| 1. |
- Jakobsson, Liselotte
(author)
-
Erfarenheter från en familjecentral
- 2013
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In: Aktionsforskning i vård och omsorg. - Malmö : Gleerups Utbildning AB. ; , s. 149-156
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Book chapter (other academic/artistic)
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| 2. |
- Jakobsson, Liselotte
(author)
-
Erfarenheter från ett FoU-nätverk
- 2013
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In: Aktionsforskning i vård och omsorg. - Malmö : Gleerups Utbildning AB. ; , s. 165-172
-
Book chapter (other academic/artistic)
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| 3. |
- Jakobsson, Liselotte
(author)
-
Erfarenheter från ett kommunalt projekt
- 2013
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In: Aktionsforskning i vård och omsorg. - Malmö : Gleerups Utbildning AB. ; , s. 157-164
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Book chapter (other academic/artistic)
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| 4. |
- Jakobsson, Liselotte, et al.
(author)
-
Implementering
- 2013
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In: Aktionsforskning i vård och omsorg. - Malmö : Gleerups Utbildning AB. ; , s. 111-124
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Book chapter (other academic/artistic)
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| 5. |
- Jakobsson, Liselotte
(author)
-
Patientdelaktighet
- 2013
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In: Aktionsforskning i vård och omsorg. - Malmö : Gleerups Utbildning AB. ; , s. 59-66
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Book chapter (other academic/artistic)
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| 6. |
- Persson, Lena, et al.
(author)
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Framväxt av en forskningsplattform
- 2013
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In: Aktionsforskning i vård och omsorg. - Malmö : Gleerups Utbildning AB. ; , s. 173-180
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Book chapter (other academic/artistic)
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| 7. |
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Aktionsforskning i vård och omsorg : tillämpning och teori
- 2013
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Editorial collection (other academic/artistic)abstract
- Aktionsforskning innebär ett möte mellan forskarens och praktikerns kunskapsfält. Det är genom deras samverkan som aktionsforskning sker. Praktiker kan sakna möjligheter och metoder för att synliggöra vardagsarbetet, medan forskare kan sakna att ingå i ett arbetslag och vara en del av en verksamhet. Aktionsforskning förenar praktik med teori och är ett användbart redskap i arbetet med att förändra och förbättra en verksamhet. I den här boken ges flera exempel på hur aktionsforskning har använts inom områden som vård och omsorg, t.ex. på en familjecentral eller vid matdistribution till äldre. Författarna ger en teoretisk introduktion till aktionsforskning och visar hur forskningsresultat kan implementeras i den dagliga verksamheten. Boken innehåller också reflektionsfrågor som utmanar läsaren att uppmärksamma både sitt eget arbete och verksamheten i stort och på så sätt hitta möjligheter till förbättring.Aktionsforskning i vård och omsorg. Tillämpning och teori vänder sig till studerande på avancerad nivå och till yrkesverksamma inom vård, omvårdnad, socialt arbete och social omsorg.
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| 8. |
-
Aktionsforskning i vård och omsorg : tillämpning och teori
- 2013
-
Editorial collection (other academic/artistic)abstract
- Aktionsforskning innebär ett möte mellan forskarens och praktikerns kunskapsfält. Det är genom deras samverkan som aktionsforskning sker. Praktiker kan sakna möjligheter och metoder för att synliggöra vardagsarbetet, medan forskare kan sakna att ingå i ett arbetslag och vara en del av en verksamhet. Aktionsforskning förenar praktik med teori och är ett användbart redskap i arbetet med att förändra och förbättra en verksamhet. I den här boken ges flera exempel på hur aktionsforskning har använts inom områden som vård och omsorg, t.ex. på en familjecentral eller vid matdistribution till äldre. Författarna ger en teoretisk introduktion till aktionsforskning och visar hur forskningsresultat kan implementeras i den dagliga verksamheten. Boken innehåller också reflektionsfrågor som utmanar läsaren att uppmärksamma både sitt eget arbete och verksamheten i stort och på så sätt hitta möjligheter till förbättring. Aktionsforskning i vård och omsorg. Tillämpning och teori vänder sig till studerande på avancerad nivå och till yrkesverksamma inom vård, omvårdnad, socialt arbete och social omsorg.
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| 9. |
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| 10. |
- Augustinsson, Sören
(author)
-
Utveckling av generell kunskap
- 2013
-
In: Aktionsforskning i vård och omsorg. - Malmö : Gleerups Utbildning AB. ; , s. 125-140
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Book chapter (other academic/artistic)
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| 11. |
- Dagner, Viveka, et al.
