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Language and Society in the Caucasus : Understanding the Past, Navigating the Present
- 2021
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Editorial collection (other academic/artistic)abstract
- This book brings together a strong and international team of linguists, historians, and social and political scientists renowned for their expertise on North and South Caucasus. Their contributions paint a compelling picture of the region’s contested past and highlight some of the enduring challenges still confronting it. Taken together, the ten chapters of the book enhance our understanding of the region’s ancient languages, shed light on historical events of crucial significance, and uncover mechanisms behind political conflict and cooperation in the tinderbox that is the Caucasus.
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| 3. |
- Petersson, Bo, et al.
(author)
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Fifteen minutes of fame long gone : Circassian activism before and after the Sochi Olympics
- 2017
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In: Sport in Society. - : Taylor & Francis. - 1743-0437 .- 1743-0445. ; 20:4, s. 505-517
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Journal article (peer-reviewed)abstract
- In this article we discuss the effects of the Sochi Olympics on the indigenous Circassian population in North Caucasus. The Circassian situation was paradoxical in the sense that whereas this indigenous group fiercely opposed the organization of the Winter Games in Sochi, the Games themselves denoted a rare opportunity for them to make their voices heard internationally. During the run-up to the Olympics they all of a sudden had a global audience for their claims for recognition of their cause. This was quite simply their ‘fifteen minutes of fame’, a rare and short-lived period of celebrity and worldwide attention. The paper will look into whether the anti-Sochi activism helped to unite Circassians in the diaspora and abroad around common claims, and to what extent the Circassians managed to use media attention to make their cause more widely known by international society.
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| 4. |
- Petersson, Bo, et al.
(author)
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Vanished in the Haze : White Elephants, Environmental Degradation and Circassian Marginalization in Post-Olympics Sochi
- 2016
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In: Mega Events in Post-Soviet Russia. - New York : Palgrave Macmillan. - 9781137490940 ; , s. 59-76
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Book chapter (peer-reviewed)abstract
- In this chapter, we will turn our attention to three areas that before the Sochi Olympics were often discussed as particularly acute problems in relation to the Olympics. The first one of these is related to infrastructural investments in the area and the risk of them being turned into so-called white elephants, costing a lot of money and being of no actual use, neither by the local population nor by tourists to the region. The second theme regards the feared environmental degradation due to the organization of the mega-event and the extent to which the prognosticated problems have come to materialize. These two are matters that in one shape or another seem to be brought up in relation to all Olympics in contemporary times, possibly with the exception of the Lillehammer Olympics of 1994. The third theme, which enjoyed substantial attention before the Olympics, is however specially related to the Sochi Olympics. It deals with the indigenous Circassian population and the extent to which its members were maltreated, marginalized and squeezed out from the geographical area which constitutes their homeland. Despite their seeming disparity, the basic reason for bringing up the three subjects in the chapter is the same: to argue the need for continued attention to perceived trouble-spots even after the close of the Games.
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- Petersson, Bo, et al.
(author)
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When the party is over : developments in Sochi and Russia after the Olympics 2014
- 2017
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In: Sport in Society. - : Taylor & Francis. - 1743-0437 .- 1743-0445. ; :4, s. 455-460
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Journal article (peer-reviewed)abstract
- The 2014 Winter Olympic Games in Sochi, Russia, were during the preparations and run-up phase intensely followed by the global community and were generally associated with a vast array of problems: political, democratic, economic, ecological and securityrelated. When the hosting of a mega-event such as the Olympic Games has been awarded to a site in an authoritarian state, the global community has moral responsibilities to live up to. There is a need and an obligation to raise one’s voice and criticize where criticism is due also after the Games are concluded. For Sochi, as for sites of all major sports events, continued critical attention is therefore warranted also after the competitions. It is essential to try to gauge the extent to which predicted problems materialized, what happened afterwards, and what have been the more long-term consequences and local effects. This is the general perspective that brought the authors of this special issue together.
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- Petersson, Christina, et al.
(author)
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Children's experiences about a structured assessment of health-related quality of life during a patient encounter
- 2016
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In: Child Care Health and Development. - : Wiley. - 0305-1862 .- 1365-2214. ; 42:3, s. 424-432
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Journal article (peer-reviewed)abstract
- BackgroundIt has been stated that care for children with chronic health conditions tends to focus on condition-specific issues rather than how these children experience their health and everyday life functioning.AimThe aim of this study was to explore children's experiences about a structured assessment of health-related quality of life applied during a patient encounter.MethodsPrior to the start of the study, a clinical intervention based on the questionnaire DISABKIDS Chronic Generic Measure (DCGM-37) was performed. A qualitative explorative design was chosen, and 25 children between 10–17 years of age were interviewed after the consultation at four different paediatric outpatient clinics. Data were analysed according to qualitative content analysis.ResultsThe results were twofold: children experienced that the assessment was providing them with insights about their health, which motivated them to make lifestyle changes. When outcomes were discussed and requested, the children felt encouraged.ConclusionsThe use of an assessment of health-related quality of life may promote insights about health and encourage children with chronic health conditions to discuss their outcomes with healthcare professionals.
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- Petersson, Christina, et al.
