| 1. |
- Almgren, Matilda, et al.
(författare)
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Fatigue after heart transplantation - a possible barrier to self-efficacy
- 2021
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Ingår i: Scandinavian Journal of Caring Sciences. - : Wiley. - 0283-9318 .- 1471-6712. ; 35:4, s. 1301-1308
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Tidskriftsartikel (refereegranskat)abstract
- Rationale Recovery after heart transplantation is challenging and many heart recipients struggle with various transplant-related symptoms, side-effects of immunosuppressive medications and mental challenges. Fatigue has been reported to be one of the most common and distressing symptoms after heart transplantation and might therefore constitute a barrier to self-efficacy, which acts as a moderator of self-management. Aim To explore the prevalence of fatigue and its relationship to self-efficacy among heart recipients 1-5 years after transplantation. Research method An explorative cross-sectional design, including 79 heart recipients due for follow-up 1-5 years after transplantation. Three different self-assessment instruments were employed; The Multidimensional Fatigue Inventory-19, Self-efficacy for managing chronic disease 6-Item Scale and The Postoperative Recovery Profile. Ethical approval The study was approved by the Regional Ethics Board of Lund (Dnr. 2014/670-14/10) with supplementary approval from the Swedish Ethical Review Authority (Dnr. 2019-02769). Results The reported levels of fatigue for the whole group were moderate in all dimensions of the Multidimensional Fatigue Inventory-19, with highest ratings in the General Fatigue sub-scale. Those most fatigued were the groups younger than 50 years; pretransplant treatment with Mechanical Circulatory Support; not recovered or had not returned to work. Self-efficacy was associated with the sub-dimensions Mental Fatigue (rho = -0 center dot.649) and Reduced Motivation (rho = -0 center dot 617), which explained 40 center dot 1% of the variance when controlled for age and gender. Study limitations The small sample size constitutes a limitation. Conclusions The moderate levels of fatigue reported indicate that it is not a widespread problem. However, for those suffering from severe fatigue it is a troublesome symptom that affects the recovery process and their ability to return to work. Efforts should be made to identify those troubled by fatigue to enable sufficient self-management support.
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| 2. |
- Almgren, Matilda, et al.
(författare)
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Self-efficacy, recovery and psychological wellbeing one to five years after heart transplantation: a Swedish cross-sectional study
- 2021
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Ingår i: European Journal of Cardiovascular Nursing. - : Oxford University Press (OUP). - 1474-5151 .- 1873-1953. ; 20:1, s. 34-39
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Tidskriftsartikel (refereegranskat)abstract
- Background Self-efficacy refers to a person ' s confidence in carrying out treatment-related activities and constitutes the foundation of self-management as well as long-term follow-up after heart transplantation. Exploring the heart recipients ' experiences by means of self-report instruments provides healthcare professionals with valuable information on how to supply self-management support after heart transplantation. Aims The aim was to explore self-efficacy in relation to the self-reported level of recovery and psychological wellbeing, among adult heart recipients, one to 5 years after transplantation. Methods This cross-sectional study includes 79 heart recipients, due for follow-up one to 5 years after transplantation. Three different self-assessment instruments were employed: the self-efficacy for managing chronic disease 6-item scale; the postoperative recovery profile; and the psychological general wellbeing instrument. Results The reported level of self-efficacy was high (median 8.3, maximum score 10). Significantly higher self-efficacy was seen among those who had returned to work (P = 0.003) and those without pre-transplant mechanical circulatory support (P = 0.033). In total, 65.5% (n = 52) reported being reasonably recovered, while 18.8% (n = 12) were not recovered. The median total psychological general wellbeing score was 108 (P-25 = 24,P-75 = 117), suggesting overall good psychological wellbeing in the whole group of heart recipients. Conclusion The heart transplant recipients in our study had an overall high level of self-efficacy. Low self-efficacy was found among those with a low self-reported level of recovery, pre-transplant treatment with mechanical circulatory support or who had not returned to work. This is important information for transplant professionals when helping heart recipients to balance their expectations about recovery.
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| 3. |
- Bagerius, Henric, 1974, et al.
(författare)
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Vad vill vi med historielärarutbildningen?
