| 1. |
- Malmquist, Anna, et al.
(author)
-
Hbtq+ och psykologi i en historisk tillbakablick
- 2017
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In: HBTQ+ : Psykologiska perspektiv och bemötande - Psykologiska perspektiv och bemötande. - 9789127147430 ; , s. 13-34
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Book chapter (peer-reviewed)abstract
- De individer, identiteter, uttryck och samlevnadsformer som idag kan sammanfogas under akronymen hbtq+ har genom historien betraktas på många olika vis. Psykologin har varit central för hur hbtq+ har förståtts, definierats och behandlats. I detta kapitel betraktas hbtq+historien därför med psykologiska glasögon.
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| 2. |
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| 3. |
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| 4. |
- Agarwal, Pankhuri, et al.
(author)
-
Introduction
- 2021
-
In: The Politics and Ethics of Representation in Qualitative Research : Addressing Moments of Discomfort - Addressing Moments of Discomfort.
-
Book chapter (peer-reviewed)abstract
- This chapter introduces the volume by presenting the questions of politics and ethics of representation in qualitative research. It also shows how these are approached in the following chapters through analyses of moments of discomfort in our research practice. We situate our work in critical, feminist and engaged scholarship and discuss how creating representation in qualitative research is linked to the issues of accountability and solidarity. The introduction then offers an overview of the chapters, showing how different representational practices, both in the field and in writing, open up for important ethical and political dilemmas.
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| 5. |
- Agarwal, Pankhuri, et al.
(author)
-
Introduction
- 2021. - 1
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In: The Politics and Ethics of Representation in Qualitative Research. - London : Routledge. - 9780367281014 - 9780429299674 - 9780367281038 ; , s. 1-8
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Book chapter (other academic/artistic)abstract
- In qualitative research, the research process is often filled with moments of discomfort. These discomforts can appear at any stage of the research: when choosing thesubject of research, during fieldwork, in the process of analysis and when presenting research findings to different audiences. In this edited volume, we take thesemoments of discomfort seriously and use them as sites of knowledge production forreflecting on the politics and ethics of the qualitative research process. By locatingour experiences in implementing nine different PhD projects carried out in different disciplines and research contexts in social sciences, we argue that these momentsof discomfort help us to gain important insights into the methodological, theoretical, ethical and political issues that are crucial for the fields we engage with. Drawingon feminist and other critical discussions (Mulinari and Sandell 1999, Gunaratnam2003, Back 2007, Gunaratnam and Hamilton 2017), we deal with questions such as:What does it mean to write about the lives of others? What are the ethical modesand conundrums of producing representations? In research projects that are locatedin the tradition of critical or engaged scholarship, how are ethics and politics of representation intertwined, and when are they distinct? How are politics of representation linked to the practice of solidarity in research? What are the im/possibilities ofhope and care in research?
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| 6. |
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| 7. |
- Alm, Tove, et al.
(author)
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A Chromosome-Centric Analysis of Antibodies Directed toward the Human Proteome Using Antibodypedia
- 2014
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In: Journal of Proteome Research. - : American Chemical Society (ACS). - 1535-3893 .- 1535-3907. ; 13:3, s. 1669-1676
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Journal article (peer-reviewed)abstract
- Antibodies are crucial for the study of human proteins and have been defined as one of the three pillars in the human chromosome-centric Human Proteome Project (CHPP). In this article the chromosome-centric structure has been used to analyze the availability of antibodies as judged by the presence within the portal Antibodypedia, a database designed to allow comparisons and scoring of publicly available antibodies toward human protein targets. This public database displays antibody data from more than one million antibodies toward human protein targets. A summary of the content in this knowledge resource reveals that there exist more than 10 antibodies to over 70% of all the putative human genes, evenly distributed over the 24 human chromosomes. The analysis also shows that at present, less than 10% of the putative human protein-coding genes (n = 1882) predicted from the genome sequence lack antibodies, suggesting that focused efforts from the antibody-based and mass spectrometry-based proteomic communities should be encouraged to pursue the analysis of these missing proteins. We show that Antibodypedia may be used to track the development of available and validated antibodies to the individual chromosomes, and thus the database is an attractive tool to identify proteins with no or few antibodies yet generated.
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| 8. |
- Alm, Tove, et al.
(author)
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Introducing the Affinity Binder Knockdown Initiative-A public-private partnership for validation of affinity reagents
- 2016
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In: EuPA Open Proteomics. - : Elsevier. - 2212-9685. ; 10, s. 56-58
-
Journal article (peer-reviewed)abstract
- The newly launched Affinity Binder Knockdown Initiative encourages antibody suppliers and users to join this public-private partnership, which uses crowdsourcing to collect characterization data on antibodies. Researchers are asked to share validation data from experiments where gene-editing techniques (such as siRNA or CRISPR) have been used to verify antibody binding. The initiative is launched under the aegis of Antibodypedia, a database designed to allow comparisons and scoring of publicly available antibodies towards human protein targets. What is known about an antibody is the foundation of the scoring and ranking system in Antibodypedia.
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| 9. |
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| 10. |
- Alm, Tove L., et al.
(author)
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The Affinity Binder Knockdown Initiative
- 2015
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In: Molecular Biology of the Cell. - : AMER SOC CELL BIOLOGY. - 1059-1524 .- 1939-4586. ; 26
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Journal article (other academic/artistic)
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| 11. |
- Azul, David, et al.
