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| 6. |
- Ahlborg, Tone, 1950, et al.
(author)
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Perception of marital quality by parents with small children: a follow-up study when the firstborn is 4 years old.
- 2009
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In: Journal of family nursing. - : SAGE Publications. - 1074-8407 .- 1552-549X. ; 15:2, s. 237-63
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Journal article (peer-reviewed)abstract
- Swedish couples' perceptions of their marital quality when their firstborn was 6 months old and then 4 years later were studied in 2002 and 2006, respectively. The results show that almost half of the 368 responding parents were satisfied with their marital relationship both in 2002 and 2006 as assessed by a modified Dyadic Adjustment Scale. However, a study of the various dimensions showed a significant decrease in marital quality. Housework and child care were perceived as having a greater strain on the relationship between couples who had had additional children during this period. Dyadic Sexuality and Dyadic Cohesion were the most significant predictors of marital quality. Covariates of marital quality in the group with additional children were "partner relation and parenthood perceived as a strain" and "perceived social support." The results emphasize the need for supportive interventions for parents with children aged 0 to 4 years.
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| 7. |
- Anderheim-Söderqvist, Lisbeth, 1952, et al.
(author)
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Does psychological stress affect the outcome of in vitro fertilization?
- 2005
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In: Human Reproduction. - : Oxford University Press (OUP). - 0268-1161 .- 1460-2350. ; 20:10, s. 2969-75
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Journal article (peer-reviewed)abstract
- BACKGROUND: The aim of the study was to investigate the effect of psychological stress before and during IVF treatment on the outcome of IVF, controlling for known physiological predictors METHODS: This is a prospective, longitudinal study A total of 166 women were studied during their first IVF treatment They answered questionnaires concerning psychological and social factors on two occasions Psychological well-being was measured by the Psychological General Well-Being (PGWB) index and psychological effects of infertility were assessed by 14 items RESULTS: In the analysis of the psychological variables, no differences were found between pregnant and non-pregnant women The total number of good quality embryos, the number of good quality embryos transferred, and the number of embryos transferred were significantly higher in the pregnant than in the non-pregnant group In a multivariate analysis, the number of good quality embryos transferred was the only variable that was independently associated with pregnancy CONCLUSIONS: We found no evidence that psychological stress had any influence on the outcome of IVF treatment When counselling infertile couples, it might be possible to reduce the stress they experience during the treatment procedure by informing them of these findings
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| 9. |
- Berg, Linda, 1961, et al.
(author)
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Characterisation of Cancer Support and Rehabilitation Programmes: A Swedish Multiple Case Study
- 2014
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In: The open nursing journal. - : Bentham Science Publishers Ltd.. - 1874-4346. ; 8, s. 1-7
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Journal article (peer-reviewed)abstract
- Cancer support and rehabilitation are suggested to be an integral part of cancer care strategies. This study focuses on comparativeness of cancer support and rehabilitation programmes. The aim of this study was to analyse available cancer support and rehabilitation programmes in Sweden presented as complementary to cancer rehabilitation at cancer clinics. A multiple case study design was chosen in order to inquire the small number of existing supportive and rehabilitative cancer programmes. Based on the structures, processes and outcomes of the nine included programmes, three types of cancer support and rehabilitation programmes were identified: multimodal rehabilitation, comprehensive cancer support and art therapy. Cancer support and rehabilitation programmes offer a variety of activities and therapies which are highly valuable and relevant for people with cancer. The typology of cancer support and rehabilitation programmes and comparability between programmes need further inquiry.
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| 13. |
- Carlsson, Gunnel, 1950, et al.
(author)
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A qualitative study of the consequences of 'hidden dysfunctions' one year after a mild stroke in persons <75 years.
