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1.	Bonaca, MP, et al. (author) Long-term use of ticagrelor in patients with prior myocardial infarction 2015 In: The New England journal of medicine. - 1533-4406. ; 372:19, s. 1791-1800 Journal article (peer-reviewed)
2.	Hjelmgren, H, et al. (author) Multi-inflammatory syndrome in children (MIS-C) associated with COVID-19: a nursing perspective experience report from a high-income tertiary paediatric hospital context 2023 In: Pediatric rheumatology online journal. - 1546-0096. ; 21:1, s. 5- Journal article (peer-reviewed)
3.	Verme, A., et al. (author) Ready to leave? - Adolescents' and parents' perceptions of transition from paediatric to adult rheumatology care 2024 In: BMC Health Services Research. - : BMC. - 1472-6963. ; 24:1 Journal article (peer-reviewed)abstract BackgroundIn Sweden, approximately 2000 children live with Juvenile Idiopathic Arthritis (JIA). About half of them continue to have an active disease and need to transfer to adult rheumatology care. This study aimed to investigate Swedish adolescents' and parents<acute accent> perceptions of readiness for transition from pediatric to adult rheumatology care.MethodsThe study was a cross-sectional quantitative study. Patients at the pediatric rheumatology clinic at a university hospital in Sweden and members of The Swedish National Organization for Young Rheumatics aged 14-18 and their parents were invited to participate in the study. Data was collected with the Readiness for Transition Questionnaire (RTQ) focusing on adolescents' transition readiness, adolescents' healthcare behaviors and responsibility, and parental involvement. Data were analyzed with descriptive statistics. Comparative analyses were made using non-parametric tests with significance levels of 0.05 as well as factor analyses and logistic regression.ResultsThere were 106 adolescents (85 girls, 20 boys) and 96 parents answering the RTQ. The analysis revealed that many adolescents and parents experienced that the adolescents were ill-prepared to take over responsibility for several healthcare behaviors, such as booking specialty care appointments, calling to renew prescriptions and communicating with medical staff on phone and to transfer to adult care. Parents and adolescents alike stated that it was especially difficult for the adolescents to take responsibility for healthcare behaviors meaning that the adolescents had to have direct interaction with the healthcare professionals (HCPs) at the paediatric rheumatology clinic, for example to renew prescriptions. It was evident that the adolescents who perceived they were ready to take responsibility for the aspects related to direct interaction with HCPs were more overall ready to be transferred to adult care.ConclusionAdolescents need more support to feel prepared to transfer to adult care. With the results from this study, we can develop, customize, and optimize transitional care programs in Sweden for adolescents.

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Type of publication: journal article (3)

Type of content: peer-reviewed (3)

Author/Editor: Chen, L (1); Berger, N. (1); Chen, Y. (1); Cole, B. (1); Garcia, C. (1); Hu, D. (1); show more...; Johansson, P. (1); Lee, H. (1); Li, S. (1); Li, Y. (1); Liu, Y. (1); Schmidt, E. (1); White, A. (1); Yamamoto, K. (1); Zhang, Z. (1); Zhu, J. (1); Zimmermann, S. (1); Berglund, E. (1); Okada, S. (1); Gupta, A. (1); Hill, D. (1); Sasaki, T. (1); Wright, D. (1); Nelson, S. (1); Omland, T. (1); Andersson, K (1); Park, J (1); Taylor, D (1); Choi, S. (1); Johnson, M. (1); Schmidt, A. (1); Savage, C. (1); Bose, S. (1); Diaz, R. (1); Russo, G. (1); Yoon, J. (1); Da Silva, R. (1); Mazzoni, A. (1); Black, M (1); Aggarwal, R. (1); Costa, M. (1); Lee, A. (1); Medina, J (1); Zhou, H. (1); Griffin, S. (1); Dellborg, M (1); Gullestad, L (1); Hall, C (1); Alexander, J (1); Edwards, M. (1); show less...

University: Karolinska Institutet (2); Linköping University (1)

Language: English (3)

Research subject (UKÄ/SCB): Social Sciences (1)

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