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Disseminating and a...
Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis : a mixed-methods study with patients’ perspectives
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- Jones, Bethan (author)
- University of the West of England, Bristol, UK; Cardiff University, Cardiff, UK
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- Bennett, Sarah (author)
- University of the West of England, Bristol, UK; University of Bristol, Bristol, UK
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- Larsson, Ingrid, 1968- (author)
- Högskolan i Halmstad,Akademin för hälsa och välfärd,Spenshult Research and Development Centre, Halmstad, Sweden,Healthcare improvement group
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- Zangi, Heidi (author)
- Diakonhjemmet Hospital, Oslo, Norway; VID Specialized University, Oslo, Norway
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- Boström, Carina (author)
- Karolinska Institutet,Karolinska Institute, Stockholm, Sweden
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- Van der Elst, Kristien (author)
- KU Leuven University Hospitals Leuven, Leuven, Belgium
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- Fayet, Françoise (author)
- Clermont-Ferrand Teaching Hospital, Clermont-Ferrand, France
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- Fusama, Mie (author)
- Takarazuka University, Osaka, Japan
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- Herrero Manso, María del Carmen (author)
- Hospital Universitario 12 de Octubre, Madrid, Spain
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- Hoeper, Juliana Rachel (author)
- Leibniz University Hanover, Hannover, Germany; Hannover Medical School, Hannover, Germany
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- Kukkurainen, Marja Leena (author)
- The Finnish Society of Rheumatology Nurses, Helsinki, Finland
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- Kwok, Suet Kei (author)
- Grantham Hospital, Hong Kong, China
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- Frãzao-Mateus, Elsa (author)
- Portuguese League Against Rheumatic Diseases (LPCDR), Lisbon, Portugal
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- Minnock, Patricia (author)
- Our Lady's Hospice & Care Services, Dublin, Ireland
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- Nava, Tiziana (author)
- University of Milan–Bicocca, Milano, Italy
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- Pavic Nikolic, Milena (author)
- University Medical Centre Ljubljana, Kamnik, Slovenia
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- Primdahl, Jette (author)
- University of Southern Denmark, Odense, Denmark; University Hospital of Southern Denmark, Sønderborg, Denmark
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- Rawat, Roopa (author)
- Indian Spinal Injuries Centre, New Delhi, India
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- Schoenfelder, Mareen (author)
- Österreichische Rheumaliga, Vienna, Austria; Sprachinstitut TREFFPUNKT, Bamberg, Germany
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- Sierakowska, Matylda (author)
- Medical University of Bialystok, Bialystok, Poland
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- Voshaar, Marieke (author)
- Radboud University Medical Center for Infectious Diseases, Nijmegen, The Netherlands
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- Wammervold, Edgar (author)
- Nordlandssykehuset, Bodø, Norway
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- van Tubergen, Astrid (author)
- Maastricht University, Maastricht, Netherlands; Maastricht University Medical Center, Maastricht, Netherlands
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- Ndosi, Mwidimi (author)
- University of the West of England, Bristol, UK; University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UK
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(creator_code:org_t)
- 2022-04-22
- 2022
- English.
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In: RMD Open. - London : BMJ Publishing Group Ltd. - 2056-5933. ; 8:1
- Related links:
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https://doi.org/10.1...
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https://urn.kb.se/re...
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https://doi.org/10.1...
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http://kipublication...
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Abstract
Subject headings
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- Objectives: To explore patients’ agreement andreasons for agreement or disagreement with the EULAR recommendations for patient education (PE) for people with inflammatory arthritis (IA). Methods: This mixed-method survey collected data using snowball sampling. The survey had been translated into 20 languages by local healthcare professionals, researchers and patient research partners. It explored the degree towhich patients with IA agreed with each recommendationfor PE (0=do not agree at all and 10=agree completely)and their rationale for their agreement level in free text questions. Descriptive statistics summarised participants’ demographics and agreement levels. Qualitative contentanalysis was used to analyse the free text data. Sixteen subcategories were developed, describing the reasons foragreement or disagreement with the recommendations,which constituted the categories. Results: The sample comprised 2779 participants(79% female), with a mean (SD) age 55.1 (13.1) yearsand disease duration 17.1 (13.3) years. Participants strongly agreed with most recommendations (median10 (IQR: 9–10) for most recommendations). Reasonsfor agreement with the recommendations included thebenefit of using PE to facilitate collaborative care andshared decision making, the value of flexible and tailored PE, and the value of gaining support from other patients.Reasons for disagreement included lack of resources for PE, not wanting informa tion to be tailored by healthcare professionals and a reluctance to use telephone-basedPE. Conclusion: The EULAR recommendations for PE havebeen disseminated among patients with IA. Overall, agreement levels were very high, suggesting that they reflect patients’ preferences for engaging in collaborative clinical care and using PE to facilitate and supplement their own understanding of IA. Reasons for not completely agreeing with the recommendations can inform implementation strategies and education of healthcare professionals. © Author(s) (or their employer(s)) 2022.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap -- Omvårdnad (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences -- Nursing (hsv//eng)
Keyword
- Eular-recommendation
- Patients
- Patient education
- Mixed methods
- Rheumatology
- Information driven care
- Informationsdriven vård
Publication and Content Type
- ref (subject category)
- art (subject category)
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- By the author/editor
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Jones, Bethan
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Bennett, Sarah
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Larsson, Ingrid, ...
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Zangi, Heidi
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Boström, Carina
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Van der Elst, Kr ...
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show more...
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Fayet, Françoise
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Fusama, Mie
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Herrero Manso, M ...
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Hoeper, Juliana ...
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Kukkurainen, Mar ...
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Kwok, Suet Kei
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Frãzao-Mateus, E ...
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Minnock, Patrici ...
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Nava, Tiziana
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Pavic Nikolic, M ...
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Primdahl, Jette
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Rawat, Roopa
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Schoenfelder, Ma ...
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Sierakowska, Mat ...
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Voshaar, Marieke
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Wammervold, Edga ...
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van Tubergen, As ...
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Ndosi, Mwidimi
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- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
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and Nursing
- Articles in the publication
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RMD Open
- By the university
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Halmstad University
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Karolinska Institutet