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Träfflista för sökning "WFRF:(Ylä Herttuala Seppo) ;srt2:(2010-2014)"

Search: WFRF:(Ylä Herttuala Seppo) > (2010-2014)

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1.
  • Hagberg, Anette, et al. (author)
  • More Appreciation of Life or Regretting the Test? : Experiences of Living as a Mutation Carrier of Huntington's Disease
  • 2011
  • In: Journal of Genetic Counseling. - : Wiley. - 1059-7700 .- 1573-3599. ; 20:1, s. 70-79
  • Journal article (peer-reviewed)abstract
    • Little is known about how the knowledge of being a mutation carrier for Huntington's disease (HD) influences lives, emotionally and socially. In this qualitative study 10 interviews were conducted to explore the long term (> 5 years) experiences of being a mutation carrier. The results showed a broad variety of both positive and negative impact on the carriers' lives. The most prominent positive changes reported were a greater appreciation of life and a tendency to bring the family closer together. On the other hand, some participants expressed decisional regrets and discussed the negative impact this knowledge had on their psychological well-being. The knowledge variously served as either a motivator or an obstacle in pursuing further education, career or investment in personal health. Deeper understanding of people's reactions to the certainty of knowing they will become affected with HD is essential for the genetic counseling team in order to provide appropriate support.
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2.
  • Nilsson, Ing-Marie, et al. (author)
  • Temporomandibular pain in adolescents with a history of preterm birth
  • 2019
  • In: Journal of Oral Rehabilitation. - : John Wiley & Sons. - 1365-2842 .- 0305-182X. ; 46:7, s. 589-596
  • Journal article (peer-reviewed)abstract
    • AIM: To evaluate the frequency of TMD pain among adolescents with a history of preterm birth compared to a matched control group. METHODS: A group of 192 preterm-born adolescents was followed up at the age of 17-19 years and compared to matched controls. Self-report questionnaires included screening questions about TMD pain, chronic diseases, general health, depression, anxiety, anger, antisocial behavior, and self-concept. TMD pain was defined as answering 'yes' to one or both of the following questions: "Do you have pain in the temple, face, temporomandibular joint, or jaws once a week or more?" and "Do you have pain when you open your mouth wide or chew once a week or more often?" Data analysis was performed using chi-square test and logistic regression model with likelihood ratio test. RESULTS: A TMD pain frequency of 23% of preterm-born adolescents and 26% among the controls was found, with no significant differences between the groups. Neither were there differences regarding anxiety, depression, anger, or self-confidence. Within the preterm group, adolescents with TMD pain registered tension and pain in the body, trouble sleeping, stomach pain, and feelings of hopelessness about the future. The controls with TMD pain, more reported having a bad life, feeling like a failure, and having bodily pain. Among tested background variables only TMJ locking or intermittent locking once a week or more was found to explain TMD pain in adolescents. CONCLUSION: A high frequency of TMD pain was found in both groups, one possible explanation could be TMJ dysfunction.
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