- 2004
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In: Disability and rehabilitation. - 0963-8288. ; 26:23, s. 1373-80
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Journal article (peer-reviewed)abstract
- BACKGROUND AND PURPOSE: Increased mental fatiguability, concentration and memory difficulties, irritability, emotional instability, impaired stress tolerance, and sound and light sensitivity, in this paper operationalized through the astheno-emotional syndrome (AE syndrome) are known consequences of stroke. The aim of this study was to explore how persons with AE syndrome, one year after a mild stroke, experienced the consequences of the syndrome in everyday life. METHOD: A qualitative design was used. Fifteen respondents were chosen by strategic sampling and interviewed. The analysis was done using a grounded theory method. RESULTS: Data analysis yielded harmed/threatened self as the core category with four main categories covering the dimensions of: hidden-apparent dysfunction, predictability-unpredictability, independence-dependence and active life-passive life. The model grounded in data shows the structural properties and the processes that verify the dynamics and interactions of the everyday life consequences of AE syndrome. CONCLUSIONS: AE syndrome with mental fatiguability as the most common symptom affected many dimensions of everyday life, which in turn affected performance of activities and independence. The symptoms were 'hidden' in many ways, not only indetectable in the appearance of the person, but also on a more symbolic level not apparent to the patient and persons in their environment. The symptoms changed with environmental circumstances and were experienced as unpredictable.
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| 15. |
- Carlsson, Gunnel, 1950, et al.
(author)
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Comparison of life satisfaction within couples one year after a partner's stroke
- 2007
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In: J Rehabil Med. - : Medical Journals Sweden AB. - 1650-1977. ; 39:3, s. 219-24
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Journal article (peer-reviewed)abstract
- OBJECTIVE: To compare life satisfaction within couples one year after a partner's stroke and with norm values and social factors. SUBJECTS AND METHODS: A total of 56 couples were consecutively included. The respondents estimated life satisfaction using the Life Satisfaction Checklist 9-item version. Patients' impairments, self-care ability and handicap were assessed. Social characteristics were registered. Non-parametrical statistical methods were used for analyses. RESULTS: Patients were physically mildly disabled by their stroke. The most common symptom was mental fatigability. Patients were, in general, less satisfied than spouses. The couples were less satisfied than norms. Satisfaction with life as a whole, leisure and sex life were most affected for both patients and spouses. Relationship with partner was the only domain in which patients were more satisfied than their spouses and almost equally satisfied compared with norms. The proportion of couples in which both partners agreed they were satisfied, for the following domains was: leisure time 20%, sex life 25%, vocation/occupation 29%, life as a whole 30%, finances 47%, social contacts 48%, relationship with partner 60%, family life 66% and ability in self-care 66%. CONCLUSION: Life satisfaction was negatively affected in both partners, although in different life domains. Support should address the different needs of patients and spouses as well as their mutual needs.
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| 16. |
- Carlsson, Gunnel, 1950, et al.
(author)
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Consequences of mild stroke in persons <75 years -- a 1-year follow-up.
- 2003
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In: Cerebrovascular diseases (Basel, Switzerland). - : S. Karger AG. - 1015-9770 .- 1421-9786. ; 16:4, s. 383-8
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Journal article (peer-reviewed)abstract
- BACKGROUND AND PURPOSE: Mild strokes can be neglected regarding subtle sequels as fatigue, and cognitive and emotional changes. We have addressed this topic by exploring late consequences of an initially mild stroke (Barthel score >or=50). Accordingly, we assayed impairment, disability and handicap data 1 year after the first-ever stroke in persons <75 years, focusing on symptoms as fatigue, concentration difficulties, memory disturbances, emotional lability, stress resistance, anxiety and uneasiness, symptoms comprised in the astheno-emotional disorder (AED), and its relation to life satisfaction. RESULTS: The mean value of the Barthel Index was 99.5 (SD 0.5) and 25% scored 0-1 on the Oxford Handicap Scale. AED was diagnosed in 71% of the patients, and fatigue was experienced by 72%. AED correlated significantly with life satisfaction, handicap and depression. Life satisfaction was significantly below that of norm values according to satisfaction with life as a whole, sex life and ability to manage selfcare. CONCLUSIONS: Our findings emphasize that 'hidden dysfunctions' not so easily discovered within the hospital context are common consequences of mild stroke. The concept of mild stroke as principally founded in motor function or ability in P-ADL therefore seems to be insufficient with respect to the patient long-term perspective.
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| 17. |
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| 19. |
- Carlsson, Gunnel, 1950, et al.
