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LIBRIS Formathandbok  (Information om MARC21)
FältnamnIndikatorerMetadata
00010680naa a2201069 4500
001oai:DiVA.org:his-23364
003SwePub
008231116s2023 | |||||||||||000 ||eng|
009oai:DiVA.org:oru-109583
009oai:DiVA.org:kau-97558
009oai:DiVA.org:uu-515506
0247 a https://urn.kb.se/resolve?urn=urn:nbn:se:his:diva-233642 URI
0247 a https://doi.org/10.2196/478412 DOI
0247 a https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-1095832 URI
0247 a https://urn.kb.se/resolve?urn=urn:nbn:se:kau:diva-975582 URI
0247 a https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-5155062 URI
040 a (SwePub)hisd (SwePub)orud (SwePub)kaud (SwePub)uu
041 a engb eng
042 9 SwePub
072 7a ref2 swepub-contenttype
072 7a art2 swepub-publicationtype
1001 a Bärkås, Annikau Uppsala universitet,E-hälsa och hälsodata,Hälsovetenskap och e-hälsa4 aut0 (Swepub:uu)annba987
2451 0a Errors, Omissions, and Offenses in the Health Record of Mental Health Care Patients :b Results from a Nationwide Survey in Sweden
264 1b JMIR Publications,c 2023
338 a electronic2 rdacarrier
500 a CC BY 4.0 DEED©Annika Bärkås, Anna Kharko, Charlotte Blease, Åsa Cajander, Asbjørn Johansen Fagerlund, Isto Huvila, Monika Alise Johansen, Bridget Kane, Sari Kujala, Jonas Moll, Hanife Rexhepi, Isabella Scandurra, Bo Wang, Maria Hägglund. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 03.11.2023.Corresponding Author: Annika Bärkås, MScParticipatory eHealth and Health Data Research Group, Department of Women's and Children's Health, Uppsala University, Dag Hammarskjölds väg 14B, 1tr, Uppsala, 752 37, Sweden. Phone: 46 734697471. Email: annika.barkas@kbh.uu.seThis work was supported by NordForsk through the funding to Nordic eHealth for Patients: Benchmarking and Developing forthe Future, NORDeHEALTH (Project #100477), and the Swedish Research Council for Health, Working Life, and Welfare (FORTE) through the funding to Beyond Implementation of eHealth (Project #2020-01229). CB was supported by a Keane Scholar Award. The study funders played no role in the study design, data interpretation, writing of the results, or decision to submit the manuscript for publication.
520 a BACKGROUND: Previous research reports that patients with mental health conditions experience benefits, for example, increased empowerment and validation, from reading their patient-accessible electronic health records (PAEHRs). In mental health care (MHC), PAEHRs remain controversial, as health care professionals are concerned that patients may feel worried or offended by the content of the notes. Moreover, existing research has focused on specific mental health diagnoses, excluding the larger PAEHR userbase with experience in MHC. OBJECTIVE: The objective of this study is to establish if and how the experiences of patients with and those without MHC differ in using their PAEHRs by (1) comparing patient characteristics and differences in using the national patient portal between the 2 groups and (2) establishing group differences in the prevalence of negative experiences, for example, rates of errors, omissions, and offenses between the 2 groups. METHODS: Our analysis was performed on data from an online patient survey distributed through the Swedish national patient portal as part of our international research project, NORDeHEALTH. The respondents were patient users of the national patient portal 1177, aged 15 years or older, and categorized either as those with MHC experience or with any other health care experience (nonmental health care [non-MHC]). Patient characteristics such as gender, age, education, employment, and health status were gathered. Portal use characteristics included frequency of access, encouragement to read the record, and instances of positive and negative experiences. Negative experiences were further explored through rates of error, omission, and offense. The data were summarized through descriptive statistics. Group differences were analyzed through Pearson chi-square. RESULTS: Of the total sample (N=12,334), MHC respondents (n=3131) experienced errors (1586/3131, 50.65%, and non-MHC 3311/9203, 35.98%), omissions (1089/3131, 34.78%, and non-MHC 2427/9203, 26.37%) and offenses (1183/3131, 37.78%, and non-MHC 1616/9203, 17.56%) in the electronic health record at a higher rate than non-MHC respondents (n=9203). Respondents reported that the identified error (MHC 795/3131, 50.13%, and non-MHC 1366/9203, 41.26%) and omission (MHC 622/3131, 57.12%, and non-MHC 1329/9203, 54.76%) were "very important," but most did nothing to correct them (MHC 792/3131, 41.29%, and non-MHC 1838/9203, 42.17%). Most of the respondents identified as women in both groups. CONCLUSIONS: About 1 in 2 MHC patients identified an error in the record, and about 1 in 3 identified an omission, both at a much higher rate than in the non-MHC group. Patients with MHC also felt offended by the content of the notes more commonly (1 in 3 vs 1 in 6). These findings validate some of the worries expressed by health care professionals about providing patients with MHC with PAEHRs and highlight challenges with the documentation quality in the records. 