(author)
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Supporting Well-Being in Gender-Diverse People : A Tutorial for Implementing Conceptual and Practical Shifts Toward Culturally Responsive, Person-Centered Care in Speech-Language Pathology
- 2022
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In: American Journal of Speech-Language Pathology. - 1558-9110. ; 31:4, s. 1574-1587
-
Journal article (peer-reviewed)abstract
- Purpose: Gender dysphoria is commonly conceptualized as a mental disorder in gender-diverse people who do not identify with the gender assigned to them at birth. Direct support for well-being tends to be delegated to the field of mental health (MH), whereas speech-language pathology (SLP) practice is charged with modifying gender-diverse people's voice and communication in the belief that well-being will improve as a byproduct. However, with the introduction of the minority stress model, gender dysphoria is now understood as the result of sociocultural processes of stigmatization, pathologization, coping, and resilience, and it is to be addressed by all professions providing transgender health services. The purposes of this tutorial are to examine practices in SLP in light of the current conceptualization of gender dysphoria and guide speech-language pathologists in their role in supporting the well-being of gender-diverse people.Method: We reviewed the SLP and MH literature in the topic area to compare the two disciplines' conceptualizations and approaches to professional support for gender-diverse people.Results: We propose a transdisciplinary, person-centered, and culturally responsive approach to SLP practice that directly attends to minority stress, microaggressions, coping skills, and resilience factors.Conclusions: It is not sufficient for speech-language pathologists to delegate support for well-being in gender-diverse people to MH practitioners. Rather, speech-language pathologists need to be proactive in taking responsibility for supporting their clients' well-being based on each individual clinician's knowledge, skills, and capacity to do so. We recommend addressing barriers and facilitators of gender-diverse people's well-being both within SLP as a professional culture and by adapting the clinician's own professional practice.
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| 12. |
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| 13. |
- Boström, Tove, et al.
(author)
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Investigating the correlation of protein and mRNA levels in human cell lines using quantitative proteomics and transcriptomics
-
Other publication (other academic/artistic)abstract
- An important topic of discussion in proteomics is the degree of correlation of RNA and protein levels in cells, tissues and organs. In this study, the difference in protein and mRNA levels for a number of selected gene targets were investigated across six human cell lines using quantitative proteomics and next generation sequencing-based transcriptomics. The copy numbers of 32 proteins were determined using an absolute quantitative proteomics approach (PrEST-SILAC), where heavy isotope-labeled protein fragments were used as internal standards. A cross evaluation of protein copy numbers determined by mass spectrometry and staining profiles using immunohistochemistry showed good correlation. The mRNA levels were determined using RNA sequencing based on digital counting of sequencing reads and the levels determined as FPKM values. Comparison of the relative variations in mRNA and protein levels for individual genes across the six cell lines showed correlation between protein and mRNA levels, including six genes with high variability in expression levels in the six cell lines resulting in an average correlation of 0.9 (Spearman's rank coefficient). In summary, the analysis of the selected protein targets supports the conclusion that the translation rate across cell lines correlates for a particular gene, suggesting that individual protein levels can be predicted from the respective mRNA levels by defining the relation between protein and mRNA, specific for each human gene.
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| 14. |
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| 15. |
- Cox, Laura, et al.
(author)
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‘A Total Gamechanger’ : An Interpretative Phenomenological Analysis of Swedish Fathers’ Work-Family Experiences Since the COVID-19 Pandemic
-
In: The Journal of Men’s Studies. - 1060-8265.
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Journal article (peer-reviewed)abstract
- Although Sweden is a top country for gender equality, there are disparities in domestic labor and parental leave use between men and women. The COVID-19 pandemic changed work-home life by increasing remote work. This study explored eight fathers’ work-family experiences in Sweden before, during and since the COVID-19 pandemic using interviews. Three group themes were developed using Interpretative Phenomenological Analysis: “Fatherhood as protected and restrained before and during COVID-19”, “COVID-19 as an opportunity for introspection” and “COVID-19 as an opportunity for better balance”. Fathers made meaning of the pandemic in terms of new freedom and flexibility, whilst also expressing the importance of social connection at work. The study contributes insights on fathers’ needs and the debate on post-pandemic work organization.
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| 16. |
- Di Luigi, Guendalina, et al.
(author)
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Psychometric Exploration of the Swedish Translation of the Sexual Orientation Microaggressions Scale (SOMS), and a Commentary on the Validity of the Construct of Microaggressions
- 2023
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In: Journal of Homosexuality. - : Haworth Press. - 1540-3602 .- 0091-8369.
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Journal article (peer-reviewed)abstract
- The aim of the present study was to assess the psychometric properties of a Swedish translation of the Sexual Orientation Microaggressions Scale (SOMS) in a convenience sample of 267 Swedish LGB+ people (Mean age = 36.41). Testing suggested some strengths in terms of factor structure and 2-week test-retest reliability (ICC > .79). Also, internal consistency (α = .80–.91) and convergent validity were supported for most subscales. However, the Assumption of Deviance subscale was associated with low response variability and internal consistency (α = .35), and the correlational pattern between the Environmental Microaggressions subscale and mental health variables diverged from the overall trend. Furthermore, measurement invariance between homo- and bisexual participants was not supported for most subscales, and although microaggressions would be theoretically irrelevant to a small comparison sample of heterosexual people (N = 76, Mean age = 40.43), metric invariance of the Environmental Microaggressions subscale was supported in comparison to LGB+ people. We argue that these limitations suggest a restricted applicability of the SOMS in a Swedish context, and this has consequences for the definition and operationalization of the construct of microaggressions as a whole. Therefore, more research on the latent properties of microaggressions in Swedish as well as in other contexts is required.
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| 17. |
- Dønåsen, Ingrid, et al.
(author)
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Intersex/DSD
- 2017
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In: HBTQ+: Psykologiska perspektiv och bemötande. - 9789127147430 ; , s. 93-102
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Book chapter (peer-reviewed)
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| 18. |
- Edfors, Fredrik, et al.