(author)
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Managing an everyday life of uncertainty - A qualitative study of coping in persons with mild stroke.
- 2009
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In: Disability and rehabilitation. - : Informa UK Limited. - 0963-8288 .- 1464-5165. ; , s. 1-10
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Journal article (peer-reviewed)abstract
- Aim. The aim of this study was to investigate from the actor's perspective how and why persons with mild stroke coped with their new life situation as they did, during the first year after stroke. Method. Eighteen persons physically recovered and independent in P-ADL were interviewed 1 year after stroke. The most common symptoms experienced by the respondents were mental fatigability, memory and concentration difficulties, increased stress sensitivity, irritability, emotionalism, lack of initiative and sensitivity to lights and sounds. The questions concerned how and why the respondents tried to cope with their condition as they did. The interviews were transcribed verbatim and analysed using the grounded theory method. Results. Despite a mild stroke, the respondents still after 1 year found everyday life a struggle of uncertainty. Individual and relational concerns and environmental conditions were categories grounded in data describing the coping efforts. The co-occurrence of positive and negative feelings during coping was an important finding. Leisure activities served as an important source of coping. Conclusion. Still 1 year after a stroke that in the acute phase was classified as mild, with expectations of complete recovery, respondents struggled to cope with its consequences and often experienced an everyday life of uncertainty.
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| 20. |
- Carlsson, Gunnel, 1950, et al.
(author)
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Mild stroke - are they really mild?
- 2005
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In: The first World Congress of the International Society for Vascular Behavioural and Cognitive Disorders (VAS-COG 2003) Göteborg 28-31 aug 2003.
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Conference paper (other academic/artistic)
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| 21. |
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| 22. |
- Forsberg, Anna, 1969, et al.
(author)
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Experiencing liver transplantation: a phenomenological approach.
- 2000
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In: Journal of advanced nursing. - 0309-2402. ; 32:2, s. 327-34
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Journal article (peer-reviewed)abstract
- In order to promote health, nurses and other health care professionals need to discover and articulate the meaning that is implicit in experiencing life after liver transplantation. From such an understanding, appropriate nursing interventions can be based. The aim of this study was to investigate the subjective experiences of the meaning of having a liver transplant, 1 year after the transplantation. After approval from the ethics committee at Goteborg University, 12 patients, nine women and three men, were interviewed. The study sample was chosen strategically to represent common diagnoses preceding liver transplantation. A phenomenological approach was chosen for the study. Analyses of the interviews were based on a modified version of a phenomenological method by Karlsson. Seven categories emerged: facing the inevitable; recapturing the body; emotional chaos; leaving the experts; family and friends; the threat of graft rejection; and honouring the donor. Having undergone a liver transplant meant living in a paradoxical situation. Knowing that you survived, it was a struggle to regain physical strength under great emotional stress. The recipients had to self-administer life-long medication, recognize symptoms indicating a potential problem and monitor for the possibility of graft rejection. Social support was essential for recovery. Meeting others with the same experience helped liver-transplanted patients to deal with their identity crises as well as undergo a transformation from being utterly unique to a survivor among others. The clinical implications from this study are that interventions, such as patient education, and social and mental support, are important tools to optimize both self-care capacity and the ability to maintain a healthy perception of identity after having a liver transplant at least up to 12 months post-transplant.
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| 26. |
- Forsberg-Wärleby, Gunilla, 1953, et al.
(author)
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Life satisfaction in spouses of patients with stroke during the first year after stroke
- 2004
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In: J Rehabil Med. - : Medical Journals Sweden AB. - 1650-1977. ; 36:1, s. 4-11
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Journal article (peer-reviewed)abstract
- OBJECTIVE: The aims of this study were to investigate whether spouses' life satisfaction changed between their life prior to their partner's stroke, and at 4 months and 1 year after stroke, and to study the association between spouses' life satisfaction and objective characteristics of the stroke patients. SUBJECTS AND METHODS: Sixty-seven consecutively enrolled spouses to first-ever stroke patients < 75 years of age participated. Life satisfaction was measured with the Life Satisfaction Checklist (LiSat-9). RESULTS: Compared with their life before stroke, the spouses' satisfaction with life as a whole, their leisure situation, daily occupation, sexual life, partner relationship and social contacts was lower 4 months after stroke. No significant change in life satisfaction was observed between 4 months and 1 year. Spouses of patients with sensorimotor impairment and low ability in self-care were less satisfied with their leisure situation, daily occupations, own ability in self-care, sexual life and partner relationship. Spouses of patients with cognitive or astheno-emotional impairments were less satisfied with their partner relationship, family life and sexual life. The associations were stronger at 1 year than at 4 months. CONCLUSION: There is a need for support over a long time period that focuses on the social, occupational and leisure situation of spouses as well as that of patients.
