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- Bala, Sidona Valentina, et al.
(author)
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Living with persistent rheumatoid arthritis : A BARFOT study
- 2017
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In: Journal of Clinical Nursing. - : Wiley. - 0962-1067 .- 1365-2702. ; 26:17-18, s. 2646-2656
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Journal article (peer-reviewed)abstract
- Aim and objective: To describe and understand the meaning of living with persistent rheumatoid arthritis. Background: A considerable number of patients with rheumatoid arthritis live with an ongoing active and symptomatic illness despite access to potent antirheumatic treatment. There is, however, a lack of knowledge about the meaning of living with this severe long-term illness, defined as persistent rheumatoid arthritis. Design: A descriptive design based on a hermeneutic phenomenological method was used. Methods: Ten adults with persistent rheumatoid arthritis and at least five years disease duration were interviewed. The interviews were analysed according to van Manen's method. Results: Living with persistent rheumatoid arthritis revealed four overall themes: an existence dominated by painful symptoms and treatment, radical changes and limitations in one's life, a continual struggle to cope with one's life and to master the illness, and a dependency on those who are close by and the world around. The lifeworld was affected to a varying extent and in various ways by the illness but also by the dependence on its treatment and care that was not experienced as sufficiently meeting needs in terms of security, access to and coordination of care as well as team and rehabilitation services. Conclusions: Persistent rheumatoid arthritis and its treatment entail a radical effect on the person's life and quality of life. Current ordinary rheumatology care does not seem to meet the individual needs of the person with persistent rheumatoid arthritis in an optimal way. Relevance to clinical practice: A greater knowledge about and understanding of the person who lives with persistent rheumatoid arthritis is important for facilitating the development of care and the relief of suffering. A holistic alternative to conventional clinical practice, such as person-centred care, could be tested as an innovative model of care. Our findings might serve as material for educational and counselling purposes for healthcare professionals.
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- Esbensen, Bente Appel, et al.
(author)
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Being given a cancer diagnosis in old age: A phenomenological study.
- 2008
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In: International Journal of Nursing Studies. - : Elsevier BV. - 1873-491X .- 0020-7489. ; 45:3, s. 393-405
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Journal article (peer-reviewed)abstract
- Objectives The aim of the study was to illuminate the lived experience of being given a cancer diagnosis in old age. Background Little research has been done on the experience of elderly people developing cancer and the impact of the illness on their lives. Such knowledge is needed to support elderly people in dealing with issues arising after cancer is diagnosed. Design A descriptive phenomenological method was used to investigate the phenomenon “the lived experience of being given a cancer diagnosis in old age”. Participants In total, 16 persons (aged 65+, mean age 76, range 68–83) with cancer were interviewed, all referred to the same oncology outpatient clinic in Copenhagen County. Method Open-ended interviews were used to get a clear understanding of the experience of a cancer diagnosis in old age. Giorgi's phenomenological analysis was used. Findings The findings showed that the essential meaning of the lived experience was “Illness as a turning point marking old age”. This main essence was represented overall by three essences: “Illness means losing control”, “Disturbing the family balance” and “Life and death suddenly apparent”. These three essences were manifested through seven constituents: growing old in the context of illness, becoming a patient with cancer, everyday life being controlled by bodily limitations, managing family reactions, becoming conscious about dying and death through illness experience and retaining hope, and enjoying life. Conclusion It is important in clinical practice, to identify the specific meaning the turning point has for an elderly person with cancer, and to understand the particular approach he or she uses to handle the awareness of being old.
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- Esbensen, Bente Appel, et al.
(author)
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Being next of kin to an elderly person with cancer
- 2010
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In: Scandinavian Journal of Caring Sciences. - : Wiley. - 1471-6712 .- 0283-9318. ; 24:4, s. 648-654
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Journal article (peer-reviewed)abstract
- Objectives: The aim of the study was to illuminate the experience of life as next of kin to an elderly person with cancer. Background: Being next of kin to an elderly person with cancer and its impact on everyday life has been sparsely researched. Such understanding is needed to support both the sufferers and their relatives in dealing with issues arising after a cancer diagnosis in old age. Design: A qualitative study was used to illuminate the experience of next of kin of elderly people with cancer. Method: In total, 16 (mean age 61, range 42-80) persons were interviewed. Open-ended interviews were used to get closer to their experiences. Manifest and latent content analysis were used. Findings: Two main categories, Transformations of roles and Changed frames of mind, were identified, as well as four subcategories. The study showed that the cancer activated perceptions in the next of kin about ageing and growing old. The onset of the disease was a turning point, i.e. the disease highlighted that the patient had become old and the combination of this and the disease reinforced the negative image of old age in general. The next of kin found that the diagnosis of cancer was followed by role changes within the family. It awoke feelings of anger and doubt and made the next of kin stop and think about what is really important in life. Conclusion: With the onset of a serious illness, all next of kin are greatly affected in many ways but especially by changes in their roles, without, however, being prepared. The phenomenon of time seems to have significant meaning to the next of kin, although it may be perceived differently from the perspective of healthcare professionals than from that of next of kin.