650 7a NATURVETENSKAPx Data- och informationsvetenskapx Datavetenskap0 (SwePub)102012 hsv//swe
650 7a NATURAL SCIENCESx Computer and Information Sciencesx Computer Sciences0 (SwePub)102012 hsv//eng
650 7a NATURVETENSKAPx Data- och informationsvetenskapx Systemvetenskap, informationssystem och informatik0 (SwePub)102022 hsv//swe
650 7a NATURAL SCIENCESx Computer and Information Sciencesx Information Systems0 (SwePub)102022 hsv//eng
650 7a SAMHÄLLSVETENSKAPx Medie- och kommunikationsvetenskapx Systemvetenskap, informationssystem och informatik med samhällsvetenskaplig inriktning0 (SwePub)508042 hsv//swe
650 7a SOCIAL SCIENCESx Media and Communicationsx Information Systems, Social aspects0 (SwePub)508042 hsv//eng
650 7a MEDICIN OCH HÄLSOVETENSKAPx Hälsovetenskapx Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi0 (SwePub)303012 hsv//swe
650 7a MEDICAL AND HEALTH SCIENCESx Health Sciencesx Health Care Service and Management, Health Policy and Services and Health Economy0 (SwePub)303012 hsv//eng
653 a EHR
653 a electronic health records
653 a mental health
653 a mental health care
653 a national survey
653 a online records access
653 a open notes
653 a ORA
653 a PAEHR
653 a patient-accessible electronic health record
653 a patients
653 a user experiences
653 a adolescent
653 a article
653 a documentation
653 a education
653 a electronic health record
653 a employment
653 a encouragement
653 a female
653 a gender
653 a health status
653 a health survey
653 a human
653 a major clinical study
653 a male
653 a prevalence
653 a Sweden
653 a Information Systems
653 a Informationssystem (IS)
653 a Information Systems
653 a Medical Informatics
7001 a Kharko, Annau Uppsala universitet,E-hälsa och hälsodata,Hälsovetenskap och e-hälsa4 aut0 (Swepub:uu)annkh217
7001 a Blease, Charlotteu Uppsala universitet,E-hälsa och hälsodata,Hälsovetenskap och e-hälsa4 aut0 (Swepub:uu)chabl597
7001 a Cajander, Åsa,c Professor,d 1971-u Uppsala universitet,Bildanalys och människa-datorinteraktion,Datavetenskapens didaktik,Avdelningen Vi3,Institutionen för informatik och media4 aut0 (Swepub:uu)ascaj168
7001 a Johansen Fagerlund, Asbjornu Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway4 aut
7001 a Huvila, Isto,c Professor,d 1976-u Uppsala universitet,Institutionen för ABM4 aut0 (Swepub:uu)isthu357
7001 a Johansen, Monika Aliseu Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway ; Department of Clinical Medicine, Telemedicine and E-health Research Group, Arctic University of Norway, Tromsø, Norway4 aut
7001 a Kane, Bridgetu Karlstads universitet,Handelshögskolan (from 2013),Business School, Karlstad University, Sweden4 aut0 (Swepub:kau)bridkane
7001 a Kujala, Sariu Department of Computer Science, Aalto University, Espoo, Finland4 aut
7001 a Moll, Jonas,d 1982-u Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information Systems, School of Business, Örebro University, Sweden,Örebro University, Sweden4 aut0 (Swepub:uu)jonmo359
7001 a Rexhepi, Hanife,d 1984-u Högskolan i Skövde,Institutionen för informationsteknologi,Forskningsmiljön Informationsteknologi,Informationssystem, Information Systems,School of Informatics, University of Skövde, Skövde, Sweden4 aut0 (Swepub:his)krah
7001 a Scandurra, Isabella,d 1973-u Uppsala universitet,Örebro universitet,Handelshögskolan vid Örebro Universitet,Centre for Empirical Research on Information Systems, School of Business, Örebro University, Sweden,Örebro University, Sweden,Institutionen för medicinska vetenskaper,Bildanalys och människa-datorinteraktion4 aut0 (Swepub:uu)isabscan
7001 a Wang, Bou Norwegian Centre for E-Health Research, University Hospital of North Norway, Tromsø, Norway4 aut
7001 a Hägglund, Maria,c Lektor,d 1975-u Uppsala universitet,Hälsovetenskap och e-hälsa4 aut0 (Swepub:uu)mha05791
7102 a Uppsala universitetb E-hälsa och hälsodata4 org
7730 t Journal of Medical Internet Researchd : JMIR Publicationsg 25q 25x 1438-8871
8564 u https://doi.org/10.2196/47841y Fulltext
8564 u https://his.diva-portal.org/smash/get/diva2:1812417/FULLTEXT01.pdfx primaryx Raw objecty fulltext:print
8564 u https://kau.diva-portal.org/smash/get/diva2:1815196/FULLTEXT01.pdfx primaryx Raw objecty fulltext:print
8564 u https://www.jmir.org/2023/1/e47841
8564 u http://www.ncbi.nlm.nih.gov/pubmed/37921861
8564 8u https://urn.kb.se/resolve?urn=urn:nbn:se:his:diva-23364
8564 8u https://doi.org/10.2196/47841
8564 8u https://urn.kb.se/resolve?urn=urn:nbn:se:oru:diva-109583
8564 8u https://urn.kb.se/resolve?urn=urn:nbn:se:kau:diva-97558
8564 8u https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-515506

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