(author)
-
Prescribed physical activity maintenance following exercise based cardiac rehabilitation : factors predicting low physical activity
- 2019
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In: European Journal of Cardiovascular Nursing. - 1474-5151 .- 1873-1953. ; 18:1, s. 21-27
-
Journal article (peer-reviewed)abstract
- BACKGROUND: Physical activity is important to reduce mortality, morbidity and risk factors in patients with coronary heart disease. This report evaluates to what extent patients are still physically active following an exercise-based cardiac rehabilitation programme 12-14 months post-myocardial infarction and factors predicting why not.METHODS: Data from the National Quality Registry Swedeheart with post-myocardial infarction patients ( n=368) admitted from July 2012 to November 2014 were collected with outcomes of physical activity after 12-14 months. Baseline data included demographics, clinical variables, participation in exercise programmes, prescribed physical activity, health-related quality of life and self-reported health (EQ-5D-3L/EQ-VAS). A direct binary logistic regression analysis was used to identify indicators of low physical activity.RESULTS: Physical activity frequency per week (PA/week) was low, i.e. zero to three times, in older patients over 64 years ( P=0.00) and in those having problems with pain/discomfort (138 PA/week vs. 195) ( P=0.01), problems with mobility (60 PA/week vs.273) ( P=0.04) and anxiety/depression (128 PA/week vs. 205) ( P=0.04).CONCLUSION: Indicators predicting low physical activity can be used targeting improved post-myocardial infarction care outlining person-centred rehabilitation programmes and specialist nursing-led programmes.
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| 12. |
- Dagner, Viveka, et al.
(author)
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Prescribed physical activity maintenance following exercise based cardiac rehabilitation : factors predicting low physical activity
- 2019
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In: European Journal of Cardiovascular Nursing. - : SAGE Publications Inc.. - 1474-5151 .- 1873-1953. ; 18:1, s. 21-27
-
Journal article (peer-reviewed)abstract
- BACKGROUND: Physical activity is important to reduce mortality, morbidity and risk factors in patients with coronary heart disease. This report evaluates to what extent patients are still physically active following an exercise-based cardiac rehabilitation programme 12-14 months post-myocardial infarction and factors predicting why not. METHODS: Data from the National Quality Registry Swedeheart with post-myocardial infarction patients ( n=368) admitted from July 2012 to November 2014 were collected with outcomes of physical activity after 12-14 months. Baseline data included demographics, clinical variables, participation in exercise programmes, prescribed physical activity, health-related quality of life and self-reported health (EQ-5D-3L/EQ-VAS). A direct binary logistic regression analysis was used to identify indicators of low physical activity. RESULTS: Physical activity frequency per week (PA/week) was low, i.e. zero to three times, in older patients over 64 years ( P=0.00) and in those having problems with pain/discomfort (138 PA/week vs. 195) ( P=0.01), problems with mobility (60 PA/week vs.273) ( P=0.04) and anxiety/depression (128 PA/week vs. 205) ( P=0.04). CONCLUSION: Indicators predicting low physical activity can be used targeting improved post-myocardial infarction care outlining person-centred rehabilitation programmes and specialist nursing-led programmes.
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| 13. |
- Dahlbo, Madeleine, et al.
(author)
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Keeping the child in focus while supporting the family : Swedish child healthcare nurses experiences of encountering families where child maltreatment is present or suspected
- 2017
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In: Journal of Child Health Care. - : SAGE Publications. - 1367-4935 .- 1741-2889. ; 21:1, s. 103-111
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Journal article (peer-reviewed)abstract
- Child maltreatment can lead to acute and long-term consequences, and it is important that at-risk children are identified early. Child healthcare (CHC) nurses in Sweden are in a position to identify child maltreatment, as they follow children and their parents from the child’s birth to school age. Therefore, the aim was to describe CHC nurses’ experiences when encountering families in which child maltreatment was identified or suspected. Individual open interviews with eight CHC nurses were performed and analysed using a qualitative content analysis. Findings revealed that keeping the child in focus, while supporting the family was essential for the nurses. This family-centred approach was assumed to benefit the child’s interests. Meeting families where child maltreatment was identified or suspected influenced the nurses, emotionally in different ways. Nevertheless, it was important to keep an open mind and communication build on honesty. Furthermore, the nurses requested professional supervision in order to help them learn from the situation ahead of the next time. This knowledge about CHC nurses’ experiences may form a basis for the development of interventions that aim to support the CHC nurses in their professional role, and thereby improve support to children and parents in the future.
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| 14. |
- Edberg, Anna-Karin
(author)
-
Forskarens utmaningar
- 2013
-
In: Aktionsforskning i vård och omsorg. - Malmö : Gleerups Utbildning AB. ; , s. 141-148
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Book chapter (other academic/artistic)
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| 15. |
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| 16. |
- Ekman, Hanna, et al.
