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- Talman, Lena, et al.
(author)
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Staff members and managers’ views of the conditions for the participation of adults with profound intellectual disability or profound intellectual and multiple disabilities
- 2019
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In: JARID. - : Wiley. - 1360-2322 .- 1468-3148. ; 32:1, s. 143-151
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Journal article (peer-reviewed)abstract
- BackgroundParticipation is a central aspect of quality of life, and it is indicative of high‐quality outcomes for people with intellectual disabilities. However, participation is difficult to achieve for adults with profound intellectual and multiple disabilities.AimTo describe staff members’ perceptions of what participation means for adults with profound intellectual and multiple disabilities.MethodUsing a phenomenographic approach, 27 interviews were analysed resulting in variations in the conditions for participation.ResultsThe interviews revealed conditions for participation at individual, staff and organisational levels.ConclusionParticipation appears to be an un‐reflected phenomenon, and several conditions must be met to achieve it. The conditions are experienced being fundamental for adults within the target group to achieve any kind of participation. The staff members and managers’ perceptions of participation as conditional can make it more difficult for adults within the target group to achieve the Swedish disability policy goal of participation.
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- Talman, Lena, et al.
(author)
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Staff’s and managers’ conceptions of participation for adults with profound intellectual disabilities or profound intellectual and multiple disabilities
- 2019
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In: Scandinavian Journal of Disability Research. - : Stockholm University Press. - 1501-7419 .- 1745-3011. ; 21:1, s. 78-88
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Journal article (peer-reviewed)abstract
- One goal of disability policies in Sweden and other countries is to ensure that people with disabilities are afforded an equal level of daily life participation as other citizens. However, few studies have examined this in adults with profound intellectual disabilities (PID) or profound intellectual and multiple disabilities (PIMD). This study used a phenomenographic approach to interview managers and staff at a social care organisation in a medium-sized Swedish municipality. It aimed to elucidate and describe conceptions of participation to highlight conceptual variations. Divergent conceptualisations were found, reflecting a lack of organisational consensus about the meaning of participation. Trying to fulfil policy goals of daily life participation for adults with PID or PIMD without a common understanding of the meaning of participation is difficult, so people at all levels of an organisation need to have a shared understanding and definition of it. © 2019 The Author(s).
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- Talman, Lena, et al.
(author)
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Staffs’ documentation of participation for adults with profound intellectual disability or profound intellectual and multiple disabilities
- 2018
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In: Disability and Rehabilitation. - : Informa UK Limited. - 0963-8288 .- 1464-5165. ; 40:1, s. 2527-2537
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Journal article (peer-reviewed)abstract
- Purpose: This study investigated what areas of International Classification of Functioning, Disability and Health were documented in implementation plans for adults with profound intellectual disability or profound intellectual and multiple disabilities with focus on participation.Methods: A document analysis of 17 implementation plans was performed and International Classification of Functioning, Disability and Health was used as an analytic tool.Results: One hundred and sixty-three different codes were identified, especially in the components Activities and participation and Environmental factors. Participation was most frequently coded in the chapters Community, social and civic life and Self-care. Overall, the results showed that focus in the implementation plans concerned Self-care and Community, social and civic life. The other life areas in Activities and participation were seldom, or not at all, documented.Conclusions: A deeper focus on participation in the implementation plans and all life areas in the component Activities and participation is needed. It is important that the documentation clearly shows what the adult wants, wishes, and likes in everyday life. It is also important to ensure that the job description for staff contains both life areas and individual preferences so that staff have the possibility to work to fulfill social and individual participation for the target group.Implications for rehabilitationThere is a need for functioning working models to increase participation significantly for adults with profound intellectual disability or profound intellectual and multiple disabilities.For these adults, participation is achieved through the assistance of others and support and services carried out must be documented in an implementation plan.The International Classification of Functioning, Disability and Health can be used to support staff and ensure that information about the most important factors in an individual’s functioning in their environment is not omitted in documentation.
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- Dag, Munir, et al.
(author)
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Experiences of using Bestic, an eating aid for people with intellectual disabilities
- 2017
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In: Journal of Intellectual Disability. - : SAGE Publications. - 1744-6295 .- 1744-6309. ; 21:1, s. 87-98
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Journal article (peer-reviewed)abstract
- This article reports on the results of a pilot study exploring whether and how the meal situations of persons with intellectual disabilities (PWIDs) in need of help and support during meal situations were affected by an eating aid. This article also analyzes how PWIDs and their assistants perceived their experiences of using an eating aid during meal situations. Data for the study were collected in interviews with PWIDs and their assistants. The results are presented in five themes: independence in the meal situation, motivation to use the eating aid, functions of the eating aid, social aspects of using the eating aid, and design corresponding to intellectual disability. The eating aid’s function, user-friendliness, and the assistants’ attitudes appear to be crucial for using the eating aid. Another important aspect is the introductory and training phase, which must be fundamentally adapted to suit the PWIDs ability to learn and understand. When these aspects are controlled, the eating aid can be a tool for increased independence during meal situations for PWIDs who are unable to move their arms or hands.
