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- Bärkås, Annika
(author)
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Patients’ Access to Their Mental Health Records : Understanding Policy, Access, and Patient Experiences
- 2024
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Doctoral thesis (other academic/artistic)abstract
- ORA is the concept of patients' access to clinical information, which has become more widespread worldwide. When patients are provided online record access (ORA) to their health records, concerns have been raised by healthcare professionals, especially when it comes to patients with mental health diagnoses. In the general population, positive aspects appear to outweigh the negative, yet limited research has so far explored the impact of ORA in mental healthcare. The overall aim of this thesis was to explore how patients experience ORA in mental healthcare through four studies: 1) a literature review aimed to explore the current literature on the experiences of ORA among mental healthcare patients, care partners, and healthcare professionals, 2) a document analysis combined with key stakeholder email interviews that aimed to explore to what extent ORA in mental healthcare has been implemented in Sweden including national and local policy regulations, 3) an online patient survey study aimed to understand mental healthcare patients' experiences with ORA in Sweden, Estonia, Finland, and Norway, and 4) an online patient survey study aimed to understand if and how patients with mental health conditions experiences of ORA differs from patients in other healthcare settings. More patients reported positive experiences with ORA in mental healthcare than negative experiences. Common benefits of ORA included, among others, a greater sense of control over their care, improved understanding of their mental health diagnosis, and better adherence to appointments. Despite patients' predominant positive experiences, only 17 out of 21 regions in Sweden offered ORA in mental healthcare in 2021. Additionally, many patients experienced errors and omissions and felt offended by the content of their health records. Mental healthcare patients experienced this at a higher rate than patients in other healthcare settings.In conclusion, mental healthcare patients have higher rates of negative experiences of ORA compared to patients in other healthcare settings. However, patients' experiences of ORA are still predominantly positive among both patient groups. Yet, in 2021, only 17 regions offered patients ORA in mental healthcare. Denying mental healthcare patients ORA to protect them from negative experiences could instead increase stigma in this patient group.
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| 2. |
- Haliburton, Luke, et al.
(author)
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Office Wellbeing by Design: Don't Stand for Anything Less
- 2024
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In: Conference on Human Factors in Computing Systems - Proceedings.
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Conference paper (peer-reviewed)abstract
- The modern workplace has been optimized towards increasing productivity, often at the cost of long-term worker wellbeing. This systemic issue has been acknowledged in both research and practice, but has not yet been solved. There is a notable lack of practical methods of incorporating physical activity and other wellbeing practices into productive workplace activities. We see a gap between research endeavors and industry practice that motivates a call for increased collaboration between the two parties. In response, our workshop aims to bring together researchers and practitioners to work together in identifying a set of grand challenges for the field. Through collaboration, we will create a concrete research agenda to create a resilient future workplace that explicitly incorporates holistic worker wellbeing.
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| 3. |
- Loerakker, Meagan, 1999, et al.
(author)
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Designing Data Visualisations for Self-Compassion in Personal Informatics
- 2024
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In: Proceedings of the ACM on Interactive, Mobile, Wearable and Ubiquitous Technologies. - 2474-9567. ; 7:4
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Journal article (peer-reviewed)abstract
- Wearable personal trackers offer exciting opportunities to contribute to one's well-being, but they also can foster negative experiences. It remains a challenge to understand how we can design personal informatics experiences that help users frame their data in a positive manner and foster self-compassion. To explore this, we conducted a study where we compared different visualisations for user-generated screen time data. We examined positive, neutral and negative framings of the data and whether or not a point of reference was provided in a visualisation. The results show that framing techniques have a significant effect on reflection, rumination and self-compassion. We contribute insights into what design features of data representations can support positive experiences in personal informatics.
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| 4. |
- Loerakker, Meagan, 1999, et al.
(author)
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Technology which Makes You Think: The Reflection, Rumination and Thought in Technology Scale
- 2024
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In: Proceedings of the ACM on Interactive, Mobile, Wearable and Ubiquitous Technologies. - 2474-9567. ; 8:2
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Journal article (peer-reviewed)abstract
- Reflection is widely regarded as a key design goal for technologies for well-being. Yet, recent research shows that technologies for reflection may have negative consequences, in the form of rumination, i.e. negative thought cycles. Understanding how technologies support thinking about oneself, which can take the form of rumination and reflection, is key for future well-being technologies. To address this research gap, we developed the Reflection, Rumination and Thought in Technology (R2T2) scale. Contrary to past research, R2T2 addresses ways of self-focused thinking beyond reflection. This scale can quantify how a technology supports self-focused thinking and the rumination and reflection aspects of that thinking. We developed the scale through a systematic scale development process. We then evaluated the scale's test-retest reliability along with its concurrent and discriminant validity. R2T2 enables designers and researchers to compare technologies which embrace self-focused thinking and its facets as a design goal.
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| 5. |
- Stefanidi, Evropi, et al.
(author)
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MoodGems: Designing for the Well-being of Children with ADHD and their Families at Home
- 2024
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In: Proceedings of ACM Interaction Design and Children Conference: Inclusive Happiness, IDC 2024. ; , s. 480-494
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Conference paper (peer-reviewed)abstract
- Many technologies for ADHD children and their caregivers focus on symptom management rather than overall well-being, often without involving them as technology co-designers and co-users. To explore how to design systems that integrate into their home and routines, we contribute the iterative design of MoodGems, a situated, modular, and portable set of physical displays, that allows children to record and share their data with their families. We conducted an online formative evaluation (n = 22) with ADHD children, parents, therapists, and HCI experts. Our work demonstrates the potential of technologies affording both individual and joint tracking to allow children to navigate and reflect on their experiences and emotions, and support family communication and children's autonomy. The evaluation also uncovered necessary refinements in the system's design. We contribute design insights towards technologies that empower ADHD children and integrate into their homes, and discuss therapists' role in technologies that address ADHD families' lived experiences.
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| 6. |
- Strömel, Konstantin R., et al.
(author)
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Narrating Fitness: Leveraging Large Language Models for Reflective Fitness Tracker Data Interpretation
- 2024
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In: Conference on Human Factors in Computing Systems - Proceedings.
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Conference paper (peer-reviewed)abstract
- While fitness trackers generate and present quantitative data, past research suggests that users often conceptualise their wellbeing in qualitative terms. This discrepancy between numeric data and personal wellbeing perception may limit the effectiveness of personal informatics tools in encouraging meaningful engagement with one's wellbeing. In this work, we aim to bridge the gap between raw numeric metrics and users' qualitative perceptions of wellbeing. In an online survey with n = 273 participants, we used step data from fitness trackers and compared three presentation formats: standard charts, qualitative descriptions generated by an LLM (Large Language Model), and a combination of both. Our findings reveal that users experienced more reflection, focused attention and reward when presented with the generated qualitative data compared to the standard charts alone. Our work demonstrates how automatically generated data descriptions can effectively complement numeric fitness data, fostering a richer, more reflective engagement with personal wellbeing information.
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