| 1. |
- Paulson, Margareta, et al.
(author)
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Nurses' and physicians' narratives about long-term non-malignant pain among men
- 1999
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In: Journal of Advanced Nursing. - : Wiley. - 0309-2402 .- 1365-2648. ; 30:5, s. 1097-1105
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Journal article (peer-reviewed)abstract
- The aim of this study was to illuminate the meaning of skilled nurses' and physicians' lived experiences in their encounters with men suffering from long-term, non-malignant pain of at least 6 month duration. Seventeen nurses and four physicians participated in the study. A phenomenological-hermeneutic method was used. In the narratives three themes, "needing to be manly", "struggling for relief from pain" and "needing human support" emerged. The phenomenon "confirmation" of the theme "struggling to be manly" means that nurses' and physicians' must have such a relationship with theese men that they really feel respected. Confirmation of the theme "struggling for relief from pain! means thar the care givers must convince these men that they really believe each unique individual's narratives. Confirmation of the theme "needing human support" means that nurses and physicians have to behave in such a way that these men are convinced that the caregivers really care about them. When the men felt confirmation they dared to disclose their pain experiences more honestly. This is a preliminary prerequisite for nurses' and physicians' potential to help these men.
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| 2. |
- Berg, Linda, 1961, et al.
(author)
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An interpretive phenomenological method for illuminating the meaning of caring relationship
- 2006
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In: Scandinavian Journal of Caring Sciences. - 0283-9318. ; :20, s. 45-50
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Journal article (peer-reviewed)abstract
- This study is a part of a larger project in which the aim is to illuminate the meaning of the caring relationship between patients and nurses in daily nursing practice. Empirical studies in this area inspired from the interpretive phenomenological method are not commonly used. The aim of this paper is to describe how an interpretive phenomenological method was used to illuminate the meaning of the phenomenon caring relationship in daily nursing practice. Data were collected during 16 nursing care proceedings using participant observation with field notes, and in addition to that two interviews, one patient and one nurse. The interpretation moved back and forth between the whole and the parts in a dialectic process. Initial interpretive understanding of interviews and field notes, meaning units and comprehensive understanding were presented. Themes from the patient's interviews were competence, lack of continuity, strain and vulnerability. Themes from the nurse's interviews were competence and striving. Themes from the field notes were interactions towards a goal. The use of interpretive phenomenology offered an opportunity for learning to understand the meaning of the phenomenon caring relationship in daily nursing practice with both strengths and limitations. This study gave an understanding of the phenomenon through the illumination of the patient's and the nurse's thoughts, feelings and actions in the nursing care proceedings that led to a more profound knowledge about how they together create an encounter through their unique competence.
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| 3. |
- Berg, Linda, 1961, et al.
(author)
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Caring relationship in a context: Fieldwork in a medical ward
- 2007
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In: International Journal of Nursing Practice. - 1322-7114 .- 1440-172X. ; 13:2, s. 100-106
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Journal article (peer-reviewed)abstract
- The aim of this study was to investigate how the caring relationship is formed in a medical context. The data were collected using participant observation with field notes and analysed by an interpretive phenomenological method. The context circumstances in a medical milieu demanded exacting efficiency and risks to oppress the caring relationship, subsequently causing demands in nursing practice. Three themes of the caring relationship were identified as respect for each other and for themselves, responsibility to reach out to each other and engagement. Patients' and nurses' awareness in encounters drove the forming of a caring relationship that went beyond the individual nurse and patient. This study implicates the importance of an understanding of how context circumstances create the foundation of the caring relationship
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| 4. |
- Berg, Linda, 1961, et al.
(author)
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CARING RELATIONSHIP IN AN OUT-PATIENT CLINIC: BALANCING BETWEEN VULNERABILITY AND DIGNITY
- 2006
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In: INTERNATIONAL JOURNAL FOR HUMAN CARING. ; 10:4, s. 23-27
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Journal article (peer-reviewed)abstract
- Studies regarding the caring relationship in out-patient clinics are few. The aim was to study the caring relationships appearance in encounters between patients with long-term illness and nurses in an out-patient clinic, and their experiences of this phenomenon. An interpretive phenomenological method was used; data were collected using participant observation and interviews, which were then interpreted. The findings illuminate the caring relationships appearance in encounters, as well as, patients and nurses experiences. Findings are understood as balancing between vulnerability and dignity, which reflects opportunities for realizing a holistic view in decreasing vulnerability and maintaining dignity.
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| 5. |
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| 6. |
- Bergbom, Ingegerd, 1947, et al.