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| 30. |
- Forsberg-Wärleby, Gunilla, 1953, et al.
(author)
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Psychological well-being of spouses of stroke patients during the first year after stroke
- 2004
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In: Clin Rehabil. - : SAGE Publications. - 0269-2155. ; 18:4, s. 430-7
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Journal article (peer-reviewed)abstract
- OBJECTIVE: To investigate whether spouses' psychological well-being changed between the first weeks after their partner's stroke and four months and one year later, and to study the relationship between spouses' psychological well-being and objective characteristics of the stroke patients. DESIGN: Prospective, longitudinal study. SETTING: Hospital care and follow-ups. SUBJECTS: Sixty-seven consecutively enrolled spouses to first-ever stroke patients < 75 years. MAIN MEASURES: The Psychological General Well-Being (PGWB) Index. Clinical examination of the stroke patients. The Barthel Index. RESULTS: The spouses' psychological well-being was significantly lower in the first weeks after their partner's stroke as compared with norms. At four months, it had increased significantly. Between four months and one year, individual changes were observed in both positive and negative directions; thus, the mean level of the group remained constant. The spouses' psychological well-being in the first weeks was significantly related to the patients' sensorimotor impairments, while it was related at four months to cognitive impairment and the patients' abilities in self-care. At one year, psychological well-being was related to remaining sensorimotor and cognitive impairments. A significant relationship was also seen between the spouses' and the stroke patients' emotional health. CONCLUSIONS: The spouses' psychological well-being increased after the first chaotic weeks. The presence of visible impairments initially seemed to affect spouses' emotional health, while cognitive and emotional impairments became more evident in everyday life. In the long term, however, the spouses' individual life situations and coping abilities seem to be of relatively increasing importance for their continued well-being.
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| 31. |
- Forsberg-Wärleby, Gunilla, 1953, et al.
(author)
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Relationship between sense of coherence and psychological well-being in spouses of stroke patients
- 2007
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In: 14th Nordic Meeting on Cerebrovascular Diseases.
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Conference paper (other academic/artistic)abstract
- RELATIONSHIP BETWEEN SENSE OF COHERENCE AND PSYCHOLOGICAL WELLBEING IN SPOUSES OF STROKE PATIENTS Background. Spouses of stroke patients often perceive stress and low well-being. To better support spouses it is important to identify predictors of well-being early on, in the first phase after their partner’s stroke. The concept of Sense of Coherence is assumed to be related to coping ability and health. The concept is composed of three closely interwined sub-components: Comprehensibility, Manageability and Meaningfulness. Aim: To explore the relationship between spouses’ SOC in the first weeks after their partner’s stroke and psychological well-being during the first year. Method: Sixty-two consecutively included spouses (18 men and 44 women, mean age 57 years) participated. Data concerning SOC (The SOC-29 Questionnaire) and psychological well-being (the Psychological General Well-Being (PGWB) Index) were gathered after ten days, four months and one year. Results: The spouses’ SOC in the first week after their partner’s stroke was increasingly significantly associated with emotional well-being during the first year. Sense of manageability in life was increasingly associated with the dimensions of spouses’ well-being (anxiety, depressed mood, positive well-being, self-control, general health and vitality) from the first week after stroke. Sense of comprehensibility in life was associated with all dimensions of well-being at four months and with four dimensions at one year. Sense of meaningfulness in life was increasingly associated with positive well-being, self-control and vitality at four months and one year. Conclusion: The spouses’ SOC in the first weeks after partner’s stroke seems to have ability to predict well-being during the first year after the stroke. Care and rehabilitation staff should focus on spouses whose rates show a low sense of comprehensibility and manageability as concerns support in understanding the consequences of stroke and finding strategies to cope with their new everyday tasks and life situation.
