leave compared with usual care manager contact for patients on sick leave because of common mental disorders (CMD). Secondary aim: to study lapse of CMD symptoms, perceived Work Ability Index (WAI) and quality of life (QoL) during 12 months.Pragmatic cluster randomised controlled trial, randomisation at PCC level.28 PCCs in Region Västra Götaland, Sweden, with care manager organisation.30 PCCs were invited, 28 (93%) accepted invitation (14 intervention, 14 control) and recruited 341 patients newly sick-listed because of CMD (n=185 at intervention, n=156 at control PCCs).Complex intervention consisting of (1) early cooperation among general practitioner (GP), care manager and a rehabilitation coordinator, plus (2) a person-centred dialogue meeting between patient and employer within 3 months.regular contact with care manager.12 months net and gross number of sick leave days at group level.12 months depression, anxiety, stress symptoms, perceived WAI and QoL (EuroQoL-5 Dimensional, EQ-5D).No significant differences were found between intervention and control groups concerning days of sick leave (intervention net days of sick leave mean 102.48 (SE 13.76) vs control 96.29 (SE 12.38) p=0.73), return to work (HR 0.881, 95%CI 0.688 to 1.128), or CMD symptoms, WAI or EQ-5D after 12 months.It is not possible to speed up CMD patients' return to work or to reduce sick leave time by early and enhanced coordination among GP, care manager and a rehabilitation coordinator, combined with early workplace contact over and above what 'usual' care manager contact during 3 months provides.NCT03250026.
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| 5. |
- Danielsson, Anna, 1957, et al.
(author)
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Experience of treadmill walking and audio-visual feedback after brain injury
- 2016
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In: ACPIN-INPA International Neurophysiotherapy Conference, London UK, 17-18 March 2016.
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Conference paper (other academic/artistic)abstract
- Background People with stroke often have a low physical activity level and finding ways to motivate people to become more physically active is highly important. Using virtual reality in rehabilitation has shown positive effects, however knowledge about patients’ perceptions of this type of training is needed. Purpose To explore mental and physical experiences of treadmill walking and audio – visual (AV) feedback after brain injury. Method Three woman and seven men (median age 51) with stroke/other brain injury were interviewed after walking on a treadmill with and without AV- feedback mediated as follows: the speed of a realistic movie projecting a walking path, with nature sounds and step rhythm sounds, (through earphones) were directed by software connected to movement sensors donned to the legs. Semi structured interviews were audio recorded, transcribed and analysed using qualitative content analysis (QCA). Interviews were read by both authors and a coding scheme based on key concepts related to the research questions was developed. All codes were retrieved in the interviews and grouped into categories. To catch the latent meaning, categories were formulated into themes. Results Themes comprised positive and negative experiences. Participants experienced treadmill walking as enjoyable. The AV- feedback was mainly considered as pleasurable and exiting. Patients with mental weariness were ambivalent and found the AV-feedback more or less disturbing. Therefore, they considered the experience to be too exhausting in this early stage of rehabilitation. No fall incidents occurred but patients with balance problems using hand support reported tiredness in the hand. Conclusions In general, participants liked and found this inexpensive AV –feedback motivating and more enjoyable than ordinary treadmill walking. However, to avoid perceptional overload the amount of stimuli provided should be adjusted to the each individual. Further studies are needed to investigate if AV-feedback can be used to increase exercise intensity.
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| 6. |
- Danielsson, Anna, 1957, et al.
(author)
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Experiences of treadmill walking and audio-visual feedback after stroke – an interview study
- 2017
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In: Nordic Stroke 2017. 19th Nordic Congress on Cerebrovascular Diseases, August 23-25, Aarhus, DK.