(author)
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A cross-sectional study of distress : A cancer response
- 2020
-
In: Nursing Open. - : Wiley. - 2054-1058. ; 7:3, s. 850-856
-
Journal article (peer-reviewed)abstract
- Aim: To describe the experience of distress in people with cancer of working age. Design: A cross-sectional study. Methods: In this cross-sectional study, patients (N = 168) with both ongoing (N = 56) and completed treatment (N = 105) completed the Distress Thermometer and the detailed problem list. Data were analysed by descriptive and analytical statistics. Results: A large proportion of patients (29%) continued to experience high distress (>3 according to the Distress Thermometer) even after treatment was completed. Patients experienced several problems after treatment had ended such as fatigue (44%), sleep problems (34%), worries (31%), pain (31%), tingling in hands and feet (31%) and problems with memory/concentration (30%). Patients with financial/insurance problems had significantly higher distress than those who did not have these problems.
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| 17. |
- Ericsson, Ulf
(author)
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Projekt på villovägar
- 2013
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In: Aktionsforskning i vård och omsorg. - Malmö : Gleerups Utbildning AB. ; , s. 67-82
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Book chapter (other academic/artistic)
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| 18. |
- Garmy, Pernilla, 1973-, et al.
(author)
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Experiences of cancer rehabilitation : a cross-sectional study
- 2018
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In: Journal of Clinical Nursing. - : Wiley-Blackwell. - 0962-1067 .- 1365-2702. ; 27:9-10, s. 2014-2021
-
Journal article (peer-reviewed)abstract
- AIMS AND OBJECTIVES: To investigate the cancer rehabilitation experiences of working-age cancer survivors.BACKGROUND: Cancer survivors have extremely complex needs, spanning physical, vocational, and sexual domains. Although cancer rehabilitation services have been found to eliminate or reduce these strains, these services are often underutilized.DESIGN: A cross-sectional study design was employed.METHODS: A survey of persons over the age of 18 with a cancer diagnosis, enrolled in the Social Insurance Agency in a municipality in southern Sweden (n =168, 68% women) was conducted.RESULTS: Patients who used the cancer rehabilitation service (57%) were generally satisfied with it. Of participants, 26% reported not having received an offer of rehabilitation. Of those who reported that they received information about cancer rehabilitation services, most also reported that they received this information from a healthcare service professional (69%): for example, from the oncology nurse or the oncologist, whereas 20% claimed they received the information from the administrator of the Swedish Social Insurance Agency. A minority of children and family members of patients received support from the healthcare system.CONCLUSIONS: More efforts should be taken to reach patients in need of cancer rehabilitation. Additionally, more attention should be directed toward family members and young children.RELEVANCE TO CLINICAL PRACTICE: More than one in four patients claimed to not have received an offer of cancer rehabilitation, and an even greater number of patients claimed that their spouses and children had never received an offer for this service either. Hence, there is a communication barrier that needs to be overcome. Health providers should be aware that information needs to be repeated several times, and presented both orally and in writing. This article is protected by copyright. All rights reserved.
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| 19. |
- Garmy, Pernilla, et al.
(author)
-
Experiences of cancer rehabilitation : a cross-sectional study
- 2018
-
In: Journal of Clinical Nursing. - : Wiley-Blackwell Publishing Ltd. - 0962-1067 .- 1365-2702. ; 27:9-10, s. 2014-2021
-
Journal article (peer-reviewed)abstract
- AIMS AND OBJECTIVES: To investigate the cancer rehabilitation experiences of working-age cancer survivors. BACKGROUND: Cancer survivors have extremely complex needs, spanning physical, vocational, and sexual domains. Although cancer rehabilitation services have been found to eliminate or reduce these strains, these services are often underutilized. DESIGN: A cross-sectional study design was employed. METHODS: A survey of persons over the age of 18 with a cancer diagnosis, enrolled in the Social Insurance Agency in a municipality in southern Sweden (n =168, 68% women) was conducted. RESULTS: Patients who used the cancer rehabilitation service (57%) were generally satisfied with it. Of participants, 26% reported not having received an offer of rehabilitation. Of those who reported that they received information about cancer rehabilitation services, most also reported that they received this information from a healthcare service professional (69%): for example, from the oncology nurse or the oncologist, whereas 20% claimed they received the information from the administrator of the Swedish Social Insurance Agency. A minority of children and family members of patients received support from the healthcare system. CONCLUSIONS: More efforts should be taken to reach patients in need of cancer rehabilitation. Additionally, more attention should be directed toward family members and young children. RELEVANCE TO CLINICAL PRACTICE: More than one in four patients claimed to not have received an offer of cancer rehabilitation, and an even greater number of patients claimed that their spouses and children had never received an offer for this service either. Hence, there is a communication barrier that needs to be overcome. Health providers should be aware that information needs to be repeated several times, and presented both orally and in writing. This article is protected by copyright. All rights reserved.