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| 32. |
- Forsberg-Wärleby, Gunilla, 1953, et al.
(author)
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Spouses of first-ever stroke patients: psychological well-being in the first phase after stroke
- 2001
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In: Stroke. - 1524-4628. ; 32:7, s. 1646-51
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Journal article (peer-reviewed)abstract
- BACKGROUND AND PURPOSE: A stroke affects not only the patient but also the spouse. To better support the spouse during the acute phase of stroke, knowledge is needed about his or her experience with the situation. The aim of the present study was to study the well-being of the spouses of stroke patients during the acute state of stroke and to identify factors that may influence their well-being. METHODS: Eighty-three consecutively enrolled spouses of first-ever stroke patients <75 years old participated. Their psychological well-being, measured by the Psychological General Well-Being Index 10 days after the stroke, was compared with norm values. Multiple analyses of correlation were performed to investigate the effects on psychological well-being of (1) age and sex, (2) level of impairment of the stroke patient, and (3) intrapersonal variables such as previous life satisfaction and view of the future. RESULTS: The study group showed significantly lower psychological well-being compared with norm values except for the dimension of general health. The variables that correlated significantly with the Psychological General Well-Being total score were the sensorimotor impairment of the stroke patient and the "view of the future." This view of the future also correlated significantly with the level of functional ability of the stroke patients. CONCLUSIONS: During the acute phase of stroke, the severity of the stroke has an impact on the spouse's image of his or her future life, whereas the individual appraisal of personal consequences and of his or her own coping capacity seems to have a greater impact on the psychological well-being of the spouses than does the objective state of disability.
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| 33. |
- Forsberg-Wärleby, Gunilla, 1953, et al.
(author)
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Spouses of first-ever stroke patients: their view of the future during the first phase after stroke
- 2002
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In: Clin Rehabil. - 0269-2155. ; 16:5, s. 506-14
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Journal article (peer-reviewed)abstract
- BACKGROUND: A partner's stroke can be perceived as a critical event by a spouse. Previous studies have focused primarily on the impact of stroke on spouses' psychosocial well-being over the long term. However, the experience of spouses in the first phase after stroke is not well known. AIM: To investigate spouses' perception of their future daily life after stroke and the association between this perception and the objective characteristics of the stroke. METHOD: Eighty-three consecutively enrolled spouses of first-ever stroke patients < 75 years admitted to Sahlgrenska University Hospital in Goteborg, Sweden participated. The mean age of the spouses was 57 years. Sixty-two of the spouses were women and 21 men. Interviews about their experiences 10 days after onset were generally made at the hospital. The interviews were analysed, categorized and combined with statistical analyses of variables such as ages and sex of the spouses, type of lesion and presence of neurological impairments in the stroke patient. RESULTS: Four different categories of the concept 'view of the future' were developed on the basis of the interviews. Of the different characteristics of the stroke, the severity of the sensorimotor impairment seemed to have the greatest impact on the spouses' view of the future. The spouses of stroke patients with pure sensorimotor impairment were more likely to have an optimistic view of the future than when the sensorimotor impairment was combined with cognitive deficits. There was a broad distribution of the different characteristics of stroke between the four categories. CONCLUSIONS: Although the perception of future daily life varied, it was possible to categorize the spouses' cognitive image of future life according to degree of optimism. While the severity of stroke was of importance, the individual perception of the disease, impact on future activities and the spouses' own coping capacity was of great significance for the perception of future daily life.
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| 34. |
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| 35. |
- Forsberg-Wärleby, Gunilla, 1953, et al.
