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1.	Braisch, U, et al. (author) Identification of symbol digit modality test score extremes in Huntington's disease 2019 In: American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics. - : Wiley. - 1552-485X .- 1552-4841. ; 180:3, s. 232-245 Journal article (peer-reviewed)
2.	Eatough, Virginia, et al. (author) The personal experience of parenting a child with Juvenile Huntington's Disease : perceptions across Europe 2013 In: European Journal of Human Genetics. - : Springer Science and Business Media LLC. - 1018-4813 .- 1476-5438. ; 21:10, s. 1042-1048 Journal article (peer-reviewed)abstract The study reported here presents a detailed description of what it is like to parent a child with juvenile Huntington's disease in families across four European countries. Its primary aim was to develop and extend findings from a previous UK study. The study recruited parents from four European countries: Holland, Italy, Poland and Sweden,. A secondary aim was to see the extent to which the findings from the UK study were repeated across Europe and the degree of commonality or divergence across the different countries. Fourteen parents who were the primary caregiver took part in a semistructured interview. These were analyzed using an established qualitative methodology, interpretative phenomenological analysis. Five analytic themes were derived from the analysis: the early signs of something wrong; parental understanding of juvenile Huntington's disease; living with the disease; other people's knowledge and understanding; and need for support. These are discussed in light of the considerable convergence between the experiences of families in the United Kingdom and elsewhere in Europe.
3.	Orth, M, et al. (author) Observing Huntington's disease: the European Huntington's Disease Network's REGISTRY 2011 In: Journal of neurology, neurosurgery, and psychiatry. - : BMJ. - 1468-330X .- 0022-3050. ; 82:12, s. 1409- Journal article (other academic/artistic)

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Type of publication: journal article (3)

Type of content: peer-reviewed (2); other academic/artistic (1)

Author/Editor: Schmidt, S. (2); Svenningsson, P (2); Poewe, W (2); Hoffmann, R. (2); Edwards, M. (2); Taylor, R. (2); show more...; Peterson, M. (2); Thompson, J. (2); Weindl, A. (2); Roth, J. (2); Hughes, M (2); Wright, J (2); Wojcik, M. (2); Peter, M. (2); Clayton, C. (2); Barth, K. (2); Patel, A (2); Foster, J (2); Szczudlik, A (2); Paucar, M (2); CORTELLI, P (2); Wahlstrom, J (2); Rose, S (2); Thomas, G (2); Trautmann, S. (2); Hunt, S (2); Craufurd, D (2); Novak, M (2); Demonet, JF (2); Wright, A. (2); Held, C (2); Patton, M. (2); Weydt, P. (2); Capellari, S (2); Mir, P (2); Paganini, M. (2); Doherty, K (2); Lahiri, N (2); Priller, J (2); Sando, SB (2); Sorbi, S (2); Fannemel, M (2); Romero, I (2); Raymond, L (2); Wild, S (2); Lange, H. (2); Dujardin, K (2); Dunnett, SB (2); Ecker, D (2); Landwehrmeyer, B (2); show less...

University: Uppsala University (2); Karolinska Institutet (2); Marie Cederschiöld högskola (1)

Language: English (3)

Research subject (UKÄ/SCB): Medical and Health Sciences (2)

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