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| 20. |
- Garmy, Pernilla, et al.
(author)
-
Utvärdering av ett samverkansprojekt mellan Cancerreahbiliteringsmottagningen och Försäkringskassan i Kristianstad
- 2016
-
Reports (other academic/artistic)abstract
- Cancerrehabilitering ska vara en integrerad del av svensk cancervård och alla patienter med cancer och deras närstående ska få möjlighet till rehabiliteringsinsatser utifrån sina individuella behov. Försäkringskassans uppdrag är att besluta om och betala ut en stor del av de förmåner som ingår i socialförsäkringen. För att förbättra bemötandet av sjukskrivna personer med cancer, utsågs två handläggare på Försäkringskassan att inrikta sig på sjukskrivna personer med cancer. Dessa två handläggare fick extra utbildning i ämnet, och ett samarbete inleddes mellan Försäkringskassan och cancerrehabiliteringsmottagningen på Centralsjukhuset i Kristianstad. Det övergripandesyftet med studien var att undersöka patienters och medarbetares erfarenheter och upplevelser av Försäkringskassans och Cancerrehabiliteringsmottagningens insatser. Utvärderingens form har teoretiskt inspirerats av metoder som beskriver vikten av att forskningspersoner görs delaktiga i forskning och utvärdering och därmed bidrar till kunskapsutveckling. Datainsamlingen bestod av enkäter och fokusgruppsintervjuer och både kvantitativa och kvalitativa analyser har använts. Slutsatsen är att patienterna är övervägande nöjda med bemötandet från såväl handläggarna på Försäkringskassan och på Cancerrehabiliteringsmottagningen, men att mer insatser krävs för att nå alla patienter.
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| 21. |
- Garmy, Pernilla, et al.
(author)
-
Utvärdering av ett samverkansprojekt mellan Cancerreahbiliteringsmottagningen och Försäkringskassan i Kristianstad
- 2016
-
Book (other academic/artistic)abstract
- Cancerrehabilitering ska vara en integrerad del av svensk cancervård och alla patienter med cancer och deras närstående ska få möjlighet till rehabiliteringsinsatser utifrån sina individuella behov. Försäkringskassans uppdrag är att besluta om och betala ut en stor del av de förmåner som ingår i socialförsäkringen. För att förbättra bemötandet av sjukskrivna personer med cancer, utsågs två handläggare på Försäkringskassan att inrikta sig på sjukskrivna personer med cancer. Dessa två handläggare fick extra utbildning i ämnet, och ett samarbete inleddes mellan Försäkringskassan och cancerrehabiliteringsmottagningen på Centralsjukhuset i Kristianstad. Det övergripandesyftet med studien var att undersöka patienters och medarbetares erfarenheter och upplevelser av Försäkringskassans och Cancerrehabiliteringsmottagningens insatser. Utvärderingens form har teoretiskt inspirerats av metoder som beskriver vikten av att forskningspersoner görs delaktiga i forskning och utvärdering och därmed bidrar till kunskapsutveckling. Datainsamlingen bestod av enkäter och fokusgruppsintervjuer och både kvantitativa och kvalitativa analyser har använts. Slutsatsen är att patienterna är övervägande nöjda med bemötandet från såväl handläggarna på Försäkringskassan och på Cancerrehabiliteringsmottagningen, men att mer insatser krävs för att nå alla patienter.
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| 22. |
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| 23. |
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| 24. |
- Jakobsson, Liselotte, 1953-
(author)
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Business as usual
- 2009
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In: Business as usual. - Åbo/Finland.
-
Conference paper (peer-reviewed)
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| 25. |
- Jakobsson, Liselotte
(author)
-
Business as usual
- 2009
-
Conference paper (other academic/artistic)
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| 26. |
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| 27. |
|
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| 28. |
- Jakobsson, Liselotte, 1953-, et al.