(author)
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Spouses of first-ever stroke victims: sense of coherence in the first phase after stroke
- 2002
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In: J Rehabil Med. - 1650-1977. ; 34:3, s. 128-33
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Journal article (peer-reviewed)abstract
- According to Antonovsky, the individual's sense of coherence is assumed to be crucial in coping with stressful life events. The purpose of this study was to investigate the associations between the sense of coherence of the spouses of stroke victims, the objective severity of the stroke and the spouses' perception of life satisfaction, psychological well-being and cognitive image of life in the future in the first phase after stroke. Eighty-three consecutively enrolled spouses to first-ever stroke victims < 75 years participated. Multiple correlations were done to study the association between Antonovsky's 29-item Sense of Coherence scale and the objective impairments of the stroke victim, the Life Satisfaction Checklist, the "view of the future" and the Psychological General Well-being Index. The sense of coherence was significantly associated with satisfaction with life as a whole before stroke (p < 0.001), partnership (p = 0.002), sexual life (p = 0.005), family life (p < 0.001) and financial situation (p = 0.001). The severity of the impairments of the stroke victims was not significantly associated with the spouses' sense of coherence. However, the sense of coherence was significantly associated with the perception of the future life situation (p = 0.006). The sense of coherence was also significantly associated with the perception of positive well-being (p = 0.007), self-control (p = 0.009), general health (p = 0.009) and vitality (p = 0.002) at the present, whereas the association with anxiety and depressed mood were not statistical significant. In the experience of a stressful life event such as stroke, satisfaction with general life, close relationships and the socio-economic situation were significantly associated with the spouse's sense of coherence. Spouses with a low sense of coherence were more likely to have low psychological well-being and a more pessimistic view of their life in the future.
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| 36. |
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| 37. |
- Frisén, Lars, et al.
(author)
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Gender role behavior, sexuality, and psychosocial adaptation in women with congenital adrenal hyperplasia due to CYP21A2 deficiency
- 2009
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In: J Clin Endocrinol Metab. - : The Endocrine Society. ; 94:9, s. 3432-9
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Journal article (peer-reviewed)abstract
- CONTEXT: Gender-atypical behavior has been described in young girls as well as in women with congenital adrenal hyperplasia (CAH) due to a CYP21A2 deficiency. OBJECTIVE: The aim of the study was to assess health-related, psychosexual, and psychosocial parameters and correlate the results to CYP21A2 genotype. DESIGN AND PARTICIPANTS: Sixty-two Swedish women with CAH and age-matched controls completed a 120-item questionnaire and a validated quality of life instrument [psychological general well-being (PGWB) formula] to identify psychosexual and psychosocial parameters. The patients were divided into four CYP21A2 genotype groups. RESULTS: The women with CAH held more male-dominant occupations (30%) compared to controls (13%) (P = 0.04), especially those in the null genotype group (55%) (P = 0.006). They also reported a greater interest in rough sports (74%) compared to controls (50%) (P = 0.007). Eight women with CAH (14%) reported a prime interest in motor vehicles, compared to none of the controls (P = 0.002). Non-heterosexual orientation was reported by 19% of women with CAH (P = 0.005), 50% in the null genotype group (P = 0.0001), 30% in I2 splice (NS), and 5% in I172N (NS). PGWB total score did not differ between patients and controls. CONCLUSION: We identified increased gender-atypical behavior in women with CAH that could be correlated to the CYP21A2 genotype. This speaks in favor of dose-dependent effects of prenatal androgens on the development of higher brain functions. The impact of the disease on upbringing and interpersonal relationships did not correlate with disease severity, indicating that other factors, such as coping strategies, are important for psychosocial adaptation. This illustrates the need for psychological support to parents and patients.
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| 38. |
- Gejervall, Ann-Louise, 1963, et al.
(author)
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Electro-acupuncture versus conventional analgesia: a comparison of pain levels during oocyte aspiration and patients' experiences of well-being after surgery
- 2005
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In: Hum Reprod. ; 20:3, s. 728-35
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Journal article (peer-reviewed)abstract
- BACKGROUND: The primary aims were to compare the pain-relieving effect and post-operative well-being between electro-acupuncture analgesia (EA) and conventional analgesia (CA) comprising opiates. Further aims were to compare time for mobilization, and costs for time and drug consumption. METHODS: In all, 160 women undergoing IVF were randomized, according to a computer-generated list, to EA or CA. Well-being was evaluated with the State Trait Anxiety Inventory (STAI). Pain and subjective expectations and experiences were recorded on a visual analogue scale (VAS). Time and drug consumption were recorded. RESULTS: Although VAS pain ratings were significantly higher at oocyte aspiration (P < 0.0001) and after retrieval (P < 0.01) in the EA than in the CA group, they were similar 60 min after surgery. Both groups had similar STAI well-being scores. The EA group was significantly less tired and confused than the CA group after oocyte aspiration. No significant differences in time and costs for drug consumption were noted. CONCLUSION: EA cannot generally be recommended as a pain-relieving method at oocyte aspiration but might be an alternative for women desiring a non-pharmacological method. An advantage of EA is less post-operative tiredness and confusion compared with CA.