(author)
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Vårdvetenskap
- 2015
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In: Personliga tillbakablickar över ämnesområden vid Göteborgs universitet. - Göteborg : University of Gothenburg. - 9789198142822 ; , s. 62-67
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Book chapter (other academic/artistic)
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| 7. |
- Berlin Hallrup, Leena, 1967-
(author)
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Vardagslivet i bostad med särskild service med institutionell prägel - en studie av personer med intellektuell funktionsnedsättning och personalens erfarenheter
- 2012
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Licentiate thesis (other academic/artistic)abstract
- The general intention of recent Swedish legislation concerning adults with intellectual disabilities has been to provide care and support for this group in small settings in the community. It has been shown that adults with intellectual disabilities are better equipped to exert influence over their own care and support when living in group homes in the community and other forms of independent living as opposed to large institutional settings. Recent research on this group has to a great extent concerned the study of how life is in small group homes for this group and has highlighted obstacles preventing them from participating in society. Previous research has indicated that living in institutional settings makes it difficult for them to exert influence on their lives. A small number of large institutional care settings still exist, however, in Sweden and there is a dearth of research that focuses on how adults with intellectual disabilities experience everyday life in such settings. In addition, little research has been carried out on the role of the care workers who work in such settings. The aim of this research has thus been to describe the experiences of adults with intellectual disabilities and care workers of living and working in an institutional care setting in Sweden. An ethnographic approach including participant observation and in-depth interviews was used to gain a deeper understanding of how adults with intellectual disabilities and staff experience their everyday life in an institutional care setting. The result showed that the residents experienced; I) a sense of belonging, which was connected to having access to a private sphere and being part of social togetherness; II) a feeling of insecurity in relation to other residents and care workers; III) a longing for independence and a desire to get away. The study of the staff revealed three main themes that represent their approach; I) creating a family-like atmosphere; II) making the everyday life ordered and structured; III) being exposed to stress factors. The results revealed the importance of paying close attention to what adults with intellectual disabilities and their care workers have to say about their everyday lives when living and working in an institutional care setting. It may be concluded that adults living in an institutional care setting experience their everyday lives in existential terms such as belonging, insecurity and longing. For caring science and in caring practices of people with intellectual disabilities, it is not satisfactory that residents experience such an insecure existence in a care setting. In order to provide individual care and support, staff need to be more open and vigilant as to the residents’ vulnerability and be able to guide them in matters concerning emotional aspects. It was seen that care workers in their everyday work with residents in an institutional care setting used experiences from their personal lives in situations where they lacked formal care training. Such experiences may have helped to create meaningfulness but at the same time risked preserving inequality and gender stereotyping. In order to avoid these risks care workers should receive clear directives from the management about the care objectives, and guidelines about how best to care for adults with intellectual disabilities and offer them individualized care. Furthermore, it also became evident that care workers need additional support, training and opportunities for reflection to cope with their complex work situation. The results of this research can contribute to a greater insight and deeper knowledge of what adults with intellectual disabilities experience in an institutional care setting in the 2000’s , enabling the staff and management to further enhance the well-being for this group of individuals. The findings can provide feedback to staff, managers and researchers working in the intellectual disabilities field. Keywords: adults with intellectual disabilities, care, care workers, ethnography, institutional care setting, Sweden
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| 8. |
- Browall, Maria, et al.
(author)
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Daily assessment of stressful events and coping among post-menopausal women with breast cancer treated with adjuvant chemotherapy : Original article
- 2009
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In: European Journal of Cancer Care. - : John Wiley & Sons. - 0961-5423 .- 1365-2354. ; 18:5, s. 507-516
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Journal article (peer-reviewed)abstract
- The purpose of the study was twofold: to examine what type of daily stressful events post-menopausal woman with breast cancer experience during adjuvant chemotherapy and how bothersome these are and to identify coping strategies used by these women used to manage such stressful events. The patient group comprised 75 consecutively invited women (≥55 years of age) at two university hospitals and one county hospital in Sweden. The Daily Coping Assessment was used to collect data over time. Data were analysed both qualitatively and quantitatively. Six categories of stressful events were identified: 'nausea and vomiting', 'fatigue', 'other symptoms', 'isolation and alienation', 'fear of the unknown' and 'being controlled by the treatment'. The first three categories were subsumed under the domain physical problems and the latter three under psychosocial problems. Almost 30% of the diary entries recorded no stressful event. Physical problems were three times as frequent as psychosocial problems. 'Nausea/vomiting' was the most frequently observed stressful event (21.6%). 'Isolation and alienation' and 'fear of the unknown' were less frequent, but when they occurred they were rated as the most distressing. Several coping strategies were used to manage each stressful event. The most common strategies were acceptance, relaxation and distraction. Religion was rarely used as a coping strategy.
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| 9. |
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| 10. |
- Browall, Maria, et al.
(author)
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Existential encounters: Nurses' descriptions of critical incidents in end-of-life cancer care
- 2014
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In: European Journal of Oncology Nursing. - : Elsevier BV. - 1462-3889 .- 1532-2122. ; 18:6, s. 636-644
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Journal article (peer-reviewed)abstract
- Nurses working with cancer patients in end of life care need to be prepared to encounter patients' psychosocial and spiritual distress. Aim: The aim of this study was to describe nurses' experiences of existential situations when caring for patients severely affected by cancer. Methods and sample: Nurses (registered and enrolled) from three urban in-patient hospices, an oncology clinic and a surgery clinic and a palliative homecare team were, prior to the start of a training program, invited to write down their experiences of a critical incident (CI), in which existential issues were featured. Results: Eighty-eight CIs were written by 83 nurses. The CIs were analyzed with qualitative content analysis. Two main themes were found: Encounters with existential pain experiences, which concerned facing death and facing losses; and Encountering experiences of hope, which concerned balancing honesty, and desire to live. Conclusions: This study points out that health care professionals need to be aware of patients' feelings of abandonment in exposed situations such as patients' feelings of existential loneliness. That there are some patients that express a desire to die and this makes the nurses feel uncomfortable and difficult to confront these occurrences and its therefore important to listen to patients' stories, regardless of care organization, in order to gain access to patients' inner existential needs.
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