(author)
-
Daily life and life quality 3 years following prostate cancer treatment
- 2013
-
In: BMC Nursing. - : BioMed Central (BMC). - 1472-6955 .- 1472-6955. ; 12, s. 11-
-
Journal article (peer-reviewed)abstract
- BACKGROUND: Knowledge of experiences from prostate cancer is sparse in a longitudinal perspective. From a nursing perspective, results from combined qualitative and quantitative studies are lacking however would present the broadest knowledge base for best practice. Present descriptions of medical-physical symptoms such as urinary, bowel and sexual dysfunction from quantitative inquiries need be complemented with qualitative results. Such knowledge is essential in relation to treatment and communication with patients over the years and not only shortly after surgery.METHODS: A longitudinal study was formatted to investigate general and specific health quality and sense of coherence quantitative alterations over three years. A general health quality module (EORTC QLC-C30) and a disease-specific module (EORTC PR-25) were applied for the longitudinal study together with the Orientation to life questionnaire (SOC), measuring a persons' sense of coherence. In order to strengthen reliability and compensate for low participation we used the Directed content analysis for interviewing and analysis. The method allows using findings from earlier research when interviewing along with detecting new areas. Twenty-one men were followed over three years and six of them, in the third year, accepted to be interviewed.RESULTS: We found high quality of life ratings and extended the study with follow-up interviews in year three, to investigate whether questionnaire results were in line with interview findings. We found high life quality and functioning ratings that were in line with qualitative descriptions. Interview analysis showed retrieval of life as lived before, yet in a different way, the men never forgot the diagnosis event, had a unique illness history worth hearing, and had come to terms with most treatment-related shortcomings. Sense of coherence ratings were medium to high and confirmed stability over time in comprehensibility, manageability and meaningfulness after prostate cancer treatment.CONCLUSIONS: Over the years, the men's negative experiences from shifted into 'a good life' though in a different way than before. The interpretation is supported in the study by quantitative results showing a high degree of functioning. The men's sense of coherence seamed to support their handling of life three years after prostate cancer treatment.
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| 29. |
- Jakobsson, Liselotte, et al.
(author)
-
Daily life and life quality 3 years following prostate cancer treatment.
- 2013
-
In: BMC Nursing. - : Springer Science and Business Media LLC. - 1472-6955. ; 12:April,10
-
Journal article (peer-reviewed)abstract
- Knowledge of experiences from prostate cancer is sparse in a longitudinal perspective. From a nursing perspective, results from combined qualitative and quantitative studies are lacking however would present the broadest knowledge base for best practice. Present descriptions of medical-physical symptoms such as urinary, bowel and sexual dysfunction from quantitative inquiries need be complemented with qualitative results. Such knowledge is essential in relation to treatment and communication with patients over the years and not only shortly after surgery.
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| 30. |
- Jakobsson, Liselotte, 1953-
(author)
-
Erfarenheter från en familjecentral
- 2013
-
In: Aktionsforskning i vård och omsorg. - Malmö : Gleerups Utbildning AB. - 9789140685643 ; , s. 149-156
-
Book chapter (other academic/artistic)
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| 31. |
- Jakobsson, Liselotte, 1953-
(author)
-
Erfarenheter från ett FoU-nätverk
- 2013
-
In: Aktionsforskning i vård och omsorg. - Malmö : Gleerups Utbildning AB. - 9789140685643 ; , s. 165-172
-
Book chapter (other academic/artistic)
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| 32. |
- Jakobsson, Liselotte, 1953-
(author)
-
Erfarenheter från ett kommunalt projekt
- 2013
-
In: Aktionsforskning i vård och omsorg. - Malmö : Gleerups Utbildning AB. - 9789140685643 ; , s. 157-164
-
Book chapter (other academic/artistic)
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| 33. |
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| 34. |
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| 35. |
- Jakobsson, Liselotte
(author)
-
Everyday problems in men with prostate cancer. Aspects of micturition, indwelling urinary catheter treathment and sexual life
- 2000
-
Doctoral thesis (other academic/artistic)abstract
- The aim was to investigate the presence of everyday problems in men with prostate cancer, their relation to health-related quality of life, HRQOL, and sense of coherence, SOC, and to compare with men with benign prostatic hyperplasia, BPH, and a sample from the general population. The aim also was to investigate what nursing care needs there were in men with prostate cancer and how these were met during an in-patient period. Semi-structured interviews exploring everyday problems in men with prostate cancer (n=11) created the basis for further investigation. This was followed by an interview investigation (n=25) focusing the specific problems. The specific problems were also focus for the development of a study-specific questionnaire administered by mail-out mail-in procedure to men with prostate cancer (n=155), BPH (n=131), and the general population (n=129) and focused on micturition problems and sexual life problems, as well as provision and satisfaction with information. For assessment of indwelling urinary catheter treatment those with such experience were selected (prostate cancer n=71, BPH n=37). HRQOL (EORTC QLQ C-30) and SOC were additionally assessed. Living with prostate cancer meant alterations in life continuum, patients’ dealing with the altered life continuum and leaning on the next-of-kin for help and support, and that life was rearranged in relation to physical and existential fatigue, life in itself, life quality, and significant others. Living with micturition problems, indwelling urinary catheter treatment and sexual life meant a changed life continuum and changed life quality. Patients interpreted as passive (n=8) receivers were explicitly and implicitly stating unmet nursing care needs, or explicitly stating satisfaction and implicitly contradicting their statements. Active receivers (n=3) were explicitly stating unmet needs but seemed to get nursing care that met their needs, while passive receivers did not. HRQOL was reported at the same level though significantly lower (p=<0.002) in men with prostate cancer or BPH than in the general population. Those having a cancer diagnosis did not report more problems than those with BPH. Most troublesome urinary problems were leakage (m 2.74), feelings of discomfort (m 2.01) and disrupted urinary function and frequency (m 1.87). Sexual problems were related to pleasure and attraction (m 2.84), erectile function and sexual satisfaction (m 2.74), and sexual performance (m 2.83). Indwelling urinary catheter treatment was connected with discomfort in wearing a catheter (m 1.65), practical and psychosocial difficulties in handling and wearing (m 1.60), and discomfort at instalment (m 1.48). The information given on disease and treatment was stated to be satisfactory, however, reported to be too little. The results give some insights into what it means to live with prostate cancer or BPH. Special problems with micturition, catheter treatment and sexual life were identified, as well as the need for emotional support and professional availability indicating areas for nursing care measures.
