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A responsibility that never rests - To be a family caregiver to an older person
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- Jarling, Aleksandra (author)
- Högskolan i Borås,Akademin för vård, arbetsliv och välfärd
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- Rydström, Ingela (author)
- Högskolan i Borås,Akademin för vård, arbetsliv och välfärd
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- Ernsth-Bravell, Marie (author)
- Institute of Gerontology, Jönköping University
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- (creator_code:org_t)
- 2019-05-06
- 2019
- English.
- In: Scandinavian Journal of Caring Sciences. - : Wiley. - 0283-9318 .- 1471-6712.
- Journal article (peer-reviewed)
Abstract
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- BackgroundWhen the ageing population increases, the burden and responsibility of close family members will likely increase. Those closely related who assume a great responsibility can be significantly affected in health, well‐being and daily life.AimThis study aims to describe the life situation when family caregivers are imposed responsibility for an older person with complex care needs in their own home.MethodsIn this Swedish qualitative study, ten family caregivers were strategically selected in order to achieve variations in the life situation. A reflective lifeworld research design based on phenomenological philosophy was used throughout the data collection with the lifeworld interviews and the analytic process.FindingsIn terms of extensive responsibility, the life situation is complex and involves emotions that are difficult to manage. In essence, a paradoxical life situation is described which is experienced as both voluntarily and nonchosen at the same time. The responsibility never rests. The essential meaning is further illustrated with three constituents: loss of freedom, contradictory feelings and affected relationships.ConclusionA life situation with extensive responsibility for an older family member interferes with the whole life situation with an impact on health and relationships with other people. The findings are crucial for professional caregivers in order to capture the nature of family support in a way that enables a meaningful life for both the family caregiver and the older person being cared for. Knowledge of this will give professional caregivers an increased awareness of the life situation of family caregivers and provide a better understanding of the support they are longing for, and, in some countries, such as Sweden, also are entitled to by law.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
Keyword
- Människan i vården
- The Human Perspective in Care
Publication and Content Type
- ref (subject category)
- art (subject category)
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