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- Gustafsson, Christine, 1967-, et al.
(author)
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A method to create interdisciplinary health and welfare technology research projects : collaboration between academia and care providers
- 2016
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In: The one-page paper collection of the 10th World Conference of Gerontechnology. ; , s. 29-29
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Conference paper (peer-reviewed)abstract
- We are facing an aging population1 and the need for health and welfare technology to meet the users’ ‘need is a fact. To meet this challenge, the Arena for Health and Welfare Technology (the Arena) was initiated at Mälardalen University in 2014, as a multi-professional and interdisciplinary research initiative2. The aim of the Arena is to increase the collaboration of the researchers from the University and the external actors to create benefit and value for the future health and welfare. The Arena organizes events promoting interaction and interdisciplinary research projects. At a thematic day in May 2016, a working process to effectively initiate interdisciplinary research based on the users ‘needs, was introduced. Method To increase the participation for the thematic day and for future research projects within health and welfare technology, a call offering a grand from the Arena fond was created for participants that attended the thematic day. This call was aimed at stimulate the creation of interdisciplinary research projects within health and welfare technology, with the purpose to write proposals for external research funding. Speakers from the region were invited, representing health and social care, companies within the health and welfare technology field and regional R&D units. The speakers were presenting real needs based from the view of the clients, patients, relatives, staffs and organizations, which possibly could be solved by using health and welfare technology. After the user need presentations, a working process was followed, led by the company Konkret Utveckling AB. The goal of the working process was to identify prioritized needs for the day, and in the continuation create project groups to be the basis for future interdisciplinary research projects. After identifying the prioritized user needs, project groups started work to specify the framework for the planned research project, and then make a short oral presentation to share and discuss their research ideas. Results & Discussion The theme day attracted more than 50 interested participants. At the end of the thematic day, four interdisciplinary groups, including new constellations of researchers exists. The aims of the four groups were based on prioritized user needs, presented by regional health and welfare representatives. Involved group participants, researchers and company representatives, represented different disciplines, for example engineering, sensor technology, robotics, pedagogics, physiotherapy, nursing, social work and economy. The working method used during the thematic day was successful, and can be used in developing initiatives for interdisciplinary health and welfare technology research projects based on the needs of the end users.
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- Gustafsson, Christine, 1967-, et al.
(author)
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A robotic cat in dementia care - a pilot study
- 2016
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In: <em>Gerontechnology</em> The one-page paper collection of the 10<sup>th</sup> World Conference of Gerontechnology.. ; , s. 151-151
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Conference paper (peer-reviewed)abstract
- The aim of the pilot study was to explore the reactions of individuals with dementia to an interactive robotic cat and their relatives’ and professional caregivers’ experiences regarding its usability, function, and effects. Method The pilot study had an intervention, mixed-methods design1 and was conducted in two stages. A quantitative single-case study2 including individuals with dementia, and a qualitative interview study3, including relatives and professional caregivers, were conducted. JustoCat® is an interactive robotic pet developed using reminiscence therapy as a framework4. The development of JustoCat is based on promising work with the robotic seal, PARO5,6. However, the inventors of JustoCat assumed that a seal would not appeal in reminiscence therapy, a robotic cat was supposed appeal to individuals’ memories of cats. There was also the idea of downscaled, advanced technology based on the hypothesis of a robotic cat’s functional reliability and lower cost. The construction of JustoCat (e.g., easy-to-change fur facilitating personalized use, washable fur) was developed following Swedish hygiene routines required in nursing homes and hospital settings. Results & Discussion In the Western world, the majority of individuals with dementia spend the last part of their lives in nursing homes or dementia care homes. Some individuals with dementia could increase their well-being with different therapies, for example massage, singing, music or by the company of pets. The current pilot study of four individuals with dementia and their relatives and professional caregivers showed interesting results. First, living with severe dementia is a situation with ups and downs concerning quality of life and agitated behavior, as presented in the single-case study design. Second, the analysis of the interviews shows the positive effects of the robotic cat providing stimulation, comfort, and peace to individuals living with dementia. Third, professional caregivers and relatives found the robotic cat to be a useful, reliable, and multifunctional tool in their relationships with the participants6.
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