- 2022
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Ingår i: Historisk tidskrift. - 0345-469X. ; 142:4, s. 607-618
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Tidskriftsartikel (övrigt vetenskapligt/konstnärligt)abstract
- En central del av verksamheten vid nästan alla institutioner som bedriver undervisning och forskning i historia är att utbilda historielärare. Historiker av facket diskuterar emellertid sällan frågor om lärarutbildningens innehåll och uppläggning, utöver de som knyter an till specifika historievetenskapliga sakområden. Vad behöver framtida historielärare kunna, och hur skiljer det sig eventuellt från vad framtida historiker bör kunna? Hur förhåller sig ämnesstudier till ämnesdidaktik och utbildningsvetenskap? Svaren på den typen av frågor har stor betydelse inte bara för lärarutbildningen utan för universitetsämnet historia och dess utövare i stort. Hur ska vi som historiker förhålla oss till det? Som en utgångspunkt för en sådan diskussion har en grupp historiker verksamma inom lärarutbildningen vid Göteborgs och Örebro universitet genomfört en inventering av historiedidaktiken i ämneslärarutbildningen vid tio av totalt sjutton svenska lärosäten där sådan utbildning med inriktning mot historia inom gymnasieskolan bedrivs idag. Med hjälp av publikt tillgänglig information och en enkät via epost till de ansvariga för utbildningarna har gruppen kartlagt historiedidaktiska kursmål och kurslitteratur, examensarbetenas inriktning och vem som undervisar i historiedidaktik. Medan det finns vissa gemensamma drag i hur målen för utbildningarna formuleras, visar genomgången på betydande variationer mellan lärosätena avseende kurslitteratur, examensarbeten och bemanning. Mot den bakgrunden diskuteras i denna idé- och debattartikel vad likheter och skillnader kan bero på samt om, och i så fall hur, det är ett problem att historielärarutbildningarna är så olika.
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| 4. |
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| 5. |
- Carlesson Magalhães, Jens, 1989, et al.
(författare)
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Judisk migration från öst
- 2023
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Ingår i: Plats i staden: Göteborgs judiska artonhundratal / red. Pia Lundqvist. - Göteborg : Bokförlaget Korpen. - 9789189401693 ; , s. 137-147
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Bokkapitel (refereegranskat)
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| 6. |
- Glasdam, Stinne, et al.
(författare)
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Unity strengthens and inhibits development: A focus group interview with volunteer adults in support programs for bereaved children and their family
- 2023
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Ingår i: Death Studies. - : Informa UK Limited. - 0748-1187 .- 1091-7683. ; 47:9, s. 1061-1071
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Tidskriftsartikel (refereegranskat)abstract
- This article illuminates (inter)actions and group dynamics of adult volunteers in programs for bereaved children and parents. A focus group interview with seven volunteers in Swedish was conducted. A latent, thematic analysis was conducted, inspired by Braun and Clarke, and Goffman. Two themes were constructed: Personal despair as a motivation for establishing and consolidating voluntary involvement and The volunteers acted as an extended family. Group dynamics within the group contributed to uphold volunteers’ adherence to formal and informal guidance related to the program. Strong engagement among volunteers and internal recruitment strategies contributed to uphold and consolidate the program’s implementation.
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| 7. |
- Hemle Jerntorp, Sofia, et al.
(författare)
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Fathers' lived experiences of caring for their preterm infant at the neonatal unit and in neonatal home care after the introduction of a parental support programme : A phenomenological study
- 2021
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Ingår i: Scandinavian Journal of Caring Sciences. - : Wiley. - 0283-9318 .- 1471-6712. ; 35:4, s. 1143-1151
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Tidskriftsartikel (refereegranskat)abstract
- Aim: To describe fathers’ lived experiences of caring for their preterm infant at the neonatal unit and in hospital-based neonatal home care after the introduction of an individualised parental support programme. Method: Seven fathers from a larger study were included due to their rich narrative interviews about the phenomenon under study. The interviews took place after discharge from neonatal home care. The theoretical perspective was descriptive phenomenology. Giorgi’s outlines for phenomenological analysis were used. Findings. The general structure of the phenomenon was described by the following four themes: The partner was constantly present in the fathers’ minds; The fathers’ were occupied by worries and concerns; The fathers felt that they were an active partner to the professionals and Getting the opportunity to take responsibility. The fathers were satisfied with the support and treatment during their infant’s hospitalisation. However, there were times when they felt excluded and not fully responsible for their infant. The fathers prioritised the mother, thus ignoring their own needs. Furthermore, they worried about their infant’s health and the alteration of their parental role. Neonatal home care was experienced as a possibility to regain control over family life. Conclusion: The general structure of fathers’ experiences highlights the importance of professionals becoming more responsive to fathers’ needs and to tailoring support to fathers by focusing on their individual experiences and needs.
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| 8. |
- Jönsson, Lisbeth, et al.
(författare)
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Mothers of children with down syndrome : A qualitative study of experiences of breastfeeding and breastfeeding support
- 2022
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Ingår i: Scandinavian Journal of Caring Sciences. - : Wiley. - 0283-9318 .- 1471-6712. ; 36:4, s. 1156-1164
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Tidskriftsartikel (refereegranskat)abstract
- Background: Children with down syndrome (DS) are breastfed to a lesser extent than infants in general, despite research showing that it is possible for these children to breastfeed successfully. Aim: The aim was to describe how mothers of children with DS experienced breastfeeding and breastfeeding support from healthcare professionals. Method: A qualitative study with an inductive approach. Individual interviews were performed with seven mothers from southern Sweden. The interviews were analysed using qualitative content analysis. Result: The mothers felt that the support varied, as some healthcare professionals were supportive, while others had preconceptions regarding breastfeeding and DS. They also experienced that the guidelines could be an obstacle in the encounter with healthcare professionals thereby affecting the possibility to establish breastfeeding. Information and support were important to the mothers, and when insufficient, they turned to the internet for help. Conclusions: Mothers felt that healthcare professionals were bound to ward routines and guidelines, which could be contrary to their own and the family's wishes. They were also sensitive to the attitudes of healthcare professionals, which can affect their own state of mind. Healthcare professionals' preconceptions regarding breastfeeding and DS have not changed, despite research showing that infants with DS can breastfeed successfully. Increased awareness of the possibility to breastfeed an infant with DS is needed to provide better support to mothers.