(author)
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Comparing children's self-report instruments for health-related quality of life using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY)
- 2013
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In: Health and Quality of Life Outcomes. - : Springer Science and Business Media LLC. - 1477-7525. ; 11:1, s. 1-10
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Journal article (peer-reviewed)abstract
- Children with chronic conditions often experience a long treatment which can be complex and negatively impacts the child's well-being. In planning treatment and interventions for children with chronic conditions, it is important to measure health-related quality of life (HrQoL). HrQoL instruments are considered to be a patient-reported outcome measure (PROM) and should be used in routine practice. Purpose: The aim of this study was to compare the content dimensions of HrQoL instruments for children's self-reports using the framework of ICF-CY. Method: The sample consist of six instruments for health-related quality of life for children 5 to 18 years of age, which was used in the Swedish national quality registries for children and adolescents with chronic conditions. The following instruments were included: CHQ-CF, DCGM-37, EQ-5D-Y, KIDSCREEN-52, Kid-KINDL and PedsQL 4.0. The framework of the ICF-CY was used as the basis for the comparison. Results: There were 290 meaningful concepts identified and linked to 88 categories in the classification ICF-CY with 29 categories of the component body functions, 48 categories of the component activities and participation and 11 categories of the component environmental factors. No concept were linked to the component body structures. The comparison revealed that the items in the HrQoL instruments corresponded primarily with the domains of activities and less with environmental factors. Conclusions: In conclusion, the results confirm that ICF-CY provide a good framework for content comparisons that evaluate similarities and differences to ICF-CY categories. The results of this study revealed the need for greater consensus of content across different HrQoL instruments. To obtain a detailed description of children's HrQoL, DCGM-37 and KIDSCREEN-52 may be appropriate instruments to use that can increase the understanding of young patients' needs.
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- Petersson, Christina, et al.
(author)
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Impact of type 1 diabetes on health-related quality of life among 8–18-year-old children
- 2016
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In: Comprehensive Child and Adolescent Nursing. - : Taylor & Francis. - 2469-4207 .- 2469-4193. ; 39:4, s. 245-255
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Journal article (peer-reviewed)abstract
- Measuring the health-related quality of life (HRQOL) is one way to understand an individual’s perspective on health, and, more specifically, how type 1 diabetes (T1D) affects a child’s everyday life. Early detection of poor HRQOL is considered a crucial factor for identifying children who are at risk of psychosocial problems. The aim of this study was to describe the differences in the HRQOL of children with T1D according to age, gender, and metabolic control (HbA1c). Cross-sectional data were collected from children with T1D using the DISABKIDS Chronic Generic Measure-37 (DCGM-37) and the diabetes specific module (DM-10). Non-parametric tests were used to investigate differences. There were differences between girls and boys, and girls reported lower HRQOL than boys (HRQOL total score: mean 74 and 67 respectively; p = .005). Adolescents described more worries and fears about the future compared with younger children. Children with poor metabolic control reported a lower HRQOL than those with better metabolic control (HRQOL total score:mean 68 and 76 respectively; p = .006), but the social dimensions were not affected. The findings of the present study elucidate the importance for paediatric nurses to explore potential problems in children with T1D and use this knowledge in clinical practice. Assessment of the HRQOL can provide the patient’s perspective on the quality of diabetes care. The HRQOL is correlated with HbA1c, gender, and age, and the HRQOL as well as HbA1c levels should be regularly assessed to establish a comprehensive care for children with T1D.
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| 9. |
- Petersson, Christina, et al.
(author)
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To promote child involvement – healthcare professionals' use of a health-related quality of life assessment tool during paediatric encounters
- 2017
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In: European Journal for Person Centered Healthcare. - : University of Buckingham Press. - 2052-5648 .- 2052-5656. ; 5:1
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Journal article (peer-reviewed)abstract
- Background: Children and healthcare professionals should be provided with easy-to-use tools which could lead to actionable results.Objectives: There is increasing interest in the use of patient reported outcomes to aid management of individual care; therefore, the use of health-related qualityof life (HRQOL) assessments during consultations need to be studied. The aim of this study was to explore how healthcare professionals use a HRQOL assessment tool during paediatric encounters.Design: A descriptive, explorative design with a qualitative approach based on video recordings was chosen.Methods: Twenty-one video recordings, from nine different healthcare professionals’ consultations where an assessment tool of HRQOL were used were analysed by content analysis.Results: The healthcare professionals were using different strategies and when they combined these strategies three approaches emerged. The instructing approach was characterized by healthcare professionals giving a summary of the results, leading to children becoming passive bystanders in the encounter. Based on an inviting approach, the children’s perceptions of their situation were requested while the items were explored. This resulted in involving the children in the conversations. In the engaging approach, an open dialogue and a common interpretation were sought to guide further care which was interpreted as children becoming actively involved.Conclusions: The child’s involvement could be facilitated depending on which approach is being used. When an inviting and engaging approach is used, actions in a non-linear set of interactions is co-produced with the child.Relevance to practice: The use of an HRQOL assessment tool change the management during consultations and could promote child involvement dependent on which approach the healthcare professionals are using.
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| 10. |
- Petersson, Christina, 1975-, et al.
(author)
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Use of the national quality registry to monitor health-related quality of life of children with type 1 diabetes : A pilot study
- 2015
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In: Journal of Child Health Care. - : Sage Publications. - 1367-4935 .- 1741-2889. ; 19:1, s. 30-42
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Journal article (peer-reviewed)abstract
- The management of diabetes is complicated, as treatment affects the everyday life of both children and their families. To enable optimal care for children with type 1 diabetes, it is important to highlight health-related quality of life (HrQoL) as well as medical outcomes to detect psychological problems that otherwise could be missed. The aim was to study HrQoL in children and adolescents with type 1 diabetes dependent on gender, age and co-morbidity and to study the consistency between children’s self-reporting and parents’ proxy reporting. The cross-sectional data were collected using the questionnaire DISABKIDS Chronic Generic Measure and the DISABKIDS diabetes module. Parents in the proxy report perceived their children’s HrQoL to be lower than children themselves. Boys reported their HrQoL to be better than girls. Results show that living with an additional disease has an impact on the HrQoL, which is an important factor to consider in the quality registry. Assessing HrQoL on a routine basis may facilitate detection and discussion of HrQoL-related questions in the national quality registry.
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