(author)
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Immunoproteomics using polyclonal antibodies and stable isotope-labeled affinity-purified recombinant proteins
- 2014
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In: Molecular & Cellular Proteomics. - 1535-9476 .- 1535-9484. ; 13:6, s. 1611-1624
-
Journal article (peer-reviewed)abstract
- AThe combination of immuno-based methods and mass spectrometry detection has great potential in the field of quantitative proteomics. Here, we describe a new method (immuno-SILAC) for the absolute quantification of proteins in complex samples based on polyclonal antibodies and stable isotope-labeled recombinant protein fragments to allow affinity enrichment prior to mass spectrometry analysis and accurate quantification. We took advantage of the antibody resources publicly available from the Human Protein Atlas project covering more than 80% of all human protein-coding genes. Epitope mapping revealed that a majority of the polyclonal antibodies recognized multiple linear epitopes, and based on these results, a semi-automated method was developed for peptide enrichment using polyclonal antibodies immobilized on protein A-coated magnetic beads. A protocol based on the simultaneous multiplex capture of more than 40 protein targets showed that approximately half of the antibodies enriched at least one functional peptide detected in the subsequent mass spectrometry analysis. The approach was further developed to also generate quantitative data via the addition of heavy isotope-labeled recombinant protein fragment standards prior to trypsin digestion. Here, we show that we were able to use small amounts of antibodies (50 ng per target) in this manner for efficient multiplex analysis of quantitative levels of proteins in a human HeLa cell lysate. The results suggest that polyclonal antibodies generated via immunization of recombinant protein fragments could be used for the enrichment of target peptides to allow for rapid mass spectrometry analysis taking advantage of a substantial reduction in sample complexity. The possibility of building up a proteome-wide resource for immuno-SILAC assays based on publicly available antibody resources is discussed.
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| 19. |
- Edfors, Fredrik, 1988-, et al.
(author)
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Validation of antibodies for Western blot applications using orthogonal methods
-
Other publication (other academic/artistic)abstract
- There is a great need for standardized validation methods for antibody specificity and selectivity. Here, we describe the use of orthogonal methods in which the specificity of an antibody in a particular application is determined based on correlation of protein abundance across several samples using an antibody-independent method. We show that pair-wise correlation between orthogonal samples can be used to score the specificity of antibodies in a standardized manner using a test panel of human cell lines. Here, we investigated two independent methods for validation of antibodies in Western blot applications, namely transcriptomics and targeted proteomics and we show that the two methods yield similar, but not identical results. The orthogonal methods can also be used to investigate on- and off- target binding for antibodies with multiple bands in the Western blot assay. In conclusion, orthogonal methods for antibody validation provide an attractive strategy for systematic validation of antibodies in a quantitative manner.
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| 20. |
- Ekholm, Elin, 1981-, et al.
(author)
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”A lot to fall back on” : Experiences of Dyspareunia among queer women
- 2022
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In: Psychology & Sexuality. - : Informa UK Limited. - 1941-9899 .- 1941-9902. ; 13:5, s. 1242-1255
-
Journal article (peer-reviewed)abstract
- This study explores the subjective experiences of dyspareunia among queer women in Sweden. Ten semi-structured, in-depth interviews were conducted with five participants who were all interviewed on two separate occasions. Interviews were analyzed using thematic analysis (Braun & Clarke, 2006). Dyspareunia was described as affecting the participants’ sexual activities, intimate relationships, and identity constructs. Reported struggles involved feelings of sadness, guilt, frustration, and fear of pain. Dyspareunia was described as threatening the participants’ queer identities through its effect on their ability to be sexual in idealized ways. However, queer experiences and communities were also found to be associated with advantages in pain management, such as well-developed sexual communication skills, anatomic similarity to their partner, access to non-heteronormative sexual scripts and a focus on nurturing desire. Queer related advantages in pain management are proposed to buffer to some extent against pain interference with sexual function and desire. Findings indicate that it is important to consider the unique relational and social context of queer women to understand their experiences of dyspareunia. More research is needed on the role of differences of normativities, context and communication in dyspareunia.
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| 21. |
- Ekholm, Elin, 1981-
(author)
-
Painful Sex in Context : Understanding Vulvodynia from a Relational Perspective
- 2024
-
Doctoral thesis (other academic/artistic)abstract
- Vulvodynia is a multifactorial persistent pain condition, characterized by pain in the vulva upon touch or pressure. It negatively impacts sexual function, satisfaction, and relational wellbeing. Relational factors have been indicated as integral to the understanding and outcomes of vulvodynia. The overall aim of this dissertation was to further the understanding of women’s pain-related behaviors in relation to the dyadic and normative contexts of vulvodynia.Using a person-oriented approach, study I explored links between coping behaviors, i.e., avoidance and endurance on the one hand, and on the other, relational and pain catastrophizing, perceived partner responses, and motivational goals, in a sample of 128 women with vulvodynia. Study II explored the significance of normative context for the experience of vulvodynia by qualitatively investigating subjective experiences of five women living with dyspareunia in a queer relationship. Using behavioral observation and self-report, study III investigated patterns of sexual communication quality in heterosexual vulvodynia couples (n = 25) as compared to couples without pain (n = 37), and assessed potential associations with pain, self-disclosure, and sexual assertiveness.The findings from the three studies together highlight the significance of the normative context and relational factors such as the emotional quality of sexual communication and women’s relational cognitions, for women’s pain-related experiences and coping behaviors. A new theoretical model, the Interpersonal Pain Coping Model of Vulvodynia, is proposed as a way of integrating contextual factors such as partner behaviors and sexual scripts into the understanding of women’s behavioral response to vulvodynia.
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| 22. |
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| 23. |
- Freiburghaus, Tove, et al.
(author)
-
Low convergent validity of [11C]raclopride binding in extrastriatal brain regions : A PET study of within-subject correlations with [11C]FLB 457
- 2021
-
In: NeuroImage. - : Elsevier BV. - 1053-8119 .- 1095-9572. ; 226
-
Journal article (peer-reviewed)abstract
- Dopamine D2 receptors (D2-R) in extrastriatal brain regions are of high interest for research in a wide range of psychiatric and neurologic disorders. Pharmacological competition studies and test-retest experiments have shown high validity and reliability of the positron emission tomography (PET) radioligand [11C]FLB 457 for D2-R quantification in extrastriatal brain regions. However, this radioligand is not available at most research centers. Instead, the medium affinity radioligand [11C]raclopride, which has been extensively validated for quantification of D2-R in the high-density region striatum, has been applied also in studies on extrastriatal D2-R. Recently, the validity of this approach has been questioned by observations of low occupancy of [11C]raclopride in extrastriatal regions in a pharmacological competition study with quetiapine. Here, we utilise a data set of 16 healthy control subjects examined with both [11C]raclopride and [11C]FLB 457 to assess the correlation in binding potential (BPND) in extrastriatal brain regions. BPND was quantified using the simplified reference tissue model with cerebellum as reference region. The rank order of mean regional BPND values were similar for both radioligands, and corresponded to previously reported data, both post-mortem and using PET. Nevertheless, weak to moderate within-subject correlations were observed between [11C]raclopride and [11C]FLB 457 BPND extrastriatally (Pearson's R: 0.30-0.56), in contrast to very strong correlations between repeated [11C]FLB 457 measurements (Pearson's R: 0.82-0.98). In comparison, correlations between repeated [11C]raclopride measurements were low to moderate (Pearson's R: 0.28-0.75). These results are likely related to low signal to noise ratio of [11C]raclopride in extrastriatal brain regions, and further strengthen the recommendation that extrastriatal D2-R measures obtained with [11C]raclopride should be interpreted with caution.