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| 6. |
- Esbensen, Bente Appel, et al.
(author)
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Dependency in elderly people newly diagnosed with cancer - A mixed-method study
- 2012
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In: European Journal of Oncology Nursing. - : Elsevier BV. - 1462-3889. ; 16:2, s. 137-144
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Journal article (peer-reviewed)abstract
- Purpose: This study, based on data from an empirical investigation, combines quantitative and qualitative approaches in a mixed-method design to explore dependency in elderly people newly diagnosed with cancer. Methods and sample: 101 elderly people newly diagnosed with cancer were included in the quantitative part, with 16 in the qualitative part. A questionnaire concerning quality of life and dependency issues was developed. For the qualitative part, open-ended interviews were conducted to get closer to the experience of dependency. Results: Combining the two methods was seen as complementary. Involvement of the patient in decision-making related to contact with the primary and secondary health-care systems is an important element in reducing the perception of dependency and maintaining the Quality of Life (QoL) of elderly cancer patients. A more precise intervention in this patient population can be achieved by assessing. Activities of Daily Living (ADL) in the elderly. Receiving assistance from children seems to increase perceived dependency and to affect QoL negatively. Conclusions: The results of this mixed-method study indicate that dependency had a negative influence on the elderly with cancer. Being dependent on others was experienced as deterioration. Fatigue represents a significant risk factor for decreased functional ability and is experienced as a reminder of being old and the situation as being out of control. Patients may benefit from health-care professionals acquiring a complete picture of dependency and cancer-related fatigue in the elderly through a systematic assessment, where for example, functional limitations related to fatigue can be determined. (C) 2011 Elsevier Ltd. All rights reserved.
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- Jeppsson, Margareth, et al.
(author)
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How do nurses in palliative care perceive the concept of self-image?
- 2015
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In: Scandinavian Journal of Caring Sciences. - : John Wiley & Sons. - 0283-9318 .- 1471-6712. ; 29:3, s. 454-461
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Journal article (peer-reviewed)abstract
- BACKGROUND: Nursing research indicates that serious illness and impending death influence the individual's self-image. Few studies define what self-image means. Thus it seems to be urgent to explore how nurses in palliative care perceive the concept of self-image, to get a deeper insight into the concept's applicability in palliative care. AIM: To explore how nurses in palliative care perceive the concept of self-image. DESIGN: Qualitative descriptive design. METHOD: In-depth interviews with 17 nurses in palliative care were analysed using phenomenography. The study gained ethical approval. RESULTS: The concept of self-image was perceived as both a familiar and an unfamiliar concept. Four categories of description with a gradually increasing complexity were distinguished: Identity, Self-assessment, Social function and Self-knowledge. They represent the collective understanding of the concept and are illustrated in a 'self-image map'. The identity-category emerged as the most comprehensive one and includes the understanding of 'Who I am' in a multidimensional way. CONCLUSION: The collective understanding of the concept of self-image include multi-dimensional aspects which not always were evident for the individual nurse. Thus, the concept of self-image needs to be more verbalised and reflected on if nurses are to be comfortable with it and adopt it in their caring context. The 'self-image map' can be used in this reflection to expand the understanding of the concept. If the multi-dimensional aspects of the concept self-image could be explored there are improved possibilities to make identity-promoting strategies visible and support person-centred care.
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- Johnsson, Anna, et al.
(author)
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Fysisk aktivitet vid cancersjukdom
- 2011. - 1
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In: Perspektiv på onkologisk vård. - 9789144056487 ; , s. 111-125
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Book chapter (other academic/artistic)
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| 10. |
- Rasmusson, Else-Marie, et al.
(author)
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Women's Wishes and Need for Knowledge Concerning Sexuality and Relationships in Connection with Gynecological Cancer Disease
- 2008
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In: Sexuality and Disability. - : Springer Science and Business Media LLC. - 0146-1044 .- 1573-6717. ; 26:4, s. 207-218
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Journal article (peer-reviewed)abstract
- The purpose of this study was to investigate women's wishes and need for knowledge concerning sexuality and relationships in connection with gynecological cancer. A total of 11 women were interviewed following the completion of their treatment for gynecological cancer. The data was analyzed using latent content analysis. Two main categories were identified: "The absence of knowledge about the body" and "Conversation with sexual relevance." The women wished with their partners present, to be given more in-depth knowledge about their situation given by competent staff who are sensitive to what knowledge is required. Thus, it is important that nurses, who care for women with gynecological cancer, meet each woman's individual needs for knowledge about the effects on her sexuality due to her disease and treatment.
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