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| 39. |
- Holter, Herborg, 1960, et al.
(author)
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First IVF treatment--short-term impact on psychological well-being and the marital relationship
- 2006
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In: Hum Reprod. ; 21:12, s. 3295-302
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Journal article (peer-reviewed)abstract
- BACKGROUND: The aim of this study was to assess infertile couples' short-term emotional responses to their first IVF treatment (the women's and men's emotional reactions and their experiences of the marital relationship at different stages of the first treatment) and to relate these responses to the outcome of the IVF treatment METHODS: The study was part of a prospective, longitudinal study where 117 couples participated The women and men answered questionnaires separately concerning psychological and social factors at three occasions: before, during and 1 month after treatment RESULTS: Women's and men's emotional reactions related to first IVF treatment were dependent on whether they achieved a pregnancy or not Those who failed to become pregnant rated their emotional well-being worse, whereas those who became pregnant rated their emotional well-being better than before treatment started The women reported stronger emotional reactions about their infertility than their husbands However, the men reacted in the same emotional pattern as their wives when pregnancy was not achieved A majority reported that the marital relationship improved during treatment CONCLUSION: Couples undergoing their first IVF treatment are as a group well adjusted and manage to handle the short-term emotional strain under treatment The determining factor for short-term emotional response of treatment was whether pregnancy was achieved
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| 40. |
- Holter, Herborg, 1960, et al.
(author)
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The psychological influence of gender infertility diagnoses among men about to start IVF or ICSI treatment using their own sperm
- 2007
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In: Hum Reprod. ; 22:9, s. 2559-65
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Journal article (peer-reviewed)abstract
- BACKGROUND The aim of the present study was to investigate the psychological influence of gender infertility diagnoses among men in couples about to start their first IVF or ICSI treatment METHODS The study was a part of a prospective study of 65 men with male infertility diagnosis and 101 men in couples with female, mixed and unexplained infertility diagnoses Of the 200 men invited, 166 agreed to participate (83% response rate) The men answered questionnaires concerning psychological and social factors on three occasions, at the information meeting held 2-4 weeks prior to first treatment, 1 h before oocyte retrieval and 2 weeks after the pregnancy test RESULTS The main findings of this study gave no indication that male infertility influenced men negatively concerning their experience of infertility, view of life and relationships and psychological well-being We found that men with a male factor infertility diagnosis reacted in a similar way as compared with men in couples where the diagnosis was female, mixed or unexplained infertility CONCLUSIONS In general, men are well adjusted with regard to a first IVF/ICSI treatment cycle, independent of gender infertility diagnoses
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| 41. |
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| 42. |
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| 43. |
- Phillips, L., et al.