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| 24. |
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| 25. |
-
HBTQ+ : psykologiska perspektiv och bemötande
- 2017. - 1
-
Editorial collection (other academic/artistic)abstract
- Heteronormen, cisnormen och mononormen – varför bör vi känna till dem? Hur kan behandlare skapa ett samtalsklimat där klienterna kan känna sig trygga? Vilken kunskap om hbtq+-personers livsvillkor behövs för ett professionellt bemötande? Och varför räcker inte bara empati?Den här boken tar ett omfattande grepp om frågor som rör homo, bi, trans, queer och en rad andra identitetskategorier som alla relaterar till sexualitet, relationsbildning, kön och könsuttryck – i boken samlade under akronymen hbtq+. Trots en positiv utveckling i samhället leder minoritetsstress fortfarande till ökad ohälsa hos hbtq+-personer, och kunskapsluckorna är stora inom samhälls- och vårdinstanser. Författarna sätter in dessa frågor i ett historiskt och teoretiskt ramverk och gör en grundläggande genomgång av aspekter som rör hälsa och ohälsa i relation till hbtq+. Fördjupande kapitel rör områden som barn och ungdomar, föräldraskap och migration. Praktisk kunskap om professionellt bemötande tas upp och handfasta råd vägleder läsaren. Boken vänder sig till dig som är studerande eller verksam inom ett människovårdande yrke.HBTQ+ är skriven av flera av Sveriges mest kunniga psykologer och forskare inom området. Antologins redaktörer är Tove Lundberg, leg. psykolog, fil.dr och forskare vid Lunds universitet; Anna Malmquist, leg. psykolog, fil.dr och forskare vid Linköpings universitet; Matilda Wurm, examinerad psykolog och doktorand i psykologi vid Örebro universitet.
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| 26. |
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| 27. |
- Hegarty, Peter, et al.
(author)
-
Drawing the Line Between Essential and Nonessential Interventions on Intersex Characteristics With European Health Care Professionals
- 2021
-
In: Review of General Psychology. - : SAGE Publications. - 1089-2680 .- 1939-1552. ; 25:1, s. 101-114
-
Journal article (peer-reviewed)abstract
- Human rights statements on intersex characteristics distinguish legitimate “medically necessary” interventions from illegitimate normalizing ones. Ironically, this binary classification seems partially grounded in knowledge of anatomy and medical interventions; the very expertise that human rights statements challenge. Here, 23 European health professionals from specialist “disorder of sex development” (DSD) multidisciplinary teams located medical interventions on a continuum ranging from “medically essential” to nonessential poles. They explained their answers. Participants mostly described interventions on penile/scrotal, clitoral/labial, vaginal, and gonadal anatomy whose essential character was only partially grounded in anatomical variation and diagnoses. To explain what was medically necessary, health care professionals drew on lay understandings of child development, parental distress, collective opposition to medicalization, patients “coping” abilities, and patients’ own choices. Concepts of “medical necessity” were grounded in a hybrid ontology of patients with intersex traits as both physical bodies and as phenomenological subjects. Challenges to medical expertise on human rights grounds are well warranted but presume a bounded and well-grounded category of “medically necessary” intervention that is discursively flexible. Psychologists’ long-standing neglect of people with intersex characteristics, and the marginalization of clinical psychologists in DSD teams, may contribute to the construction of some controversial interventions as medically necessary.
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| 28. |
- Häggmark-Månberg, Anna, et al.
(author)
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Autoantibody targets in vaccine-associated narcolepsy
- 2016
-
In: Autoimmunity. - : Taylor & Francis. - 0891-6934 .- 1607-842X. ; 49:6, s. 421-433
-
Journal article (peer-reviewed)abstract
- Narcolepsy is a chronic sleep disorder with a yet unknown cause, but the specific loss of hypocretin-producing neurons together with a strong human leukocyte antigen (HLA) association has led to the hypothesis that autoimmune mechanisms might be involved. Here, we describe an extensive effort to profile autoimmunity repertoires in serum with the aim to find disease-related autoantigens. Initially, 57 serum samples from vaccine-associated and sporadic narcolepsy patients and controls were screened for IgG reactivity towards 10 846 fragments of human proteins using planar microarrays. The discovered differential reactivities were verified on suspension bead arrays in the same sample collection followed by further investigation of 14 antigens in 176 independent samples, including 57 narcolepsy patients. Among these 14 antigens, methyltransferase-like 22 (METTL22) and 5'-nucleotidase cytosolic IA (NT5C1A) were recognized at a higher frequency in narcolepsy patients of both sample sets. Upon sequence analysis of the 14 proteins, polymerase family, member 3 (PARP3), acyl-CoA-binding domain containing 7 (ARID4B), glutaminase 2 (GLS2) and cyclin-dependent kinase-like 1 (CDKL1) were found to contain amino acid sequences with homology to proteins found in the H1N1 vaccine. These findings could become useful elements of further clinical assays that aim towards a better phenotypic understanding of narcolepsy and its triggers.
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| 29. |
- Joy, Eileen, et al.
