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- Johansson, Stina, 1946-, et al.
(author)
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Caring and the generation of social capital : two models for a positive relationship
- 2012
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In: International Journal of Social Welfare. - Oxford UK and Malden USA : Blackwell Publishing. - 1369-6866 .- 1468-2397. ; 21:1, s. 44-52
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Journal article (peer-reviewed)abstract
- When caring is linked to social capital it is generally assumed that the nature of the relationship is that social capital is a resource that can be used for care work. When there is inadequate funding of aged care services by the State then social capital may be seen as a substitute for economic and human capital. Caring therefore is seen as a drain on capital. However, this does not have to be the case. Aged care services, if thoughtfully designed, can not only consume social capital but also generate it. Two models of elder care, one Swedish and one Australian, have been identified which specifically address the generation of social capital. In each case the services and facilities have been developed by third sector organisations with a strong community development focus often in the face of resistance from state run or medically oriented services.
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- Johansson, Therese, et al.
(author)
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Validation of a culturally adapted Swedish-language version of the Death Literacy Index
- 2023
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In: PLoS ONE. - 1932-6203. ; 18:11 November
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Journal article (peer-reviewed)abstract
- The death literacy index (DLI) was developed in Australia to measure death literacy, a set of experience-based knowledge needed to understand and act on end-of-life (EOL) care options but has not yet been validated outside its original context. The aim of this study was to develop a culturally adapted Swedish-language version of the DLI, the DLI-S, and assess sources of evidence for its validity in a Swedish context. The study involved a multi-step process of translation and cultural adaptation and two validation phases: examining first content and response process validity through expert review (n = 10) and cognitive interviews (n = 10); and second, internal structure validity of DLI-S data collected from an online cross-sectional survey (n = 503). The psychometric evaluation involved analysis of descriptive statistics on item and scale-level, internal consistency and test-retest reliability, and confirmatory factor analysis. During translation and adaptation, changes were made to adjust items to the Swedish context. Additional adjustments were made following findings from the expert review and cognitive interviews. The content validity index exceeded recommended thresholds (S-CVIAve = 0.926). The psychometric evaluation provided support for DLI-S’ validity. The hypothesized six-factor model showed good fit (χ2 = 1107.631 p<0.001, CFI = 0.993, TLI = 0.993, RMSEA = 0.064, SRMR = 0.054). High internal consistency reliability was demonstrated for the overall scale (Cronbach’s α = 0.94) and each sub-scale (α 0.81–0.92). Test-retest reliability was acceptable, ICC ranging between 0.66–0.85. Through a comprehensive assessment of several sources of evidence, we show that the DLI-S demonstrates satisfactory validity and acceptability to measure death literacy in the Swedish context. There are, however, indications that the sub-scales measuring community capacity perform worse in comparison to other sca and may function differently in Sweden than in the original context. The DLI-S has potential to contribute to research on community-based EOL interventions.
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- Leonard, Rosemary, et al.
(author)
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Policy and practices to the active engagement of older people in the community : a comparison of Sweden and Australia
- 2008
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In: International Journal of Social Welfare. - : Blackwell. - 1369-6866 .- 1468-2397. ; 17:1, s. 37-45
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Journal article (peer-reviewed)abstract
- This article compares policy and practices for engaging older people in community life in Sweden and Australia. Barriers and support for active engagement through paid work, social activism, volunteering and aged services are compared. Both countries face issues of ageing populations, services for rural areas and people with small needs. Issues for Sweden were the absence of age discrimination legislation, availability of funds and lack of recognition of the growing levels of volunteering. Issues for Australia concerned the new managerialist approach to services, with associated complexities of access and limited social activism.
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