Place of death of children with complex chronic conditions: cross-national study of 11 countries.

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Place of death of children with complex chronic conditions : cross-national study of 11 countries.

Håkanson, Cecilia (author): Ersta Sköndal Bräcke högskola,Palliativt forskningscentrum, PFC,Karolinska institutet

Öhlén, Joakim, 1958 (author): Gothenburg University,Göteborgs universitet,Centrum för personcentrerad vård vid Göteborgs universitet (GPCC),Institutionen för vårdvetenskap och hälsa,University of Gothenburg Centre for person-centred care (GPCC),Institute of Health and Care Sciences

Kreicbergs, Ulrika (author): Karolinska Institutet,Ersta Sköndal Bräcke högskola,Palliativt forskningscentrum, PFC,Karolinska institutet

Cardenas-Turanzas, Marylou (author): USA

Wilson, Donna M (author): Canada

Loucka, Martin (author): The Czech Republic

Frache, Sandra (author): France

Giovannetti, Lucia (author): Italy

Naylor, Wayne (author): New Zeeland

Rhee, YongJoo (author): South Korea

Ramos, Miguel Ruiz (author): Spain

Teno, Joan (author): Belgium

Beernaert, Kim (author): Belgium

Deliens, Luc (author): Belgium

Houttekier, Dirk (author): Belgium

Cohen, Joachim (author): Belgium

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(creator_code:org_t)

2017-01-09
2017
English.
In: European Journal of Pediatrics. - : Springer Science and Business Media LLC. - 0340-6199 .- 1432-1076. ; 176:3, s. 327-335

Related links:: https://urn.kb.se/re...; show more...; https://doi.org/10.1...; http://kipublication...; https://gup.ub.gu.se...; show less...

Journal article (peer-reviewed)

Abstract Subject headings

Cross-national understanding of place of death is crucial for health service systems for their provision of efficient and equal access to paediatric palliative care. The objectives of this population-level study were to examine where children with complex chronic conditions (CCC) die and to investigate associations between places of death and sex, cause of death and country. The study used death certificate data of all deceased 1- to 17-year-old children (n = 40,624) who died in 2008, in 11 European and non-European countries. Multivariable logistic regression was performed to determine associations between place of death and other factors. Between 24.4 and 75.3% of all children 1-17 years in the countries died of CCC. Of these, between 6.7 and 42.4% died at home. In Belgium and the USA, all deaths caused by CCC other than malignancies were less likely to occur at home, whereas in Mexico and South Korea, deaths caused by neuromuscular diseases were more likely to occur at home than malignancies. In Mexico (OR = 0.91, 95% CI: 0.83-1.00) and Sweden (OR = 0.35, 95% CI: 0.15-0.83), girls had a significantly lower chance of dying at home than boys.CONCLUSION: This study shows large cross-national variations in place of death. These variations may relate to health system-related infrastructures and policies, and differences in cultural values related to place of death, although this needs further investigation. The patterns found in this study can inform the development of paediatric palliative care programs internationally. What is known: • There is a scarcity of population-level studies investigating where children with CCC die in different countries. • Cross-national understanding of place of death provides information to health care systems for providing efficient and equal access to paediatric palliative care. What is new : • There are large cross-national variations in the place of death of children with CCC, with few deathsoccuring at home in some countries whereas hospital deaths are generally most common. • In general, deaths caused by neuromuscular diseases and malignancies occur at home more often thanother CCC.

Subject headings

MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
MEDICIN OCH HÄLSOVETENSKAP -- Annan medicin och hälsovetenskap -- Övrig annan medicin och hälsovetenskap (hsv//swe)
MEDICAL AND HEALTH SCIENCES -- Other Medical and Health Sciences -- Other Medical and Health Sciences not elsewhere specified (hsv//eng)

Keyword

Children
Complex chronic conditions
Cross-national
Paediatric palliative care
Place of death
Population-level

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art (subject category)

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By the author/editor: Håkanson, Cecili ...; Öhlén, Joakim, 1 ...; Kreicbergs, Ulri ...; Cardenas-Turanza ...; Wilson, Donna M; Loucka, Martin; show more...; Frache, Sandra; Giovannetti, Luc ...; Naylor, Wayne; Rhee, YongJoo; Ramos, Miguel Ru ...; Teno, Joan; Beernaert, Kim; Deliens, Luc; Houttekier, Dirk; Cohen, Joachim; show less...

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MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Health Sciences; and Nursing

MEDICAL AND HEALTH SCIENCES: MEDICAL AND HEAL ...; and Other Medical an ...; and Other Medical an ...

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By the university: Marie Cederschiöld högskola; Karolinska Institutet; University of Gothenburg

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