(author)
-
Experiencing “the Wrong Kind of Puberty” : Navigating Teenage Years with a Variation in Sex Characteristics
- 2023
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In: Youth. - 2673-995X. ; 3:1, s. 465-476
-
Journal article (peer-reviewed)abstract
- There are many different variations in sex characteristics, some of which have implications for how the body goes through puberty. This paper draws from critical disability studies and childhood and youth studies to understand the teenage experiences and aspirations of young people with variations in sex characteristics, focusing particularly on navigating puberty. We undertook a reflexive thematic analysis with interview data from 12 young people in England, all assigned femaleat birth. Our analysis produced a central theme: aspiring to certainty through “fixing” the wrongkind of puberty. Participants experience puberty as a time where things exist on a continuum of rightness and wrongness in comparison with their peers and in relation to their specific variation. We suggest that the neoliberal aspiration to and illusion of bodily control and certainty provides the context within which the medical management of variations in sex characteristics makes sense. Going through medical intervention in relation to a variation in sex characteristics provides a very particular aspirational context for young people. The experience of puberty is intersectionally differentiated for young people with variations in sex characteristics.
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| 30. |
- Joy, Eileen, et al.
(author)
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Reproductive justice for children and young people with gonadal variations : Intersex, queer and crip perspectives
- 2023
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In: Aotearoa New Zealand Social Work. - 2463-4131. ; 35:4, s. 45-58
-
Journal article (peer-reviewed)abstract
- INTRODUCTION: This article draws on understandings from reproductive justice, crip and queer theories to discuss gonadectomy for children and young people with gonadal variations. Gonadectomy is sometimes performed on people with gonadal variations without their free and informed consent. Some parents report experiencing pressure to consent to such surgery when their children are young. We understand this to be an issue of reproductive justice.METHOD: Semi-structured interviews were conducted with parents of affected children and young people (n = 13). Thematic coding was used to identify data relating to gonads, ovaries, testes and gonadectomy. The data were analysed using discursive questions drawn from a reproductive justice framework. ANALYSIS: Parents’ talk about gonads suggests a process of sense-making that can be emotionally challenging. Our analysis situates their talk within broader societal discourses of ablebodiedness and the sex binary. Parents explained their choices and decisions by centring various understandings. Some explained how gonadectomy made sense for maintaining binary sex and following medical advice. Others emphasised the child’s consent and bodily autonomy. Our analysis draws out how parents’ decisions navigate reproductive justice and injustice.CONCLUSIONS: Dominant beliefs about ablebodiedness and the sex binary appear to influence and frame decision-making about the gonads of children and young people with variations in sex characteristics. A crip, queer, and reproductive justice lens allows us to expand understandings of reproductive justice for all and potentially helps to destabilise and disrupt the sex binary.
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| 31. |
- Kolankiewicz, Marta, et al.
(author)
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Addressing moment of discomfort as researchers in becoming
- 2019
-
Conference paper (other academic/artistic)abstract
- This panel session is based on chapters from the upcoming anthology ”The politics and ethics of representation: Moments of discomfort” (Routledge, forthcoming). The qualitative research process is often filled with moments of discomfort. These can appear during all stages of the research: when choosing the subject of your research, during fieldwork, in the process of analysis and when presenting research findings to different audiences. We take these moments of discomfort seriously and use them productively as a starting point for reflections on the politics and ethics of the research process. Starting from our experiences in carrying out eight different research projects as PhD-fellows, we analyse moments of discomfort as sites of knowledge production that help us gain important analytical insights into methodological, theoretical, ethical and political issues that are crucial for the fields in which we engage. We argue that moments of discomfort relate to an anxiety of representation. Hence, the main questions that we address during the panel session are: How can we create an ethical representation of those with whom our research is concerned? What can be said or not in certain contexts? What are the tensions between aims of what we wish to represent and how this representation is understood by different audiences in specific contexts? The chapters presented during the panel session correspond to three areas that are crucial for issues of ethics and politics: (1) writing and naming; (2) power and silences; (3) stories and audiences. The session addresses different issues such as the practices of anonymisation, acts of rejection in relation to informed consent, silences in the fieldwork and in relation to representation, and considerations of representing stories from the field for different audiences.
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| 32. |
- Lagerberg, Tove B, et al.
(author)
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An Investigation of the Clinical Use of a Single-Word Procedure to Assess Intelligibility (Swedish Test of Intelligibility for Children) and an Evaluation of the Validity and Reliability of the Intelligibility in Context Scale
- 2019
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In: Journal of Speech Language and Hearing Research. - : American Speech Language Hearing Association. - 1092-4388 .- 1558-9102. ; 62:3, s. 668-681
-
Journal article (peer-reviewed)abstract
- Purpose: Intelligibility is a core concept of speech-language pathology, central both to the assessment of speech disorders and to intervention in such disorders. One purpose of this study was to investigate the reliability and usability of a single-word assessment procedure, the Swedish Test of Intelligibility for Children (STI-CH), in a clinical setting. Another purpose was to investigate the validity and reliability of an assessment method designed to assess functional intelligibility: the Intelligibility in Context Scale (ICS). Method: Thirty children aged 4;1-10;1 years; months were recruited from speech-language pathology clinics in Western Sweden. Each child's treating speech-language pathologist served as listener in the STI-CH assessment while the ICS was completed by each child's parents. External listeners (2 last-year speech-language pathology students) were used to assess the validity of the speech-language pathology. Results: The mean duration of the test procedure for the STI-CH was about 19 min, and 57% of the test sessions were reported as difficult. There was a weak but statistically significant correlation between the results from the STI-CH and the ICS (r = .40, p < .05), and both methods showed high reliability in terms of interlistener reliability (intraclass correlation exceeding .97) and internal consistency, respectively. Conclusions: The STI-CH had high reliability and was time efficient but had some procedural problems. The ICS had moderate validity but high reliability. The STI-CH is promising for clinical use but needs to be developed further. The validity of the ICS can be discussed and needs to be further investigated.
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| 33. |
- Lantto, Reid, et al.