(author)
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A qualitative content analysis of the experience of hypospadias care: The importance of owning your own narrative
- 2023
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In: Frontiers in Pediatrics. - : Frontiers Media SA. - 2296-2360. ; 11
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Journal article (peer-reviewed)abstract
- ObjectivesThere is a lack of studies on men's individual experiences of living with hypospadias. We aimed to explore the personal experiences of having hypospadias in relation to healthcare and surgery.Subjects and methodsPurposive sampling was used to include men (aged 18 and over) with hypospadias representing different phenotypes (from distal to proximal) and ages in order to maximise the variation and richness of our data. Seventeen informants, aged 20-49, were included in the study. In-depth semi-structured interviews were conducted between 2019 and 2021. Inductive qualitative content analysis was used to analyse the data.ResultsWe identified three categories: (1) Having surgery, which comprised the decision to operate, the experience of having surgery, and the outcomes of surgery; (2) Going to the doctor, which focused on follow-up care, re-entering care in adolescence or adulthood, and the experience of healthcare interactions; (3) Being informed, both about hypospadias in general, as well as about your specific body and medical history. There was overall a large variation in experiences. The latent theme across the data was the importance of owning your own narrative.ConclusionThe experience of men with hypospadias in healthcare is complex and varied, highlighting the difficulty of fully standardised care. Based on our results, we suggest that follow-up should be offered in adolescence, and that ways of accessing care for late onset complications be made clear. We further suggest clearer consideration for the psychological and sexual aspects of hypospadias. Consent and integrity in all aspects and all ages of hypospadias care should be adapted to the maturity of the individual. Access to trustworthy information is key, both directly from educated healthcare staff and if possible, from websites or patient-led forums. Healthcare can play a key role in providing the growing individual with tools to understand and address concerns that may develop relating to their hypospadias through life, giving them ownership over their own narrative.
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| 44. |
- Rolstad, S G, et al.
(author)
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Sexual functioning and partner relationships in women with turner syndrome: some empirical data and theoretical considerations regarding sexual desire
- 2007
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In: J Sex Marital Ther. ; 33:3, s. 231-47
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Journal article (peer-reviewed)abstract
- The aim of this study was to describe marital status, sexual history, and sexual functioning in a group of women with Turner syndrome, and to compare the results with general Swedish population data. The sample consists of 57 women over 18 years of age. Data were collected from an interview, and using two self-report questionnaires: the McCoy Sexual Rating Scale and the Relationship Rating Scale (RS). Compared to population data, the women with Turner syndrome were less likely to have a partner and had had their sexual debut later. Single women differed more from the general population than did women with a partner, regarding sexual desire and sexual activity. Several women with a partner reported sexual problems, but unanimously reported being satisfied with their sex life and partner relationship. The level of sexual desire in women with Turner syndrome is discussed in relation to Levine's model of human sexual desire, where psychological and social motivational factors are considered in addition to a biologically based sexual drive (Levine, 1992).
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| 45. |
- Sol Olafsdottir, Helga, et al.
(author)
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Access to artificial reproduction technology in the Nordic countries in 2004.
- 2009
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In: Acta obstetricia et gynecologica Scandinavica. - : Wiley. - 1600-0412 .- 0001-6349. ; 88:3, s. 301-7
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Journal article (peer-reviewed)abstract
- To survey access to Artificial Reproduction Technology (ART) treatments in 2004 with regard to legislation, geographical location, financing and the kind of ART treatments provided in the Nordic countries.
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| 46. |
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| 47. |
- Stinesen-Kollberg, Karin, et al.
(author)
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Worrying about one's children after breast cancer diagnosis: desired timing of psychosocial intervention.
- 2014
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In: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer. - : Springer Science and Business Media LLC. - 1433-7339. ; 22:11, s. 2987-2995
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Journal article (peer-reviewed)abstract
- The purposes of this observational study were to analyze at what time point mothers desired psychosocial support regarding the worry about their children during the year after breast cancer diagnosis and to identify any psychosocial factors associated with this worry.
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| 48. |
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| 49. |
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| 50. |
- Timander, Ann-Charlott, 1972, et al.
(author)
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Recovery: experiences of resistance to disablism
- 2016
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In: Disability & Society. - : Informa UK Limited. - 0968-7599 .- 1360-0508. ; 31:8, s. 1050-1063
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Journal article (peer-reviewed)abstract
- This article explores whether it is fruitful to use a service user/survivor approach to recovery, by seeing recovery as survival of social invalidation. That is survival of the psychosocial forces that were the source of the experience of mental distress, and as survival of social opression by the psychiatric services and/or wider society. It could be argued that the participants in this study in the United Kingdom and Sweden recovered and reclaimed and (re)constructed positive identities. They actively resisted experiences of disablism and rebuilt their lives. By approaching recovery from a serivce user/survivor perspective, one is focusing on the social, structural and political aspects of the recovery process, and one is resisting biomedical, deviant and reductionist notions of recovery.
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