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| 36. |
- Jakobsson, Liselotte, 1953-, et al.
(author)
-
Experiences of daily life and life quality in men with prostate cancer : an explorative study. Part I
- 1997
-
In: European Journal of Cancer Care. - 0961-5423 .- 1365-2354. ; 6:2, s. 108-116
-
Journal article (peer-reviewed)abstract
- Eleven men with prostate cancer were randomly chosen and interviewed during an in-patient period at a southern Swedish hospital. The interview focused on functional health status in relation to daily life and life quality. In addition the sense of coherence scale was used, as well as the European Organization or Research and Treatment of Cancer (EORTC) QLQ C-30 questionnaire. The interview findings were analysed from a phenomenological-hermeneutic perspective and interpreted within the concept of transition. The entry to transition was marked by the men when experiencing an altered life continuum in terms of physical and existential fatigue, pain, micturition problems and an altered sex life. The passage phase was marked by descriptions of a new lifestyle where hope was a central internal resource, creating a positive illusion of life in order to endure. Their external resources were wives and family who supported physically (household matters, gardening) and psychologically (comfort, encouragement). The exit phase meant continuously adapting to a new life style, living with a slowly deteriorating functional health status, a new sense of dependency on others, daily life routine broken by in-patient hospital periods and contacts with primary health care. Thus the findings pointed more at continously facing new passages than a stable exit, i.e. an ongoing transition. The areas of life imbalance described may serve as a basis for care assessment and intervention as well as supplying support of the transitional process.
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| 37. |
- Jakobsson, Liselotte, et al.
(author)
-
Experiences of daily life and life quality in men with prostate cancer : an explorative study. Part I
- 1997
-
In: European Journal of Cancer Care. - : Wiley-Blackwell Publishing Ltd. - 0961-5423 .- 1365-2354. ; 6:2, s. 108-116
-
Journal article (peer-reviewed)abstract
- Eleven men with prostate cancer were randomly chosen and interviewed during an in-patient period at a southern Swedish hospital. The interview focused on functional health status in relation to daily life and life quality. In addition the sense of coherence scale was used, as well as the European Organization or Research and Treatment of Cancer (EORTC) QLQ C-30 questionnaire. The interview findings were analysed from a phenomenological-hermeneutic perspective and interpreted within the concept of transition. The entry to transition was marked by the men when experiencing an altered life continuum in terms of physical and existential fatigue, pain, micturition problems and an altered sex life. The passage phase was marked by descriptions of a new lifestyle where hope was a central internal resource, creating a positive illusion of life in order to endure. Their external resources were wives and family who supported physically (household matters, gardening) and psychologically (comfort, encouragement). The exitphase meant continuously adapting to a new life style, living with a slowly deteriorating functional health status, a new sense of dependency on others, daily life routine broken by in-patient hospital periods and contacts with primary health care. Thus the findings pointed more at continously facing new passages than a stable exit, i.e. an ongoing transition. The areas of life imbalance described may serve as a basis for care assessment and intervention as well as supplying support of the transitional process.
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| 38. |
- Jakobsson, Liselotte, 1953-, et al.
