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“Mastering a New Li...
“Mastering a New Life Situation” – Patients’ Preferences of Treatment Outcomes in Early Rheumatoid Arthritis – A Longitudinal Qualitative Study
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- Landgren, Ellen (author)
- Lund University,Lunds universitet,Reumatologi och molekylär skelettbiologi,Sektion III,Institutionen för kliniska vetenskaper, Lund,Medicinska fakulteten,Rheumatology,Section III,Department of Clinical Sciences, Lund,Faculty of Medicine,Department of Clinical Sciences, Section of Rheumatology, Lund University, Lund, Sweden ; Department of Rheumatology, Skåne University Hospital, Lund, Sweden ; Spenshult Research and Development Centre, Halmstad, Sweden,Skåne University Hospital
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- Bremander, Ann, 1957- (author)
- Lund University,Lunds universitet,Spenshults artrit grupp,Forskargrupper vid Lunds universitet,Spenshults arthritis group,Lund University Research Groups,Department of Rheumatology, Skåne University Hospital, Lund, Sweden ; Spenshult Research and Development Centre, Halmstad, Sweden ; Department of Regional Health Research, University of Southern Denmark, Odense, Denmark ; Danish Hospital for Rheumatic Diseases, University Hospital of Southern Denmark, Sonderborg, Denmark,University of Southern Denmark,Danish Hospital for Rheumatic Diseases (IRS)
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- Lindqvist, Elisabet (author)
- Lund University,Lunds universitet,Lund Arthritis Research Group (LARG),Forskargrupper vid Lunds universitet,Lund University Research Groups,Department of Rheumatology, Skåne University Hospital, Lund, Sweden ; Department of Rheumatology, Skåne University Hospital, Lund, Sweden
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- Nylander, Maria (author)
- Spenshult Research and Development Centre, Halmstad, Sweden ; Swedish Rheumatism Association, Stockholm, Sweden
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- Elst, Kristien Van der (author)
- Department of Rheumatology, University Hospitals Leuven, Leuven, Belgium
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- Larsson, Ingrid, 1968- (author)
- Halmstad University,Lund University,Lunds universitet,Högskolan i Halmstad,Hälsa och omvårdnad,Spenshults artrit grupp,Forskargrupper vid Lunds universitet,Spenshults arthritis group,Lund University Research Groups,Spenshult Research and Development Center
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(creator_code:org_t)
- Dove Medical Press Ltd. 2020
- 2020
- English.
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In: Patient Preference and Adherence. - : Dove Medical Press Ltd.. - 1177-889X. ; 14, s. 1421-1433
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https://urn.kb.se/re...
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Abstract
Subject headings
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- Purpose: To explore patients’ preferred treatment outcomes during their first two years with rheumatoid arthritis (RA). Patients and Methods: A qualitative, longitudinal, multicenter study with interviews at two time points was performed in Sweden. Individual interviews were conducted at time point 1 with 31 patients with RA, defined as disease duration of ≤1 year and treatment for 3–7 months. Seven focus group interviews and five individual interviews were conducted at time point 2 with 22 patients 12–20 months after treatment initiation. The interviews were analyzed using the Qualitative Analysis Guide of Leuven. A core category with four related concepts emerged. Results: The core finding of patient-preferred treatment outcomes was “mastering a new life situation”. Patients preferred to experience control of the disease by controlling the symptoms and by experiencing absence of disease. To experience autonomy by regaining former activity level, experiencing independence, and being empowered was another preferred outcome. Patients preferred to regain identity through being able to participate, experience well-being, and regain former self-image. To experience joy in everyday life through vitality and believing in the future was another preferred outcome. Patients’ preferences developed over time from the acute phase of controlling the symptoms and wanting to return to the life they lived prior to diagnosis, to a more preventive way of self-management and empower-ment to master the new life situation. Conclusion: The patients’ preferred treatment outcomes during the first two years with RA were to master their new life situation and changed from a preference to return to a life lived prior disease onset, to a preference of living with quality of life, despite RA. This study increases the understanding of patients’ preferred treatment outcomes in the early disease course and can be a foundation for tailoring interventions to be more person-centered and to improve long-term treatment outcomes. © 2020 Landgren et al.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
- MEDICIN OCH HÄLSOVETENSKAP -- Klinisk medicin -- Reumatologi och inflammation (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Clinical Medicine -- Rheumatology and Autoimmunity (hsv//eng)
Keyword
- disease modifying antirheumatic drug
- adult
- aged
- Article
- controlled study
- disease duration
- empowerment
- female
- human
- independence
- interview
- longitudinal study
- major clinical study
- male
- patient autonomy
- patient preference
- qualitative research
- quality of life
- rheumatoid arthritis
- self care
- self concept
- Sweden
- treatment outcome
- wellbeing
- Focus groups
- Interviews
- Multicenter
- Patient perspective
- Rheumatic diseases
Publication and Content Type
- ref (subject category)
- art (subject category)
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