(author)
-
(Un)desirable approaches in therapy with Swedish individuals practicing BDSM : client’s perspectives and recommendations for affirmative clinical practices
- 2022
-
In: Psychology & Sexuality. - : Informa UK Limited. - 1941-9899 .- 1941-9902. ; 13:3, s. 742-755
-
Journal article (peer-reviewed)abstract
- This transformative study aimed to explore how people who practice BDSM (bondage, discipline, dominance, submission, sadism, masochism) experience therapy; specifically, what sort of therapist responses and qualities they described as problematic and desirable in relation to addressing BDSM in therapy. Semi-structured interviews were conducted with 27 Swedish BDSM practitioners with experiences of psychotherapy. The interviews were analysed using inductive thematic analysis. Three themes were identified: ‘A professional stance’, relating to how therapists handled their professional roles when BDSM was addressed, ‘Therapists’ approaches towards BDSM’, regarding therapists’ opinions and attitudes towards BDSM, and ‘Conversations about BDSM’, regarding how therapists handled conversation about the topic. Participants reported negative experiences where therapists expressed prejudice, judgment or pathologizing attitudes, failed to contain their own emotions, questioned their clients about BDSM, used their clients to inform themselves about BDSM, avoided or focused excessively on the topic. Positive experiences were characterised by non-judgement, asking client-centred questions, and stimulating a collaborative exploration of matters relevant to the client. BDSM practitioners’ experiences of therapy were related to those documented in the literature on other minoritized identities. This study contributes to the growing literature on kink-aware therapy, which makes psychotherapy more affirmative, accessible, and rewarding to BDSM practitioners.
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| 34. |
- Liao, Lih-Mei, et al.
(author)
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Clitoral surgery on minors : an interview study with clinical experts of differences of sex development
- 2019
-
In: BMJ Open. - : BMJ. - 2044-6055. ; 9:6
-
Journal article (peer-reviewed)abstract
- OBJECTIVES: Clitoral surgery on minors diagnosed with differences of sex development is increasingly positioned as a violation of human rights. This qualitative study identified how health professionals (HPs) navigate the contentious issues as they offer care to affected families.DESIGN: Qualitative analysis of audio-recorded semistructured interviews with HPs. All of the interviews were transcribed verbatim for theoretical thematic analysis.SETTING: Twelve specialist multidisciplinary care centres for children, adolescents and adults diagnosed with a genetic condition associated with differences of sex development.PARTICIPANTS: Thirty-two medical, surgical, psychological and nursing professionals and clinical scientists in 12 specialist centres in Britain and Sweden formed the interview sample.RESULTS: All interviewees were aware of the controversial nature of clitoral surgery and perceived themselves and their teams as non-interventionist compared with other teams. Data analyses highlighted four strategies that the interviewees used to navigate their complex tasks: (1) engaging with new thinking, (2) holding on to historical assumptions, (3) reducing the burden of dilemmas and (4) being flexible. In response to recent reports and debates that challenge clitoral surgery on minors, HPs had revised some of their opinions. However, they struggled to reconcile their new knowledge with the incumbent norms in favour of intervention as they counsel care users with variable reactions and expectations. The flexible approach taken may reflect compromise, but the interviewees were often trapped by the contradictory values and assumptions.CONCLUSIONS: If the pathology-based vocabularies and narratives about genital diversity could be modified, and normative assumptions are questioned more often, clinicians may be more adept at integrating their new knowledge into a more coherent model of care to address the psychosocial concerns that genital surgery purports to overcome.
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| 35. |
- Linander, Ida, 1987-, et al.
(author)
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The gender minority stress model and/or cisnormativity? : The need for pluralistic theoretical perspectives in improving trans health and medicine
- 2024
-
In: Social Science & Medicine. - : Elsevier. - 1873-5347 .- 0277-9536. ; 351
-
Journal article (peer-reviewed)abstract
- The minority stress model has become a well-used framework to explain and analyse health among LGBTQ people, and specifically among transgender and gender-diverse people (TGD), when it is sometimes called ‘the gender minority stress model’. Scholars have argued the need for critical discussions about some of the assumptions underlying the gender minority stress model and how it has been used and discussed. Drawing on a pluralistic understanding of theories and employing a Foucauldian understanding of critique, we discuss implicit assumptions and epistemological standpoints of the gender minority stress model and the connected limitations. We also ask what the concept of cisnormativity can give rise to in comparison with the minority stress framework. We make four arguments: 1) the calls for extensions to the model could be seen as a desire to understand and analyse TGD people's health from an all-encompassing perspective, resulting in theoretical vagueness and the silencing of excluded aspects; 2) in the gender minority stress literature, identity is largely taken for granted and there is no consideration of how power is constitutive for all subjects; 3) the model risks individualising the effects of social norms, and internalisation could be further theoretically developed in relation to the repression hypothesis; 4) in the translation process from LGB minorities to TGD, as well as in thinking about cisnormativity, the issue of gender-affirming care has largely been neglected. By initiating a critical discussion around these issues and illustrating how different theories and frameworks can illuminate different possibilities for thinking and knowing, we aim to open up new routes for thinking about TGD health and medicine.
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| 36. |
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| 37. |
- Lundberg, Tove, et al.
(author)
-
Att göra livet (över)levbart : Transpersoners ontiska, relationella och reflekterande arbete för att skapa minoritetsro och hantera utsatthet i vardagen
- 2022
-
In: Tidskrift för Genusvetenskap. - : Föreningen Tidskrift för genusvetenskap. - 1654-5443 .- 2001-1377. ; 43:1, s. 7-26
-
Journal article (peer-reviewed)abstract
- Transgender people report significantly poorer mental health than cisgender people. In psychological research, these health disparities are explained by theories of minority stress and microaggressions, while other disciplines use theories on normativity, livability, affective work, world making and utopias. Such theories are seldom picked up by psychologists even though they could serve to help psychological research and practice improve mental health in transgender people.The aim of this interview study was twofold. Empirically, it was to explore how 29 transgender people in Sweden (aged 17-63 years), experience and cope with vulnerability to make life survivable/livable. Analytically, psychological theories of minority stress, microaggressions and coping were put in conversation with theories of livability and emotional labor. Queer phenomenology was used to orient our analysis of the empirical material, as well as orient us theoretically, to find new ways of understanding transgender people’s vulnerability psychologically.While participants’ negative experiences are interpreted as covered by theories on minority stress and microaggressions, these theories do not explain all nuances of the exposure. In addition, theories on coping do not fully capture the constantly ongoing work participants need to do to manage everyday situations. The analysis resulted in three themes. One theme describes the ontic work that participants do in response to existential challenges of not being recognized as a subject. Another theme visualizes the relational work that participants do to deal with subtle exposure in their everyday life, trying to relate to oneself and others simultaneously. The final theme shows that participants utilize reactive and agentic reflexivity to try to achieve minority peace and a livable life. We hope that this dialogue between psychology and gender studies can continue in a Swedish context to better serve transgender people’s livability.