(author)
-
Experiences of micturition problems, indwelling catheter treatment and sexual life consequences in men with prostate cancer
- 2000
-
In: Journal of Advanced Nursing. - : Wiley-Blackwell. - 0309-2402 .- 1365-2648. ; 31:1, s. 59-67
-
Journal article (peer-reviewed)abstract
- Men with prostate cancer (n=25) were interviewed, focusing on experiences of micturition problems, indwelling catheter treatment and sexual life consequences. Narrations were found to be practical and technical descriptions rather than emotional, and experiences were described with reduction and negligence regarding personal well-being and the impact of problems. Phenomenological-hermeneutic analysis was used and findings ordered in subthemes and themes of meaning. Micturition problems, catheter treatment and sexual life problems were all phenomena that radically affected the clients’ autonomy and life quality and changed the life continuum. Impact from the disease was either accepted or not and related to what had already been borne in life. Experiences were linked together, each of them giving rise to feelings of physical deterioration and fear of ridicule, and hidden from others. Maintaining self-image and social role was important and connected with the degree of perceived deprivation of life content. Responsibility for medical decisions was left to professionals while everyday problems with micturition, catheters and sexual life were regarded as the men’s sole responsibility. Findings were interpreted to mean that comparing the personal situation with that of others worse off made the life situation look better. The clinical implication of this study was that because the men came forward with their problems when given time to talk in their own way these areas should be given time and interest in the nursing care. Interpretation did not provide a unified picture of problems. Thus, nurses will have to seek men’s individual experience actively and give legitimacy to patients’ problems by opening up opportunities to speak about otherwise concealed problems. Then it may be possible to provide solutions that may ease the men’s burdens.
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| 39. |
- Jakobsson, Liselotte, et al.
(author)
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Experiences of micturition problems, indwelling catheter treatment and sexual life consequences in men with prostate cancer
- 2000
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In: Journal of Advanced Nursing. - 0309-2402. ; 31:1, s. 59-67
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Journal article (peer-reviewed)abstract
- Men with prostate cancer (n=25) were interviewed, focusing on experiences of micturition problems, indwelling catheter treatment and sexual life consequences. Narrations were found to be practical and technical descriptions rather than emotional, and experiences were described with reduction and negligence regarding personal well-being and the impact of problems. Phenomenological-hermeneutic analysis was used and findings ordered in subthemes and themes of meaning. Micturition problems, catheter treatment and sexual life problems were all phenomena that radically affected the clients' autonomy and life quality and changed the life continuum. Impact from the disease was either accepted or not and related to what had already been borne in life. Experiences were linked together, each of them giving rise to feelings of physical deterioration and fear of ridicule, and hidden from others. Maintaining self-image and social role was important and connected with the degree of perceived deprivation of life content. Responsibility for medical decisions was left to professionals while everyday problems with micturition, catheters and sexual life were regarded as the men's sole responsibility. Findings were interpreted to mean that comparing the personal situation with that of others worse off made the life situation look better. The clinical implication of this study was that because the men came forward with their problems when given time to talk in their own way these areas should be given time and interest in the nursing care. Interpretation did not provide a unified picture of problems. Thus, nurses will have to seek men's individual experience actively and give legitimacy to patients' problems by opening up opportunities to speak about otherwise concealed problems. Then it may be possible to provide solutions that may ease the men's burdens.
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| 40. |
- Jakobsson, Liselotte, 1953-, et al.
(author)
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Implementering
- 2013
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In: Aktionsforskning i vård och omsorg. - Malmö : Gleerups Utbildning AB. - 9789140685643 ; , s. 111-124
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Book chapter (other academic/artistic)
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| 41. |
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| 42. |
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| 43. |
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| 44. |
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| 45. |
- Jakobsson, Liselotte, 1953-, et al.
(author)
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Individual personal relations : effects on service quality
- 2011
-
In: International Journal of Health Care Quality Assurance. - 0952-6862 .- 1758-6542. ; 24:6, s. 430-440
-
Journal article (peer-reviewed)abstract
- PURPOSE: The purpose of this paper is to study patients' attitudes to nurses and investigate what hampering factors occur in the actual nursing situation and what patient features might affect cooperative climates. DESIGN/METHODOLOGY/APPROACH: In-depth interviews were conducted with 11 male inpatients suffering prostate cancer. The interviews were personal narrations based on open-ended questions. The theoretical basis is founded in sense-making, trust and competence. FINDINGS: Existential issues related to nursing care were interpreted by nurses as a need for (technical) information. However, respondents indicated a need for professional support regarding their whole life. The social climate seems not to be optimal for existential talk owing to hospital routines. Patients' personal traits also affect the propensity to cooperation, and three types were distinguished: cooperating patients; passive patients; and denying patients. Nurses' competence may be regarded as hierarchical levels from optimising single items, over system optimisation and to optimisation from the patient perspective. The study indicates that not even first-level requirements are met. RESEARCH LIMITATIONS/IMPLICATIONS: Only patients' views were studied. Nurses' perceptions would add additional insights. Lack of personal relations and cooperation between patient and nurse may decrease service quality. Patient attitudes seem to be a major obstacle. For some patients, passively receiving technical information may be an excuse for not wanting to participate in mutual sense-making. The supposed need for technical information may also be an excuse for nurses to avoid more sensitive issues. ORIGINALITY/VALUE: Better quality of care involves changing patient perceptions and attitudes to what constitutes nursing competence.
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| 46. |
- Jakobsson, Liselotte, et al.