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| 9. |
- Karidar, Hakima, et al.
(författare)
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Det är som att gå i skolan” – Gruppstödsprogram för ungdomar i Sverige som har förlorat en förälder
- 2022
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Ingår i: ; , s. 39-39
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Konferensbidrag (refereegranskat)abstract
- Bakgrund: En förälders död är en av de mest dramatiska händelser som kan drabba barn och ungdomar och det kan påverka dem på många olika sätt. Syfte: Att undersöka hur ungdomar som förlorat en förälder inkluderades i ett stödprogram för sörjande familjer och hur deras deltagande tog sig uttryck. Metod: En etnografisk fältstudie där data samlades in med hjälp av observationer, semi-strukturerade intervjuer och fokusgruppsintervjuer. Sex ungdomar i ålder 10–14 år, sex föräldrar och åtta gruppledare deltog. Tematisk analys enligt Braun och Clark utfördes, inspirerad av Bourdieus begrepp fält, kapital, doxa och makt som teoretiskt ramverk. Resultat: Professionella i skolan, inom vården och socialarbete introducerade ofta stödprogrammet för föräldrar och ungdomar och övertygande initialt föräldrarna att delta i programmet. Några vuxna kände redan till att det fanns ett stödprogram. Utgångspunkten för ungdomars deltagande i stödprogrammet var att vuxna erkände att ungdomarna behövde stöd. Med eller utan förhandlingar följde ungdomarna föräldrarnas önskemål att delta i programmet. Stödprogrammet liknade skolans logik både i kontexten, innehållet och tillvägagångsättet. Strukturen och innehållet i programmet var grundat i medicinsk – psykologisk förståelse av sorg och sorgebearbetning. Gruppledarna skapade en atmosfär som liknande skolatmosfären och ungdomarna agerade som elever och utförde det om förväntades av dem. Ungdomarna interagerade endast med varandra under pauserna i stödprogrammet. Betydelse: Studien visar på betydelsen av att vuxna är lyhörda för ungdomars individuella behov av stöd då det kan variera och inte alltid sammanfaller med vuxnas föreställningar om ett bra stöd. Det är lämpligt att involvera ungdomar som förlorat en förälder vid utveckling av framtida stödinsatser riktat mot dem.
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| 10. |
- Karidar, Hakima, et al.
(författare)
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“It is like going to school” - an ethnographical field study of a Swedish supporting program for children who lost a parent : “It is like going to school” - an ethnographical field study of a Swedish supporting program for children who lost a parent
- 2022
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Ingår i: ; , s. 3-3
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Konferensbidrag (refereegranskat)abstract
- Background A parent’s death is a dramatic event, and it can affect children in many ways, both acutely and long-term. Aim To explore how children who had lost a parent were included, acted, and interacted in a support program focusing on relational and contextual aspect.An ethnographic field study consisting of 82 hours of observations, 25 semi-structured interviews, and one focus group interview.Six children, aged 10-14, six parents, and eight voluntary program facilitators participated. A Braun and Clarke (2006) inspired thematic analysis was conducted through a theoretical lens inspired by Bourdieu’s concepts of field, capital, doxa, and power.ResultsDifferent strategies for children´s inclusion in the program The starting point for children´s participation in the support program required that adults recognized that children needed supportProfessionals in school and healthcare introduced the support program for parents and children Volunteers in the support program assessed whether the children met the inclusion criteria or notVolunteers and parents collaborated in motivating adolescents to participate in the programSome children appreciated the idea and were willing to participate in the programothers hesitated to participate but were persuaded by their parents to participateMedico-psychological understanding of grief and sufferingThe structure and content of the program were based on a medical-psychological understanding of grief and bereavement Children understood that adults thought it was important for them to talk about their situationSome children shared the medical and psychological understandings of grief and suffering with the adults, others did notSome children preferred not to have external support in relation to their bereavement, while others appreciated the ideaReproduction of the logic of the schoolThe program was similar to the school´s logic both in context, roles, and approachesVolunteers acted as teachers and the children acted as pupils, mostly performing as what was expected of themMostly, children interacted with each other during the program’s breaks ConclusionChildren’s access to support were governed by adults who had the mandate to assess and plan different support strategies. The structure of and the roles in the support program was similar to the school system, where children easily fit into familiar patterns and roles. Medical and psychological understandings of grief, suffering, and grief processing were dominant in the program. The study pointed to the importance of adults being sensitive to children’s individual needs for support as they could vary. The children’s needs of support were not always consistent with adults´ ideas of good support. It is appropriate to involve children who have lost a parent in the development of future support efforts aimed at them.
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