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COVID-19 IDD :
COVID-19 IDD : A global survey exploring family members' and paid staff's perceptions of the impact of COVID-19 on individuals with intellectual and developmental disabilities and their caregivers
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- Linehan, Christine (author)
- UCD Centre for Disability Studies, University College Dublin, Belfield, Dublin, Ireland
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- Araten-Bergam, Tal (author)
- Living with Disability Research Centre, School of Allied Health, Human Services & Sport, La Trobe University, Bundoora, Victoria, Australia
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- Baumbusch, Jennifer (author)
- Canadian Institute for Inclusion and Citizenship, University of British Columbia, Vancouver, BC Canada, Canada
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- Beadle-Brown, Julie (author)
- Tizard Centre, University of Kent, Canterbury, Kent, United Kingdom
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- Bigby, Christine (author)
- La Trobe University, Australia
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- Birkbeck, Gail (author)
- University College Cork, Ireland
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- Bradley, Valerie (author)
- Human Services Research Institute, Cambridge, USA
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- Brown, Michael (author)
- Queen's University, Belfast, United Kingdom
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- Bredewold, Femmianne (author)
- University of Humanistic Studies, the Netherlands
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- Chirwa, Masauso (author)
- University of Zambia, Zambia
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- Cui, Jialiang (author)
- The Chinese University of Hong Kong, Hong Kong
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- Godoy Gimenez, Marta (author)
- University of Almeria, Spain
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- Gomiero, Tiziano (author)
- ANFFAS Trentino Onlus DAD© Project Group, Italy
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- Kanova, Sarka (author)
- University of West Bohemia, the Czech Republic
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- Kroll, Thilo (author)
- University College Dublin, Ireland
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- MacLachlan, Mac (author)
- Maynooth University, Ireland
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- Mirfin-Veitch, Brigit (author)
- Donald Beasley Institute, New Zealand
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- Narayan, Jayanthi (author)
- University of Northampton, United Kingdom
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- Nearchou, Finiki (author)
- University College Dublin, Ireland
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- Nolan, Adam (author)
- University College Dublin, Ireland
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- O'Donovan, Mary-Ann (author)
- University of Sydney, Australia
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- Santos, Flávia H. (author)
- University College Dublin, Ireland
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- Šiška, Jan (author)
- Charles University, the Czech Republic
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- Stainton, Tim (author)
- University of British Columbia, Canada
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- Tideman, Magnus, Professor, 1959- (author)
- Ersta Sköndal Bräcke högskola,Institutionen för socialvetenskap,Högskolan i Halmstad,Wigforss-gruppen,Department of Social Sciences, Ersta Sköndal Bräcke University, Sköndal, Sweden
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- Tossebro, Jan (author)
- Norwegian University of Science and Technology, Norway
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(creator_code:org_t)
- 2020-12-03
- 2020
- English.
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In: HRB open research. - London : F1000 Research Ltd. - 2515-4826. ; 3
- Related links:
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https://doi.org/10.1...
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https://hrbopenresea...
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https://urn.kb.se/re...
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https://doi.org/10.1...
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https://urn.kb.se/re...
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Abstract
Subject headings
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- Background: This protocol outlines research to explore family members' and paid staff's perceptions of the impact of COVID-19 on individuals with intellectual and developmental disabilities and their caregivers. Evidence suggests that people with intellectual and developmental disabilities experience disparities in healthcare access and utilisation. This disparity was evident early in the pandemic when discussions arose regarding the potential exclusion of this population to critical care.Methods: An anonymous online survey will be conducted with caregivers, both family members and paid staff, to explore their perceptions of the impact of COVID-19 in terms of demographics, living arrangements, access to services, social distancing, and carer wellbeing. The survey will be developed by the research team, many of whom are experts in intellectual disability within their own jurisdictions. Using back-translation our team will translate the survey for distribution in 18 countries worldwide for international comparison. The survey team have extensive personal and professional networks and will promote the survey widely on social media with the support of local disability and advocacy agencies. Statistical descriptive and comparative analyses will be conducted. Ethical approval has been obtained for this study from University College Dublin's Human Research Ethics Committee (HS-20-28-Linehan).Dissemination: Study findings will be prepared in a number of formats in order to meet the needs of different audiences. Outputs will include academic papers, lessons learned paper, practice guidelines, reports, infographics and video content. These outputs will be directed to families, frontline and management delivering disability services, national-level policy makers, healthcare quality and delivery authorities, national pandemic organisations and international bodies.
Subject headings
- SAMHÄLLSVETENSKAP -- Sociologi -- Socialt arbete (hsv//swe)
- SOCIAL SCIENCES -- Sociology -- Social Work (hsv//eng)
- SAMHÄLLSVETENSKAP -- Annan samhällsvetenskap -- Tvärvetenskapliga studier inom samhällsvetenskap (hsv//swe)
- SOCIAL SCIENCES -- Other Social Sciences -- Social Sciences Interdisciplinary (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Public Health, Global Health, Social Medicine and Epidemiology (hsv//eng)
Keyword
- COVID-19
- Caregivers Carers
- Coronavirus
- Health Disparity
- Intellectual Disability
- Intellectual and Developmental Disability
- Pandemic
Publication and Content Type
- ref (subject category)
- art (subject category)
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- By the author/editor
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Linehan, Christi ...
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Araten-Bergam, T ...
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Baumbusch, Jenni ...
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Beadle-Brown, Ju ...
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Bigby, Christine
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Birkbeck, Gail
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show more...
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Bradley, Valerie
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Brown, Michael
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Bredewold, Femmi ...
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Chirwa, Masauso
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Cui, Jialiang
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Godoy Gimenez, M ...
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Gomiero, Tiziano
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Kanova, Sarka
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Kroll, Thilo
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MacLachlan, Mac
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Mirfin-Veitch, B ...
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Narayan, Jayanth ...
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Nearchou, Finiki
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Nolan, Adam
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O'Donovan, Mary- ...
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Santos, Flávia H ...
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Šiška, Jan
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Stainton, Tim
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Tideman, Magnus, ...
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Tossebro, Jan
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show less...
- About the subject
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- SOCIAL SCIENCES
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SOCIAL SCIENCES
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and Sociology
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and Social Work
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- SOCIAL SCIENCES
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SOCIAL SCIENCES
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and Other Social Sci ...
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and Social Sciences ...
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
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and Public Health Gl ...
- Articles in the publication
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HRB open researc ...
- By the university
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Marie Cederschiöld högskola
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Halmstad University