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| 38. |
- Lundberg, Tove, et al.
(author)
-
Att göra livet (över)levbart : Transpersoners ontiska, relationella och reflekterande arbete för att hantera utsatthet i vardagen
- 2022
-
In: Tidskrift för Genusvetenskap. - : Kungliga Biblioteket. - 1654-5443 .- 2001-1377. ; 43:1, s. 7-26
-
Journal article (peer-reviewed)abstract
- Transgender people report significantly poorer mental health than cisgender people. In psychological research, these health disparities are explained by theories of minority stress and microaggressions, while other disciplines use theories on normativity, livability, affective work, world making and utopias. Such theories are seldom picked up by psychologists even though they could serve to help psychological research and practice improve mental health in transgender people.The aim of this interview study was twofold. Empirically, it was to explore how 29 transgender people in Sweden (aged 17-63 years), experience and cope with vulnerability to make life survivable/livable. Analytically, psychological theories of minority stress, microaggressions and coping were put in conversation with theories of livability and emotional labor. Queer phenomenology was used to orient our analysis of the empirical material, as well as orient us theoretically, to find new ways of understanding transgender people’s vulnerability psychologically.While participants’ negative experiences are interpreted as covered by theories on minority stress and microaggressions, these theories do not explain all nuances of the exposure. In addition, theories on coping do not fully capture the constantly ongoing work participants need to do to manage everyday situations. The analysis resulted in three themes. One theme describes the ontic work that participants do in response to existential challenges of not being recognized as a subject. Another theme visualizes the relational work that participants do to deal with subtle exposure in their everyday life, trying to relate to oneself and others simultaneously. The final theme shows that participants utilize reactive and agentic reflexivity to try to achieve minority peace and a livable life. We hope that this dialogue between psychology and gender studies can continue in a Swedish context to better serve transgender people’s livability.
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| 39. |
- Lundberg, Tove, et al.
(author)
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Becoming ‘Unstuck’ Among Positionalities, Terms and Disciplines via Conversation (With Myself) : Exploring Potentials for Affective Reflexivity in Critical Intersex Studies
- 2021
-
In: The Politics and Ethics of Representation in Qualitative Research : Addressing Moments of Discomfort - Addressing Moments of Discomfort. - 9780429299674 ; , s. 9-29
-
Book chapter (peer-reviewed)abstract
- This chapter highlights the importance of collective conversations regarding how to navigate the complexity of positions, roles, stakes, interests and feelings that most researchers experience. The author explores a conversational format as a way of writing about affective reflexivity. The chapter departs in a PhD project focusing on the lived experiences of variations of sex characteristics, in other contexts referred to as ‘intersex’ or as ‘disorders of sex development’ (DSD), and how discomfort led the author to focus on terminology per se. Reconstructing the process leading up to this demonstrates how insights from clinical psychology can be used to understand and develop research reflexivity. Finally, ideas on affective reflexivity are presented in a conversational manner, where models from psychotherapeutic practices are combined with interdisciplinary approaches to reflexivity. The perspectives utilized might help critical intersex scholars, and other researchers, become ‘unstuck’ in controversial matters. The chapter contributes to the body of methodological literature that juxtaposes clinical psychology with qualitative methodologies and aims to open up for other collective and interdisciplinary conversations where research positionalities and perspectives can be highlighted in constructive ways.
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| 40. |
- Lundberg, Tove, et al.
(author)
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Can better sex education tackle the rise in female genital cosmetic surgery?
- 2019
-
In: Female Genital Cosmetic Surgery : Solution to What Porblem? - Solution to What Porblem?. - 9781108435529 ; , s. 99-106
-
Book chapter (peer-reviewed)abstract
- It has been suggested that “comprehensive sex education” is part of the solution for the rise in female genital cosmetic surgery (FGCS). This chapter represents the first attempt to outline what such sex education might entail. The strengths and weaknesses of sex education approaches are discussed. The inclusion of more accurate information relating to genital appearance and sexuality diversity and FGCS more specifically might be helpful. However, it is argued that sex education interventions should be underpinned by norm-critical thinking. These interventions, which transcend information giving per se, would interrogate taken-for-granted assumptions about sex and sexuality and draw on psychosocial research to promote a positive body image and self-evaluation. As such they would have a higher chance of fostering personal agency in young women (and men) in sexuality. The chapter discusses how such norm-critical sex education interventions could be developed.
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| 41. |
- Lundberg, Tove, et al.
(author)
-
Exploring reflexive methodology as a pluralist approach to enhance mixed methods research on coping and livability among LGBTQ people in Sweden
- 2024
-
In: Qualitative Research in Psychology. - : Routledge. - 1478-0887 .- 1478-0895.
-
Journal article (peer-reviewed)abstract
- The article explores the use of reflexive methodology to enhance mixed methods queer psychological research in Sweden, by analysing data from a qualitative research project on how LGBTQ people cope with minority stress from four epistemological perspectives. A descriptive, hermeneutically and phenomenologically inspired analysis showed that coping should be understood from temporal perspective, where ‘microcoping’ covers strategies used in specific here and now-situations, and ‘macrocoping’ addresses general strategies used over time. We suggest that this differentiation is explored in further research. The analysis then included a theoretically driven perspective using feminist theories and discursive perspectives. Three themes resulted describing different types of constant ongoing work, ‘existential’, ‘relational’ and ‘reflexive’, that participants utilized to carve out a livable existence in the world. We suggest that reflexive methodology can help produce results that can be useful in a local as well as an international context and in relation to different audiences.