(author)
-
Individual personal relations : effects on service quality
- 2011
-
In: International Journal of Health Care Quality Assurance. - : Emerald Group Publishing Ltd.. - 0952-6862. ; 24:6, s. 430-440
-
Journal article (peer-reviewed)abstract
- PURPOSE: The purpose of this paper is to study patients' attitudes to nurses and investigate what hampering factors occur in the actual nursing situation and what patient features might affect cooperative climates. DESIGN/METHODOLOGY/APPROACH: In-depth interviews were conducted with 11 male inpatients suffering prostate cancer. The interviews were personal narrations based on open-ended questions. The theoretical basis is founded in sense-making, trust and competence. FINDINGS: Existential issues related to nursing care were interpreted by nurses as a need for (technical) information. However, respondents indicated a need for professional support regarding their whole life. The social climate seems not to be optimal for existential talk owing to hospital routines. Patients' personal traits also affect the propensity to cooperation, and three types were distinguished: cooperating patients; passive patients; and denying patients. Nurses' competence may be regarded as hierarchical levels from optimising single items, over system optimisation and to optimisation from the patient perspective. The study indicates that not even first-level requirements are met. RESEARCH LIMITATIONS/IMPLICATIONS: Only patients' views were studied. Nurses' perceptions would add additional insights. Lack of personal relations and cooperation between patient and nurse may decrease service quality. Patient attitudes seem to be a major obstacle. For some patients, passively receiving technical information may be an excuse for not wanting to participate in mutual sense-making. The supposed need for technical information may also be an excuse for nurses to avoid more sensitive issues. ORIGINALITY/VALUE: Better quality of care involves changing patient perceptions and attitudes to what constitutes nursing competence.
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| 47. |
- Jakobsson, Liselotte, 1953-
(author)
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Indwelling catheter treatment and health-related quality of life in men with prostate cancer in comparison with men with benign prostate hyperplasia
- 2002
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In: Scandinavian Journal of Caring Sciences. - 0283-9318 .- 1471-6712. ; 16:3, s. 264-271
-
Journal article (peer-reviewed)abstract
- Experiences from indwelling urinary catheter treatment periods were studied. Little is known of what is felt from a male perspective although catheter treatment is a common pre- and postoperative measure for men with prostate cancer and benign prostatic hyperplasia (BPH). Also studied were health-related quality of life (HRQOL) and sense of coherence (SOC). Men with catheter experience (prostate cancer n = 71, BPH n = 37) were selected from a larger questionnaire study. Assessment was made with study-specific questions together with the QLQ C-30 assessing HRQOL and the SOC questionnaire measuring sense of coherence. Data reduction method was applied to study specific variables to determine problem patterns. Correlation between HRQOL and SOC was determined. Results showed similar problem patterns in men with prostate cancer and BPH: discomfort in wearing catheter (e.g. uneasiness 48.2%), practical and psychosocial difficulties in handling and wearing catheter (e.g. attaching catheter 32.4%) and discomfort at installation (e.g. pain 29.7%). There was lack of knowledge about wearing and practical handling of the catheter. Having a cancer diagnosis did not add to uneasiness or practical problems. Life quality was correlated to SOC (p ≤ 0.001).
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| 48. |
- Jakobsson, Liselotte
(author)
-
Indwelling catheter treatment and health-related quality of life in men with prostate cancer in comparison with men with benign prostate hyperplasia
- 2002
-
In: Scandinavian Journal of Caring Sciences. - : Wiley-Blackwell Publishing Ltd. - 0283-9318 .- 1471-6712. ; 16:3, s. 264-271
-
Journal article (peer-reviewed)abstract
- Experiences from indwelling urinary catheter treatment periods were studied. Little is known of what is felt from a male perspective although catheter treatment is a common pre- and postoperative measure for men with prostate cancer and benign prostatic hyperplasia (BPH). Also studied were health-related quality of life (HRQOL) and sense of coherence (SOC). Men with catheter experience (prostate cancer n = 71, BPH n = 37) were selected from a larger questionnaire study. Assessment was made with study-specific questions together with the QLQ C-30 assessing HRQOL and the SOC questionnaire measuring sense of coherence. Data reduction method was applied to study specific variables to determine problem patterns. Correlation between HRQOL and SOC was determined. Results showed similar problem patterns in men with prostate cancer and BPH: discomfort in wearing catheter (e.g. uneasiness 48.2%), practical and psychosocial difficulties in handling and wearing catheter (e.g. attaching catheter 32.4%) and discomfort at installation (e.g. pain 29.7%). There was lack of knowledge about wearing and practical handling of the catheter. Having a cancer diagnosis did not add to uneasiness or practical problems. Life quality was correlated to SOC (p ≤ 0.001).
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| 49. |
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| 50. |
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