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Carers' experiences...
Carers' experiences of timely access to and use of dementia care services in eight European countries
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- Jelley, Hannah (author)
- Bangor University, UK
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- Kerpershoek, Liselot (author)
- Maastricht University,The Netherlands
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- Verhey, Frans (author)
- Maastricht University,The Netherlands
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- Wolfs, Claire (author)
- Maastricht University,The Netherlands
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- De Vugt, Marjolein (author)
- Maastricht University, The Netherlands
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- Bieber, Anja (author)
- Martin Luther University Halle-Wittenberg, Germany
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- Stephan, Astrid (author)
- Martin Luther University Halle-Wittenberg, Germany
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- Meyer, Gabriele (author)
- Martin Luther University Halle-Wittenberg, Germany
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- Michelet, Mona (author)
- Karolinska Institutet
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- Selbaek, Geir (author)
- Vestfold Hospital Trust, Norway
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- Sjölund, Britt-Marie, 1958- (author)
- Högskolan i Gävle,Med-Vårdvetenskap,School of Nursing and Human Sciences, Dublin City University, Dublin, Ireland
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- Sköldunger, Anders (author)
- Karolinska Institutet
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- Hopper, Louise (author)
- Dublin City University, Ireland
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- Irving, Kate (author)
- Dublin City University, Ireland
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- Marques, Maria (author)
- Karolinska Institutet
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- Balsinha, Maria Conceição (author)
- Universidade Nova de Lisboa, Portugal;
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- Gonçalves-Pereira, Manuel (author)
- Universidade Nova de Lisboa, Portugal
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- Portolani, Daniel Michael (author)
- IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Italy
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- Zanetti, Orazio (author)
- IRCCS Istituto Centro San Giovanni di Dio Fatebenefratelli, Italy
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- Woods, Bob (author)
- Bangor University, UK
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(creator_code:org_t)
- Cambridge University Press, 2021
- 2021
- English.
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In: Ageing & Society. - : Cambridge University Press. - 0144-686X .- 1469-1779. ; 41:2, s. 403-420
- Related links:
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https://urn.kb.se/re...
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https://doi.org/10.1...
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http://kipublication...
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Abstract
Subject headings
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- Timely access to care services is crucial to support people with dementia and their family carers to live well. Carers of people with dementia (N = 390), recruited from eight countries, completed semi-structured interviews about their experiences of either accessing or not using formal care services over a 12-month period in the Access to Timely Formal Care (Actifcare) study. Participant responses were summarised using content analysis, categorised into clusters and frequencies were calculated. Less than half of the participants (42.3%) reported service use. Of those using services, 72.8 per cent reported timely access and of those not using services 67.2 per cent were satisfied with this situation. However, substantial minorities either reported access at the wrong time (27.2%), or feeling dissatisfied or mixed feelings about not accessing services (32.8%). Reasons for not using services included use not necessary yet, the carer provided support or refusal. Reasons given for using services included changes in the condition of the person with dementia, the service's ability to meet individual needs, not coping or the opportunity to access services arose. Facilitators and barriers to service use included whether participants experienced supportive professionals, the speed of the process, whether the general practitioner was helpful, participant's own proactive attitude and the quality of information received. To achieve timely support, simplified pathways to use of formal care services are needed.
Subject headings
- MEDICIN OCH HÄLSOVETENSKAP -- Hälsovetenskap (hsv//swe)
- MEDICAL AND HEALTH SCIENCES -- Health Sciences (hsv//eng)
Keyword
- carers
- dementia
- Europe
- formal care
- service access
- Health-Promoting Work
- Hälsofrämjande arbete
Publication and Content Type
- ref (subject category)
- art (subject category)
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- By the author/editor
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Jelley, Hannah
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Kerpershoek, Lis ...
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Verhey, Frans
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Wolfs, Claire
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De Vugt, Marjole ...
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Bieber, Anja
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show more...
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Stephan, Astrid
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Meyer, Gabriele
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Michelet, Mona
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Selbaek, Geir
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Sjölund, Britt-M ...
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Sköldunger, Ande ...
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Hopper, Louise
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Irving, Kate
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Marques, Maria
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Balsinha, Maria ...
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Gonçalves-Pereir ...
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Portolani, Danie ...
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Zanetti, Orazio
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Woods, Bob
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- About the subject
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- MEDICAL AND HEALTH SCIENCES
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MEDICAL AND HEAL ...
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and Health Sciences
- Articles in the publication
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Ageing & Society
- By the university
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University of Gävle
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Karolinska Institutet