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| 42. |
- Lundberg, Tove, et al.
(author)
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How young people talk about their variations in sex characteristics : making the topic of intersex talkable via sex education
- 2021
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In: Sex Education. - : Informa UK Limited. - 1468-1811 .- 1472-0825. ; 21:5, s. 552-567
-
Journal article (peer-reviewed)abstract
- Classrooms are important spaces for young people with variations in sex characteristics and their classmates. Sex education can promote agency and well-being by helping young people make sense of their embodiment and form rewarding social relationships and by changing societal understandings about variations in sex characteristics. Realising this potential however may hinge on how sex education makes intersex (un)talkable. We draw on interviews with 22 young people on how and why they try to make their variation in sex characteristics talkable with others. By focusing on how they talk to others and why they do not talk to others, this research highlights how participants ‘fear rejection’ but need to talk to others about their variation in the process of ‘dealing with it’. Participants also struggle with ‘secrecy versus privacy’ and how to ‘communicate strategically.’ Findings acknowledge the emotional work required of people with variations in sex characteristics when making intersex talkable. The analysis points to the role of both talking and silence. We conclude by envisaging a norm-critical sex education that engages with the responsibilities of both talking and listening, shifting the burden away from individual young people with variations in sex characteristics and working towards more mutual social relationships.
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| 43. |
- Lundberg, Tove, et al.
(author)
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Key Push and Pull Factors Affecting Return to Work Identified by Patients With Long-Term Pain and General Practitioners in Sweden
- 2019
-
In: Qualitative Health Research. - : SAGE Publications. - 1049-7323 .- 1552-7557. ; 29:11, s. 1581-1594
-
Journal article (peer-reviewed)abstract
- Research shows that working is positive for people with long-term pain but that work-related support from health professionals is inadequate. One explanation for this inadequacy is that patients and providers differ in terms of perspectives on motivation to work. In this article, we compare factors that 31 patients and 15 general practitioners consider important to promote return to work for people with long-term pain. We analyzed the interviews with thematic analysis and a motivational push and pull framework to cover different motivational factors, societal and individual, that might push or pull patients from or toward work. Providers said that a difference between working and nonworking patients is their level of individual motivation, while the patients’ stories showed that the main difference was the physical (non)ability to push themselves to work. We suggest that work-related support can be improved by addressing such differences in clinical practice.
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| 44. |
- Lundberg, Tove
(author)
-
Lesbisk
- 2017
-
In: HBTQ+: Psykologiska perspektiv och bemötande. - 9789127147430 ; , s. 103-112
-
Book chapter (peer-reviewed)
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| 45. |
- Lundberg, Tove, et al.
(author)
-
Normkritiska perspektiv : Nya möjligheter för svensk psykologisk praktik
- 2017
-
In: Lambda Nordica. - 1100-2573. ; 22:4, s. 66-99
-
Journal article (peer-reviewed)abstract
- In this paper, we suggest that psychology as a science, and especially as a clinical practice, can develop new ways of thinking and working with clients by including critical, feminist, and norm-critical approaches. Ethical guidelines highlight that psychologists should respect the client’s rights and dignity. New policies for evidence-based psychological practice also emphasize responsiveness to the sociocultural context, including the client’s gender, gender identity, and sexuality. We initiate a discussion on how psychologists can consider the sociocultural context ethically by introducing norm-critical perspectives to our practice. Psychologists, as well as our clients, are affected by the social and cultural standards of the society in which we live. The goal of norm-critical approaches is to make societal norms and taken for granted psychological understandings explicit, and interrogate the effects these might have on people’s lives. This includes investigating how norms make it (im)possible for people to live in accordance with their values. We suggest that the reflexive process required by psychologists should be extended to include reflexivity on different levels, at the workplace, among colleagues, and in collaboration with the client. Strategies such as queer listening as well as developing the skills already used in psychological treatment could facilitate such processes.
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| 46. |
- Lundberg, Tove, et al.
(author)
-
Professional Coping Strategies in a Temporal Perspective : A Pilot Study on How Swedish General Practitioners Deal With Challenges Inherent in Pain Management
- 2021
-
In: SAGE Open. - : SAGE Publications. - 2158-2440. ; 11:3, s. 1-14
-
Journal article (peer-reviewed)abstract
- The aim of this study was to explore how general practitioners cope with the challenges they face when trying to provide effective interventions to pain patients within the organizational context of a health center. Based on interviews with 15 Swedish providers, the study suggests that the challenges that general practitioners experience in the consultations with patients must be understood in a temporal perspective related to the process of care (from initial consultations to “post-treatment”) and the help-seeking process (close to the onset of problems or later). The coping strategies used to handle these challenges can be summarized into four major domains. First, participants adopted a biopsychosocial model to provide proper care. Second, they employed strategies to enhance communication. Third, they coped with the organizational environment, and fourth, they used strategies to cope emotionally. The study contributes to a holistic perspective on providers’ coping strategies by addressing temporal and organizational aspects.
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| 47. |
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| 48. |
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| 49. |
- Lundberg, Tove, et al.
(author)
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The formation of an LGBTQ network for psychologists in Sweden : A work in progress
- 2016
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In: Psychology of Sexualities Review. - London, United Kingdom : The British Psychological Society. - 2047-1467. ; 7:1, s. 29-40
-
Journal article (peer-reviewed)abstract
- The mobilisation of psychologists in Sweden working for lesbian, gay, bisexual, trans* and queer (LGBTQ) wellbeing and rights has so far not succeeded in creating continuity despite several attempts to establish some kind of organisation since the mid 1990s. A new attempt was made in 2013 when the Swedish LGBTQ network for psychologists was formed following a formal decision at the congress of the Swedish Psychological Association. Even though the establishment of the network is still a work in progress, the network consists of approximately 100 members and seems to be growing. This paper describes some historical highlights from Swedish LGBTQ psychology, as well as how the network came about, underpinning perspectives and what the network aims to achieve.
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| 50. |
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