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Conference paper (other academic/artistic)abstract
- Introduction: Walking training after stroke is highly important and a high intensity is recommended. As in-patients rarely reach the recommended physical activity level, finding ways to motivate exercise is therefore a key issue in rehabilitation. Offering a variety of training methods e.g by using virtual reality, could be one option to increase exercise intensity. The purpose of the study was to explore how patients’ with stroke experience treadmill walking with a prototype for audio – visual (AV) feedback. Methods: Three woman and five men, with a median age of 52, undergoing walking training, participated during inpatient rehabilitation 2-10 months after stroke. They walked for two sessions of up to 30 minutes on a treadmill at self-selected speed, with and without AV- feedback, respectively. The AV-feedback was mediated through a realistic movie of a walking path displayed on a TV-screen. Movement sensors donned to the legs connected to software, directed the speed of the movie. In addition, nature sounds and the individual’s step rhythm were mediated through headphones. After the walking session the participants took part in an individual interview regarding their experience walking with and without the AV-feedback. Semi structured interviews were audio recorded, transcribed and analysed using qualitative content analysis. Interviews were read by both authors and a coding scheme based on key concepts related to the research questions was developed. All codes were retrieved in the interviews, grouped into categories and finally formulated into themes. Results: Three main themes; positive, negative and ambivalent experiences, were expressed. The AV- feedback was mainly considered as enjoyable, engaging and made walking on the treadmill more interesting than without. Some participants experienced dizziness and those sensitive to mental overload found parts of the feedback more or less wearing. No fall incidences occurred but patients with more pronounced balance problems reported physical fatigue in their supporting hand. Conclusions: In general, participants liked and found this inexpensive AV –feedback motivating and enjoyable. Yet, the individual’s capacity has to be taken into account when adding perceptional stimuli during treadmill walking. The additional value of virtual feedback aiming to increase exercise intensity ought to be further explored.
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| 7. |
- Danielsson, Anna, 1957, et al.
(author)
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VIEWS AND EXPERIENCES OF PHYSICAL TRAINING IN PEOPLE WITH STROKE OR OTHER BRAIN INJURY
- 2016
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In: 20th European Congress of Physical and Rehabilitation Medicine, Estoril Portugal 23-28 April 2016.
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Conference paper (other academic/artistic)abstract
- Introduction Physical activity after stroke promotes neuroplasticity, physical functions, daily activities, health and well-being. People with stroke are shown to be less active than healthy controls which is a risk for decline in function as well as getting a new cardiovascular event. To improve guidance further knowledge regarding attitudes and factors significant for physical activity is needed. Purpose To explore participants’ experiences of physical activity after stroke or other brain injury. Method Ten semi structured interviews were analysed, using qualitative content analysis. Interviews were read several times by the authors and a coding scheme based on key concepts related to the research questions was developed. All codes retrieved from the interviews were grouped into categories. To catch the latent meaning, categories were formulated into themes. Three woman and seven men with a median age of 51 years undergoing rehabilitation after stroke (n=7) or other brain injury (n=3) were interviewed. Results Three themes were identified: 1.The participants had mixed experiences and views on the significance of physical activity prior to injury. 2. After injury they experienced a new situation and saw exercise as a duty. Physical activity after injury was limited to short walks a few times a week. 3.Factors of importance for executing physical activity: Advice and support from a physiotherapist or other professionals were highlighted as very important. Support from significant others, fellow patients and to see progression towards set goals contributed as motivating factors. Physical and mental factors, especially balance and walking impairments as well as fatigue and lack of motivation were perceived as hindering. Discussion and Conclusions After injury, physical activity was perceived as filled with demands, a necessary evil to achieve as good function as possible. Dependence on security in the training situation, support and push from professionals and relatives were evident.
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| 8. |
- Engwall, Marie, 1964, et al.
(author)
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Recovering from COVID-19 - A Process Characterised by Uncertainty: A Qualitative study.
