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Träfflista för sökning "WFRF:(Jankovic S) srt2:(2005-2009)"

Search: WFRF:(Jankovic S) > (2005-2009)

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  • von Mackensen, S., et al. (author)
  • Development of a disease-specific quality of life questionnaire for children & adolescents with idiopathic thrombocytopenic purpura (ITP-QoL)
  • 2006
  • In: Pediatric Blood & Cancer. - : Wiley. - 1545-5017 .- 1545-5009. ; 47:Suppl.5, s. 688-691
  • Journal article (peer-reviewed)abstract
    • Quality of life (QoL) assessment in children with coagulation disorders is a relatively unstudied area. While hemophilia-specific questionnaires (such as Haemo-QoL) are available, no instrument for children with idiopathic thrombocytopenic purpura (ITP) has been validated yet. A disease-specific questionnaire for children with ITP was therefore developed (ITP-QoL) in three phases: (a) a preparatory phase; (b) a developmental phase; (c) a pilot testing phase. Since dimensions of Haemo-QoL were considered important for children with ITP, items were adapted, reformulated and additional dimensions were included. Two age-group versions were designed for children (aged 3-7, 8-18 years) and parents in Italian, German, and Swedish languages and were pilot tested. Pediatr Blood Cancer 2006;47:688-691. (c) 2006 Wiley-Liss, Inc.
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