- 2022
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In: Journal of rehabilitation medicine. - : Medical Journals Sweden AB. - 1651-2081 .- 1650-1977. ; 54
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Journal article (peer-reviewed)abstract
- To obtain a deeper understanding of the lived experiences of patients with COVID-19, the recovery process and consequences for everyday life 6 months after hospital discharge.An explorative qualitative study using individual interviews.A purposive sampling was applied to recruit persons who had received inpatient hospital care, were discharged approximately 6 months previously, were of working age and had persistent self-reported symptoms at a 3-month follow-up appointment.Semi-structured interviews were conducted with 15 participants (10 men, 5 women), which were then transcribed and analysed with inductive thematic analysis.Three themes were identified: "Status of recovery - two steps forward, one step back", "Remaining symptoms caused limitations in everyday life" and "Strategies for recovery". Participants indicated the recovery process through 6 months after discharge was a challenging road, often involving setbacks. A wide range of persistent, fluctuating, or new symptoms negatively impacted many areas of daily life, with fatigue and lack of energy being especially prominent. Participants used a variety of strategies to cope and recover.This study increases our knowledge of the lived experiences of COVID-19 based individual experiences. Unexpected symptoms in the recovery process were described and not always possible to forecast.
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| 9. |
- Larsson, Alexandra C, 1986, et al.
(author)
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Figuring Out Life After Covid-19 : a Qualitative Study From Sweden
- 2023
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In: Journal of Rehabilitation Medicine. - 1650-1977 .- 1651-2081. ; 55
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Journal article (peer-reviewed)abstract
- OBJECTIVE: To obtain a deeper understanding of the daily life experiences of working aged people during the year following hospitalization due to SARS-CoV-2 (COVID-19), with a focus on function-ing in daily life and return to work.DESIGN: An explorative qualitative study using individual interviews.SUBJECTS: A purposive sample was selected of persons who had received inpatient hospital care, had been discharged approximately 1 year previously and were of working age.METHODS: Semi-structured interviews were conducted with 11 participants (9 men, 2 women). The interviews were transcribed and analysed with inductive thematic analysis.RESULTS: Four themes were identified. Navigating health, with or without support from healthcare, was described as challenging when managing consequences of COVID-19. Participants struggled with a lack of energy that interfered with daily life. It was a trial-and-error process trying to use familiar strategies in new ways to manage. The return to work process was facilitated by own strategies and support.CONCLUSION: This study contributes increased knowledge of everyday life experiences of people 1 year following hospitalization due to COVID-19. The lack of energy and a struggle to manage health while navigating the healthcare system emphasize the importance of strengthening personal and organizational health literacy to facilitate the recovery process after severe COVID-19.
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| 10. |
- Löfgren, Märit, 1977, et al.
(author)
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Professionals' experiences of what affects health outcomes in the sick leave and rehabilitation process-A qualitative study from primary care level.
- 2024
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In: PLOS ONE. - 1932-6203. ; 19:7
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Journal article (peer-reviewed)abstract
- To explore frontline employees' experiences of how to create a purposeful sick leave and rehabilitation process (SRP) with the best interest of patients' long-term health in focus.Qualitative design based on focus group interviews in a primary care context in Region Västra Götaland, Sweden. Strategically selected professionals from different SRP organizations discussed sick leave outcomes and the rehabilitation process. Analysis was performed with Systematic text condensation.General practitioners (n = 6), rehabilitation coordinators and/or healthcare professionals from primary healthcare (n = 13), caseworkers from the Social Insurance Agency, the Employment Agency, and Social Services (n = 12).The outcome of the SRP was described to depend upon the extent to which the process meets patients' bio-psycho-social needs. Aspects considered crucial were: 1) early bio-psycho-social assessments, including medical specialist consultations when needed, 2) long-term realistic planning of sick leave and rehabilitation alongside medical treatment, 3) access to a wide range of early rehabilitative and supportive interventions, including situation-based, non-medical practical problem solving, and 4) trusting relationships over time for all involved professions and roles to maximize process quality and person-centeredness. A gap between the desired scope of the SRP and existing guidelines was identified.Interviewees perceived that successful outcomes from the sick leave and rehabilitation process in a primary care context depend on consensus, person-centeredness, and relationship continuity for all involved professions. An extended process scope and relationship continuity for all involved professionals were suggested to improve process outcomes.
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